pem

  1. Yann04

    Poll: What is your most disabling symptom?

    I’m curious.
  2. SNT Gatchaman

    Practical Recommendations for Exercise Training in Patients with Long COVID with or without Post-exertional Malaise, 2024, Gloeckl, Scheibenbogen+

    Practical Recommendations for Exercise Training in Patients with Long COVID with or without Post-exertional Malaise: A Best Practice Proposal Gloeckl, Rainer; Zwick, Ralf H.; Fürlinger, Ulrich; Schneeberger, Tessa; Leitl, Daniela; Jarosch, Inga; Behrends, Uta; Scheibenbogen, Carmen; Koczulla...
  3. SNT Gatchaman

    Review Developing effective strategies to optimize physical activity and cardiorespiratory fitness in [LC] need for caution […], 2024, Faghy, Dalton+

    Developing effective strategies to optimize physical activity and cardiorespiratory fitness in the long Covid population- The need for caution and objective assessment Faghy; Duncan; Hume; Gough; Roscoe; Laddu; Arena; Asthon; Dalton The Post Covid-19 Condition (commonly known as Long Covid) has...
  4. Andy

    Trial Report Mixed methods system for the assessment of post-exertional malaise in myalgic encephalomyelitis/CFS: an exploratory study, 2024, Stussman +

    Preprint Background A central feature of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is post exertional malaise (PEM), which is an acute worsening of symptoms after a physical, emotional and/or mental exertion. PEM is also a feature of Long COVID. Dynamic measures of PEM have...
  5. SNT Gatchaman

    Post-exertional malaise in daily life and experimental exercise models in patients with [ME/CFS], 2023, Vøllestad and Mengshoel

    Post-exertional malaise in daily life and experimental exercise models in patients with myalgic encephalomyelitis/chronic fatigue syndrome Vøllestad, Nina K.; Mengshoel, Anne Marit Post-exertional malaise (PEM) is commonly recognized as a hallmark of myalgic encephalomyelitis/chronic fatigue...
  6. Sly Saint

    Focus on Post-Exertional Malaise [in] ME/CFS in specialist healthcare improves satisfaction, reduces deteriorations, 2023,Wormgoor Rodenberg

    Background: Post-Exertional Malaise (PEM) is considered a hallmark characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). This may also apply to subgroups of patients with long COVID induced ME/CFS. However, it is uncertain to what extent PEM is acknowledged in routine...
  7. Hoopoe

    My experience with the vivosmart4

    It's an interesting toy and PEM is visible in the data it collects. It tracks steps per day (imprecisely), heart rate, stress level, body battery, sleep phases. I'm not sure what measurements the stress level and body battery are based on. The body battery is the measure that seems most...
  8. Sly Saint

    What is POTS? This strange disorder has doubled since the pandemic

    https://www.nationalgeographic.com/premium/article/pots-exercise-harm-fatigue-long-covid
  9. Dolphin

    Solve M.E. Patient and Caregiver Resource Guide: Post Exertional Malaise (PEM) and Rest

    Solve M.E. Patient and Caregiver Resource Guide: Post Exertional Malaise (PEM) and Rest https://solvecfs.org/wp-content/uploads/2021/09/PEM-REST-Combined.pdf A shorter version of this was in their latest e-newsletter...
  10. Dolphin

    Long-term health outcomes of Q-fever fatigue syndrome patients, 2023, Spronk

    Free fulltext: https://www.cambridge.org/core/journals/epidemiology-and-infection/article/longterm-health-outcomes-of-qfever-fatigue-syndrome-patients/99B3D80E172A66619C216506E020BB02 Long-term health outcomes of Q-fever fatigue syndrome patients Published online by Cambridge University...
  11. E

    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    Muscle Abnormalities Contribute to Post-Exertional Malaise in Long COVID A poster presentation of the very soon to be published work by Rob Wüsts team has been uploaded to Twitter. Paper now published, see post #8
  12. L

    Objective Evidence of Post-exertional “Malaise” in Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: Twisk, 2015

    Abstract Essential elements of Myalgic Encephalomyelitis (ME) are muscle (weakness) and tenderness, cognitive deficits, neurological impairments, especially of cognitive, autonomic and sensory functions, but above all, post-exertional “malaise”: a prolonged increase of symptoms after a minor...
  13. SNT Gatchaman

    Preprint High proportions of post-exertional malaise and orthostatic intolerance in people living with post-COVID-19 condition: the PRIME post-COVID study, 202

    High proportions of post-exertional malaise and orthostatic intolerance in people living with post-COVID-19 condition: the PRIME post-COVID study Demi ME Pagen; Maarten Van Herck; Celine JA van Bilsen; Stephanie Brinkhues; Kevin Konings; Casper DJ den Heijer; Martijn A Spruit; Christian JPA...
  14. Hoopoe

    PEM: a continued stress response / failure to enter a rest-recovery phase?

    The other day I learned that exercise is a strong trigger of the release of various hormones and signalling factors that we might label as stress signals. Some of the after effects of exercise that I experience feel exactly like my body continues to be stressed for hours afterwards, or even...
  15. SNT Gatchaman

    Post-exertional Malaise in ME/CFS - Webinar for Health Professionals - Dr Cathy Stephenson

    Posts moved from News from Aotearoa/New Zealand and the Pacific Islands YouTube - Post-Exertional Malaise in ME/CFS - Management and Supports - Webinar for Health Professionals (24 mins) Dr Cathy Stephenson for ME Awareness NZ on World ME Day. I think this is a good resource for GPs and...
  16. J

    Trial Report Sex-Dependent Transcriptional Changes in Response to Stress in Patients with ME/CFS: A Pilot Study, 2023, Nathanson, Klimas et al

    Full title: Sex-Dependent Transcriptional Changes in Response to Stress in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Project Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, multi-symptom illness characterized by debilitating...
  17. rvallee

    USA: The RECOVER Initiative - Long Covid research

    New thread created by collecting posts from a number of other threads If someone's in a listening mood, there's no transcript. 30 minutes with the NIH Recover initiative lead: Direct link: https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo006435&aid=10.1056/NEJMe2201619&area=.
  18. Andy

    ME Awareness Day / Week / Month, May 2023

    2023 World ME Day campaign announced "The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to understand this disease more accurately. That’s why our tagline this year is “ME...
  19. mango

    Videos on PEM and other ME/CFS topics - Bateman Horne Center

    PEM The Basics :thumbsup:
  20. Andy

    News from Long Covid Physios

    LongCovidPhysio - Jessica "Breathing Pattern Disorders", video 2021 The Management of Breathing Pattern Disorders https://www.physio-pedia.com/The_Management_of_Breathing_Pattern_Disorders Yet another Long Covid Physio podcast https://youtu.be/Avr9Ys4eJ-8
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