nih

Registration is now open for this online, NIAID-hosted workshop: Workshop on Post-Acute Sequelae of COVID-19 December 3, 2020—December 4, 2020 10:00 AM - 5:00 PM Eastern Time Videocast The workshop will be hosted on the Zoom platform; however, due to space restraints on Zoom, we will also...

NIH Funding for ME in 2020: Falling Flat http://occupyme.net/2020/11/06/nih-funding-for-me-in-2020-falling-flat/

I have spent some time (probably far too much for my health) drafting and redrafting this letter with some helpful suggestions from members on a members only thread: https://www.s4me.info/threads/draft-letter-to-the-authors-of-the-nih-pem-study-2020.17052/ The letter refers to a paper discussed...

This thread is the result of the merging of a number of threads "Dr. Anthony Fauci discusses some of the public health and scientific challenges presented by COVID-19. This talk was Dr. Fauci's keynote presentation at Penn Medicine's Cancer and COVID-19 virtual conference on September 30, 2020."

Barbara Stussman1*, Ashley Williams2, Joseph Snow3, Angelique Gavin4, Remle Scott1, Avindra Nath4 and Brian Walitt5 https://www.frontiersin.org/articles/10.3389/fneur.2020.01025/full

Does anyone have a good overview of grants from the National Institutes of Health (NIH) for ME/CFS research and how much money each grant is receiving? If I recall correctly, Jason/Katz got funding to follow up on the adolescents who got ME/CFS following EBV, and Younger got a grant to test...

First Meeting of Interagency ME/CFS Working Group will be VideoCast Led by NIH and CDC, U.S. Agencies are coming together to coordinate their efforts and facilitate stakeholder input through the new Interagency ME/CFS Working group. Air date: Tuesday, August 11, 2020, 3:00 PM EDT / 8:00 PM UK...

Raskin Introduces Legislation to Address America’s Hidden Health Crisis

Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (R01 Clinical Trials Not Allowed) Funding Opportunity Announcement (FOA) Number PAR-20-165 This Funding Opportunity Announcement (FOA) encourages investigator(s)-initiated applications that propose to examine the etiology...

MEAction has an article reporting on their "Cards to Koroshetz" campaign. They asked folks to send holiday cards to Dr. Koroshetz, Director of NINDS (National Institute of Neurological Disorders and Stroke) at NIH, to tell their stories about living with ME...

National institute of Environmental Health Sciences, Research Triangle Park, NC https://www.training.nih.gov/postdoc_jobs_nih/view/_31/6990/Methods_in_Statistical_Genetics_and_Bioinformatics

Although this shows how, yet again, the NIH misses every opportunity to show its commitments to us, it could still provide useful clues and a good comparison base for exercise studies. In particular it will focus on deconditioned participants and compare them to highly active individuals. This...

http://occupyme.net/2019/11/07/nih-funding-for-me-needs-life-support/

From October 9 email:

From a Solve email newsletter. I thought we had a thread on this topic but couldn't find it. Since 2016, the National Institutes of Health (NIH) have hosted regular conference calls to improve transparency and stakeholder input. During these calls, NIH shares updates on research and provide an...

My bolding. https://directorsblog.nih.gov/2019/09/19/new-grants-explore-benefits-of-music-on-health/

From: NIH MECFS Information List Sent: Wednesday 4 September 2019 15:36 Subject: News from NIH: Report of the NANDSC Working Group for ME/CFS Research now online The report of the NANDSC Working Group for ME/CFS Research is now online...

> Public comments received in response to a Request for Information from the NANDS Council Working Group for ME/CFS Research are now available: https://www.ninds.nih.gov/node/18206