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  1. Andy
    Thread

    Blog: Occupy ME: NIH 2017 Funding Fact-Check

    Today, we need to revisit and reconcile NIH’s funding numbers for FY 2017. NIH is reporting that it spent $15 million dollars on ME/CFS research...
    Thread by: Andy, Jul 23, 2018, 1 replies, in forum: General ME/CFS news
  2. Kalliope
    Thread

    MEAction: The NIH responds to #MEAction, next steps

    The NIH responds to #MEAction, nexts steps Following the global day of action on May 12, 2018, #MEAction gathered photos and petition signatures...
    Thread by: Kalliope, Jul 19, 2018, 21 replies, in forum: Open Letters and Replies
  3. MeSci
    Thread

    NIH: ME/CFS Telebriefing - July 19, 2018

    Source: National Institutes of Health Date: July 10, 2018 URL: http://list.nih.gov/cgi-bin/wa.exe?A0=NIH-MECFS_INFORMATION NIH: ME/CFS...
    Thread by: MeSci, Jul 11, 2018, 18 replies, in forum: General ME/CFS news
  4. MeSci
    Thread

    Closed meeting June 28, 2018 at National Institutes of Health

    Source: U.S. Federal Register Vol. 83, #105, p 25025 Date: May 25, 2018 URL:...
    Thread by: MeSci, May 31, 2018, 4 replies, in forum: General ME/CFS news
  5. Andy
    Thread

    Occupy ME blog post: The NIH Pilot Program: Wait and See

    MEAction has collected thousands of signatures on a letter to Dr. Francis Collins, asking for a meeting with him and a plan of action to attack...
    Thread by: Andy, May 21, 2018, 7 replies, in forum: General ME/CFS news
  6. Andy
    Thread

    Worldwide Action: Sign #MEAction’s Letter to Francis Collins by May 16th

    Our plan calls for significantly ramping up research funding to equal the disease burden, which studies approximate at $190 to $250 million. Our...
    Thread by: Andy, May 11, 2018, 44 replies, in forum: Advocacy Action Alerts
  7. Andy
    Thread

    NIH seeks health data of 1 million people, with genetic privacy suddenly an issue

    The National Institutes of Health on Tuesday announced the launch of its attempt to enroll 1 million people in a landmark research effort aimed at...
    Thread by: Andy, May 4, 2018, 0 replies, in forum: Other health news and research
  8. John Mac
    Thread

    Proposal for Canadian CRC to join forces with US NIH's 3 CRC's to research ME

    CIHR is participating as an international collaborator on this NIH initiative, and will provide funding to one Canadian multidisciplinary team to...
    Thread by: John Mac, Apr 30, 2018, 18 replies, in forum: General ME/CFS news
  9. Webdog
    Thread

    537 New Drugs In Development For Neurological Disorders

    https://www.forbes.com/sites/robinseatonjefferson/2018/04/27/report-offers-hope-outlines-537-new-drugs-in-development-for-neurological-disorders/...
    Thread by: Webdog, Apr 28, 2018, 0 replies, in forum: Other health news and research
  10. Samuel
    Thread

    NIH reply to my open letter to Francis Collins [The Kafka Pandemic]

    hi all, new blog post on the kafka pandemic. it is related to my 2016 open letter to francis collins....
    Thread by: Samuel, Apr 25, 2018, 6 replies, in forum: General ME/CFS news
  11. Allele
    Thread

    NIH Reddit AMA Immediate Action: Please go Upvote

    Please go upvote the questions about ME/CFS so they stay visible: (start with www.)...
    Thread by: Allele, Apr 20, 2018, 3 replies, in forum: Other health news and research
  12. Allele
    Thread

    Virology Blog: Can the big ship NIH turn at all?

    http://www.virology.ws/2018/04/05/can-the-big-nih-ship-turn-at-all/ The National Institutes of Health is the major funding agency for biomedical...
    Thread by: Allele, Apr 7, 2018, 1 replies, in forum: Other health news and research
  13. Sbag
    Thread

    NBC News - What Doctors Want You to Know About Chronic Fatigue Syndrome

    coverage last month of the NIH changes...
    Thread by: Sbag, Mar 31, 2018, 2 replies, in forum: General ME/CFS news
  14. Sasha
    Thread

    2017 NIH spending on ME/CFS research (Jennie Spotila blog, 20 March 2018)

    It is time to analyze how NIH spent its investment in ME research in 2017. NIH has not yet issued its own tally for 2017 through the categorical...
    Thread by: Sasha, Mar 20, 2018, 2 replies, in forum: General ME/CFS news
  15. Simon M
    Thread

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Brian Vastag asked me to post this here as he isn’t on Science 4 ME. Hi - I'm nearing the end of week 2, visit 2 of the NIH study. Thought that...
    Thread by: Simon M, Mar 15, 2018, 459 replies, in forum: ME/CFS research news
  16. Kalliope
    Thread

    Medpage Today-poll: Is NIH on track for CFS research?

    Overcoming Chronic Fatigue - In the NIH now on track? One can answer yes or no.
    Thread by: Kalliope, Mar 6, 2018, 6 replies, in forum: General ME/CFS news
  17. ahimsa
    Thread

    Telebriefing by Trans-NIH ME/CFS Working Group on March 7, 3-4 PM Eastern Time

    I got some email today from the The Trans-NIH ME/CFS Working Group. (I guess I signed up for their mailing list but had forgotten all about it)...
    Thread by: ahimsa, Feb 23, 2018, 10 replies, in forum: Advocacy Action Alerts
  18. Tom Kindlon
    Thread

    Proposed 2019 presidential budget for CDC involves zeroing of CFS program

    https://tinyurl.com/ybkbkvrv i.e. https://www.cdc.gov/budget/documents/fy2019/fy-2019-detail-table.pdf The CDC CFS budget is substantial: $5.4...
    Thread by: Tom Kindlon, Feb 17, 2018, 15 replies, in forum: General ME/CFS news
  19. Frogger
    Thread

    Q&A: Avindra Nath, MD

    Q&A: Avindra Nath, MD Leading NIH study of post-infection chronic fatigue syndrom https://www.medpagetoday.com/neurology/generalneurology/71257
    Thread by: Frogger, Feb 20, 2018, 26 replies, in forum: ME/CFS research news
  20. Simon M
    Thread

    Results of the poll to inform the NIH/CDC’s definition of PEM in all their future ME/CFS research

    Huge thanks to everyone who took part in the poll and shared it on social media. In January, our small group of research-oriented ME/CFS patients...
    Thread by: Simon M, Feb 2, 2018, 7 replies, in forum: General ME/CFS news
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