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Medpage Today-poll: Is NIH on track for CFS research?

Discussion in 'General ME/CFS news' started by Kalliope, Mar 6, 2018.

  1. Kalliope

    Kalliope Senior Member (Voting Rights)

  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    well as they can't even get the name right............
    I'm not overcoming chronic fatigue, and there has been more than enough research on chronic fatigue.

    Now can we please have some on M.E.
    Valentijn, Allele, Melanie and 8 others like this.
  3. Esther12

    Esther12 Senior Member (Voting Rights)

    I want an 'improved, but still not on track' option.
    ahimsa, Valentijn, Allele and 9 others like this.
  4. Barry

    Barry Senior Member (Voting Rights)

    Tragic really isn't it :rolleyes:.
  5. strategist

    strategist Senior Member (Voting Rights)

    What a frustrating poll. No could mean "not doing enough", or "doing the wrong thing". When I checked it was 40% yes and 60% no.

    Edit: one can see how users from different countries voted. The UK voted 95% no. :eek:
    Joh, Melanie, Forbin and 4 others like this.
  6. Forbin

    Forbin Senior Member (Voting Rights)

    There's a difference between being "on track" (which is the headline of the poll) and being "on the right track," which is the actual poll question. They are definitely on some kind of track, which is an improvement from 30 years of not being on any kind of track (the CDC's earlier studies were not done under the auspices of the NIH, as they are separate agencies).

    They're currently engaged in massive data gathering, which is probably the best thing they could be doing at this point. The question is weather they have the funding to effectively carry this out. They're testing a relatively small number of patients and healthy controls on the assumption that their methods are powerful enough to overcome this limitation. They're also using recovered Lyme patients as controls because, I believe, they already have that data, thus making their inclusion an economical data set for comparison.

    I don't know exactly what this poll is supposed to reflect. Since it is open to everyone, it really can't be assumed to reflect the views of patients.

    A poll answered mainly by LP practitioners would no doubt indicate that EC's research was "on the right track."
    Last edited: Mar 7, 2018
    ahimsa, Valentijn, Kalliope and 3 others like this.
  7. Webdog

    Webdog Senior Member (Voting Rights)

    Holodeck #2
    Kalliope, Trish, Forbin and 2 others like this.

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