pem

How could someone draw, paint or otherwise visually portray these? [eta - over time] I want to do a creative project for myself but it's tricky to get going with this one... PEM Exertion intolerance / Fatiguability Random symptoms coming on for no apparent reason needing to sit or lie down I...

#MEAction and Patient-led Research Collaborative have created a four-part video series focusing on post-exertional malaise and pacing. Each video includes an interview with an expert conducted by Chimére L. Sweeney, a Long COVID author, speaker, filmmaker, and writer. We are thankful for the...

I get much more hungry during crashes. Not sure if it's anxious eating, since my anxiety also increases, or related to some mechanism of ME. I have been averaging around 2000 calories for a few weeks. I'm in a crash now from some intense computer focus sessions the past few days, and I'm at...

Schooltube https://www.schooltube.com/understanding-me-cfs-long-covid-and-post-exertional-malaise/

Towards an understanding of physical activity-induced post-exertional malaise: Insights into microvascular alterations and immunometabolic interactions in post-COVID condition and myalgic encephalomyelitis/chronic fatigue syndrome Haunhorst, Simon; Dudziak, Diana; Scheibenbogen, Carmen; Seifert...

New here. An ME blogger suggested I bring this idea here for discussion. Will leave out 9/10ths of this idea, looking to see if there's interest in discussion, and most importantly...facts which make this wrong. There’s a protein called myoglobin. It is expressed on muscle cells. One end of...

Discussion moved from this thread But the question is - what is 'exhaustion' in the context of ME/CFS. We have little evidence that it is actually depletion of energy reserves or a 'run down battery'. It certainly seems to feel like that but there is no shortage of oxygen or glucose and almost...

https://cdn.shopify.com/s/files/1/0873/0968/0927/files/240630_ACSM_Workwell_Lumia_Poster.pdf?v=1719881896 Blood Flow To The Head Is Reduced in a Patient With Myalgic Encephalomyelitis With Confirmed Post-Exertional Malaise Daniel Lee, Staci Stevens, Todd Davenport, Jared Stevens, Theresa...

Not sure if there are many other examples, but Ron Davis mentions one potentially successful case (or could be spontaneous remission) of someone recovering after avoiding crashes for a year: "One researcher had ME and she didn't have a crash and after a year she got better."

Cardiopulmonary and metabolic responses during a 2-day CPET in myalgic encephalomyelitis/chronic fatigue syndrome: translating reduced oxygen consumption to impairment status to treatment considerations Abstract Background Post-exertional malaise (PEM), the hallmark symptom of myalgic...

World Health Organization 22 – 24 May 2024 The Clinical Management and Operations Unit, WHO Health Emergencies Program supports a webinar program on post COVID-19 condition (also referred to as Long Covid). The series aims to build the capacity of clinicians globally to identify, diagnose, and...

In the patient community, it seems somewhat common to refer to instances where PEM (or a crash) led to worsening of the condition which was permanent. I have however yet to find a reference to this in the literature, if someone knows of one, I would be grateful as it is of interest to me, thanks!

I’m curious.

Practical Recommendations for Exercise Training in Patients with Long COVID with or without Post-exertional Malaise: A Best Practice Proposal Gloeckl, Rainer; Zwick, Ralf H.; Fürlinger, Ulrich; Schneeberger, Tessa; Leitl, Daniela; Jarosch, Inga; Behrends, Uta; Scheibenbogen, Carmen; Koczulla...

Developing effective strategies to optimize physical activity and cardiorespiratory fitness in the long Covid population- The need for caution and objective assessment Faghy; Duncan; Hume; Gough; Roscoe; Laddu; Arena; Asthon; Dalton The Post Covid-19 Condition (commonly known as Long Covid) has...

Preprint Background A central feature of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is post exertional malaise (PEM), which is an acute worsening of symptoms after a physical, emotional and/or mental exertion. PEM is also a feature of Long COVID. Dynamic measures of PEM have...

Post-exertional malaise in daily life and experimental exercise models in patients with myalgic encephalomyelitis/chronic fatigue syndrome Vøllestad, Nina K.; Mengshoel, Anne Marit Post-exertional malaise (PEM) is commonly recognized as a hallmark of myalgic encephalomyelitis/chronic fatigue...

Background: Post-Exertional Malaise (PEM) is considered a hallmark characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). This may also apply to subgroups of patients with long COVID induced ME/CFS. However, it is uncertain to what extent PEM is acknowledged in routine...

It's an interesting toy and PEM is visible in the data it collects. It tracks steps per day (imprecisely), heart rate, stress level, body battery, sleep phases. I'm not sure what measurements the stress level and body battery are based on. The body battery is the measure that seems most...

https://www.nationalgeographic.com/premium/article/pots-exercise-harm-fatigue-long-covid