Overcoming Chronic Fatigue - In the NIH now on track? One can answer yes or no.
I got some email today from the The Trans-NIH ME/CFS Working Group. (I guess I signed up for their mailing list but had forgotten all about it)...
https://tinyurl.com/ybkbkvrv i.e. https://www.cdc.gov/budget/documents/fy2019/fy-2019-detail-table.pdf The CDC CFS budget is substantial: $5.4...
Q&A: Avindra Nath, MD Leading NIH study of post-infection chronic fatigue syndrom https://www.medpagetoday.com/neurology/generalneurology/71257
Huge thanks to everyone who took part in the poll and shared it on social media. In January, our small group of research-oriented ME/CFS patients...
https://www.wired.com/story/scientists-hate-the-nihs-new-rules-for-experimenting-on-humans/amp?__twitter_impression=true "This week, after...
The Unrest film team sent out a rather long email today. At the bottom of the mail there are links to three actions to take. I thought the action...
Science for ME are pleased to announce that we have today submitted the following critique of the Chalder Fatigue Questionnaire to the NIH/CDC...
As shown on the attachment - PDF, HHS’ contingency plans for agency operations in the absence of appropriations would lead to furloughing 40,959...
A small group of ME/CFS patients with an interest in research, including Simon McGrath, Graham McPhee, Carly Maryhew and others, are asking for...
by Amy Maxmen After decades of pleading, people with the condition have finally caught the attention of mainstream science — and dozens of...
Apparently the NIH ME/CFS Working Group have developed Common Data Elements (CDEs) for ME/CFS and they'll be made public tomorrow. The public can...
What’s happening at Precise.ly? We’ve recently been selected as a patient tracking platform for a 5-year, NIH-funded myalgic...
Edit: As of 13 December, a recording and transcript are available here. We request your participation in a telebriefing about updates on NIH’s...
A thread to collate all the announcements from the different centres that were awarded funding by the NIH, and articles about the news. NIH...
Columbia's announcement of the grant award. NIH Awards $9.6 Million Grant to Columbia for a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
It is a very complex, very real physical disease, and one that for years has caused uncertainty, confusion and even dismissal by many medical...
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