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Page 4 of 6
  1. Tom Kindlon
    Thread

    "Plunging Grant Application Rates Test NIH’s Commitment to Chronic Fatigue Syndrome (ME/CFS)"

    Plunging Grant Application Rates Test NIH’s Commitment to Chronic Fatigue Syndrome (ME/CFS) by Cort Johnson This wasn't the plan. The NIH...
    Thread by: Tom Kindlon, Mar 21, 2019, 135 replies, in forum: General ME/CFS news
  2. duncan
    Thread

    NIH Study: Differences in Brain Activity in Children with Anhedonia (2019) Leibenluft et al.

    ...or How Using a Psych Label for a Downstream Effect of an Organic Problem Can Be Both Fun And Fruitless....
    Thread by: duncan, Mar 14, 2019, 0 replies, in forum: Other health news and research
  3. Andy
    Thread

    NIH: Thinking the Future: A Workshop for Young Early Career ME CFS Investigators, April 3rd, 2019

    This workshop for early career ME/CFS researchers is a satellite event to "Accelerating Research on ME/CFS Workshop" on April 4-5, 2019. The...
    Thread by: Andy, Feb 7, 2019, 1 replies, in forum: General ME/CFS news
  4. Cheshire
    Thread

    Who Reviews ME/CFS Applications for NIH? Jennie Spotila

    There is no question that NIH’s funding of ME/CFS research has been minuscule relative to the size of the public health crisis. Review of ME/CFS...
    Thread by: Cheshire, Feb 5, 2019, 2 replies, in forum: General ME/CFS news
  5. Andy
    Thread

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    Goal: Present high-quality science studies of ME/CFS to better understand the state of the science and help drive the field forward by identifying...
    Thread by: Andy, Jan 18, 2019, 271 replies, in forum: General ME/CFS news
  6. akrasia
    Thread

    The $35 billion race to cure a silent killer that affects 30 million Americans

    https://www.cnbc.com/2018/12/21/the-35-billion-race-for-a-cure-for-a-liver-disease-that-affects-millions.html (from later in the article my...
    Thread by: akrasia, Jan 13, 2019, 41 replies, in forum: Other health news and research
  7. John Mac
    Thread

    STAT: 'The NIH is thwarting research on a poorly understood yet serious condition', 2019, Jennifer Spotila

    Opinion piece in STAT by Jennifer Spotila An estimated 1 million Americans with this condition have been living for decades in the crisis mode...
    Thread by: John Mac, Jan 10, 2019, 19 replies, in forum: General ME/CFS news
  8. Andy
    Thread

    Open NIH Focus Group on PEM

    Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to learn more about PEM in...
    Thread by: Andy, Jan 7, 2019, 11 replies, in forum: Recruitment into current ME/CFS research studies
  9. Andy
    Thread

    David Tuller: Trial By Error: “Talk is Cheap,” Patients Tell NIH

    Earlier this month, NIH director Francis Collins and other agency officials held a meeting with five representatives from #MEAction. According to...
    Thread by: Andy, Dec 27, 2018, 93 replies, in forum: General ME/CFS news
  10. Andy
    Thread

    Blog: Occupy ME: "NIH’s Obstacle Course to Success for ME/CFS Researchers"

    One message dominates NIH’s talk about ME/CFS research: submit more high quality grant applications. Funding would increase if there were more...
    Thread by: Andy, Dec 3, 2018, 0 replies, in forum: Advocacy Projects and Campaigns
  11. Sunshine3
    Thread

    NIH response to Mary Gelpi petition

    https://www.change.org/p/increase-research-funding-for-me-cfs/u/23686254?cs_tk=AUWl2Qz7NG-fLViGA1wAnBKDWTbxtNsAD1IAIo2cXA%3D%3D&utm_campaign=8ea457...
    Thread by: Sunshine3, Nov 29, 2018, 8 replies, in forum: Advocacy Projects and Campaigns
  12. rvallee
    Thread

    Do we actually know if the NIH funding is being spent?

    There have been many discussions on NIH funding, and in particular the new funds dedicated to the new collaborative centers, as well as the...
    Thread by: rvallee, Oct 26, 2018, 16 replies, in forum: General Advocacy Discussions
  13. Andy
    Thread

    Blog: Occupy ME: NIH Funding for ME Goes Down in 2018

    Fiscal year 2018 is over, so now we can answer the question of whether ME research funding at NIH would go up or down. As I predicted back in...
    Thread by: Andy, Oct 21, 2018, 2 replies, in forum: Advocacy Projects and Campaigns
  14. MeSci
    Thread

    News from NIH: ME/CFS Telebriefing- October 23, 2018

    Source: National Institutes of Health Date: October 11, 2018 URL: http://list.nih.gov/cgi-bin/wa.exe?A0=NIH-MECFS_INFORMATION News from NIH:...
    Thread by: MeSci, Oct 12, 2018, 27 replies, in forum: General ME/CFS news
  15. WillowJ
    Thread

    What I learned about weight loss from spending a day inside a metabolic chamber

    A healthy control describes the NIH metabolic chamber which is also being used in the ME study....
    Thread by: WillowJ, Sep 23, 2018, 21 replies, in forum: Other health news and research
  16. Andy
    Thread

    NIH Launches New Working Group Dedicated to ME/CFS

    The NIH (National Institutes of Health) recently formed The ME/CFS Working Group of the NINDS (National Institute of Neurological Disorders and...
    Thread by: Andy, Sep 14, 2018, 4 replies, in forum: General ME/CFS news
  17. Kalliope
    Thread

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives!

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives! The persistent dedication of our community to fight for our lives...
    Thread by: Kalliope, Sep 6, 2018, 48 replies, in forum: General ME/CFS news
  18. Andy
    Thread

    NIH Directors Blog: Researchers Elucidate Role of Stress Gene in Chronic Pain

    For most people, pain eventually fades away as an injury heals. But for others, the pain persists beyond the initial healing and becomes chronic,...
    Thread by: Andy, Sep 4, 2018, 0 replies, in forum: Other health news and research
  19. Denise
    Thread

    Blog: Occupy ME: 2018 NIH funding estimate

    Jennie Spotila has an important post on 2018 NIH funding. http://occupyme.net/2018/07/30/how-much-will-nih-spend-in-2018/
    Thread by: Denise, Jul 30, 2018, 3 replies, in forum: General ME/CFS news
  20. Melanie
    Thread

    Bateman Horne Center Will Be A Recruitment Center for the Precision Medicine Initiative

    Bateman Horne Center will be a recruitment center of the Precision Medicine Initiative for ME/CFS and Fibromyalgia. NIH Announces Precision...
    Thread by: Melanie, Jul 29, 2018, 1 replies, in forum: ME/CFS research
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