nih

https://solvecfs.org/nih-launches-new-working-group-dedicated-to-me-cfs/

#MEAction: NIH Update: Collins Will Meet With #MEAction Representatives! The persistent dedication of our community to fight for our lives continues to yield results. We are pleased to announce #MEAction has secured a meeting with Dr. Francis Collins, Director of the National Institutes of...

https://directorsblog.nih.gov/2018/09/04/researchers-elucidate-role-of-stress-gene-in-chronic-pain/

Jennie Spotila has an important post on 2018 NIH funding. http://occupyme.net/2018/07/30/how-much-will-nih-spend-in-2018/

Bateman Horne Center will be a recruitment center of the Precision Medicine Initiative for ME/CFS and Fibromyalgia. NIH Announces Precision Medicine Initiative

http://occupyme.net/2018/07/23/nih-2017-funding-fact-check/

The NIH responds to #MEAction, nexts steps Following the global day of action on May 12, 2018, #MEAction gathered photos and petition signatures from people all over the world and mailed it to Director of the NIH, Francis Collins. Along with your beautiful photos and anecdotes, we delivered a...

Source: National Institutes of Health Date: July 10, 2018 URL: http://list.nih.gov/cgi-bin/wa.exe?A0=NIH-MECFS_INFORMATION NIH: ME/CFS Telebriefing - July 19, 2018 ---------------------------------------- We request your participation in a telebriefing about updates on NIH's efforts to...

Source: U.S. Federal Register Vol. 83, #105, p 25025 Date: May 25, 2018 URL: https://www.federalregister.gov/documents/2018/05/31/2018-11722/center-for-scientific-review-notice-of-closed-meetings https://www.gpo.gov/fdsys/pkg/FR-2018-05-31/pdf/2018-11722.pdf [A Notice by the National...

http://occupyme.net/2018/05/21/the-nih-pilot-program-wait-and-see/

https://www.meaction.net/2018/05/11/letter-to-francis-collins/

https://www.washingtonpost.com/national/health-science/nih-seeks-health-data-of-1-million-people-with-genetic-privacy-suddenly-an-issue/2018/05/01/cb38a588-4d4b-11e8-b725-92c89fe3ca4c_story.html

https://www.researchnet-recherchenet.ca/rnr16/viewOpportunityDetails.do?browseArc=true&fodAgency=CIHR&org=CIHR&progCd=10866&view=browseArchive&language=E

https://www.forbes.com/sites/robinseatonjefferson/2018/04/27/report-offers-hope-outlines-537-new-drugs-in-development-for-neurological-disorders/

hi all, new blog post on the kafka pandemic. it is related to my 2016 open letter to francis collins. http://thekafkapandemic.blogspot.com/2018/04/nih-reply-to-my-open-letter-and-legal_24.html many nih employees will read it, so comments on the blog itself might be useful in getting across...

Please go upvote the questions about ME/CFS so they stay visible: (start with www.) reddit.com/r/science/comments/8dn0jo/im_francis_collins_director_of_the_national/

http://www.virology.ws/2018/04/05/can-the-big-nih-ship-turn-at-all/

coverage last month of the NIH changes https://www.nbcnews.com/nightly-news/video/what-doctors-want-you-to-know-about-chronic-fatigue-syndrome-397029955917 looked ok as a report until the end where Natalie Azar their "medical contributor" who is a rheumatologist said that treatments vary and...

Read the rest at: http://occupyme.net/2018/03/20/2017-nih-spending-on-mecfs-research/ I haven't read it yet but Jennie is always good value. :)

Brian Vastag asked me to post this here as he isn’t on Science 4 ME. Hi - I'm nearing the end of week 2, visit 2 of the NIH study. Thought that I'd reiterate to the community that the study is still recruiting and still needs patients. To volunteer, contact patient coordinator Angelique Gavin...