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  1. rvallee
    Thread

    USA: The RECOVER Initiative - Long Covid research

    New thread created by collecting posts from a number of other threads If someone's in a listening mood, there's no transcript. 30 minutes with...
    Thread by: rvallee, Feb 13, 2022, 126 replies, in forum: Long Covid news
  2. InitialConditions
    Thread

    The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

    [MEDIA] Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.
    Thread by: InitialConditions, Feb 3, 2022, 4 replies, in forum: General Advocacy Discussions
  3. Jaybee00
    Thread

    Webinar: Massachusetts ME/CFS & FM research update - 23 October 2021

    Copied post: USA: Massachusetts ME/CFS & FM Association news Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long...
    Thread by: Jaybee00, Oct 22, 2021, 67 replies, in forum: ME/CFS research news
  4. Sly Saint
    Thread

    Open NIH: Proof of concept trial on the effect of Ketamine on Fatigue Study

    The National Institute of Nursing Research (NINR), at the National Institutes of Health (NIH) is seeking people who are cancer survivors or have a...
    Thread by: Sly Saint, Jul 17, 2021, 30 replies, in forum: Recruitment into current ME/CFS research studies
  5. ahimsa
    Thread

    "Principles of Autonomic Medicine" by David Goldstein (version 3) - Free e-Book available at thedysautonomiaproject.org

    I was browsing https://thedysautonomiaproject.org/ and I found this free e-book, "Principles of Autonomic Medicine" by David S. Goldstein :...
    Thread by: ahimsa, Jul 1, 2021, 0 replies, in forum: Orthostatic intolerance treatments
  6. rvallee
    Thread

    [POTS]: State of the science and clinical care from a 2019 [NIH] Expert Consensus Meeting, 2021

    (Very unsure where to put this, not quite guidelines, related to ME, but not research either) (Also unsure why it took 2 years to publish this but...
    Thread by: rvallee, Jun 20, 2021, 5 replies, in forum: Other guidelines
  7. shak8
    Thread

    NIH Heal (addiction) Initiative to promote alternative therapies for post-surgical pain

    Pain treatment at the NIH is under the rubric of addiction to opioids. Therefore, since alternative/integrative therapies are, according to them,...
    Thread by: shak8, Jun 16, 2021, 5 replies, in forum: Other health news and research
  8. Sly Saint
    Thread

    AHRQ Diagnosis and Treatment of ME/CFS: addendum, 2016, Smith et al

    "This publication is provided for historical reference only and the information may be out of date." Introduction The AHRQ evidence report on the...
    Thread by: Sly Saint, Jun 5, 2021, 4 replies, in forum: ME/CFS research
  9. sveinnb
    Thread

    REAP: A platform to identify autoantibodies that target the human exoproteome, 2021, Wang et al

    I personally believe that ME/CFS is antibody driven and I therefore think this breakthrough technology could tell us alot about at least a subset...
    Thread by: sveinnb, May 30, 2021, 32 replies, in forum: Other health news and research
  10. Kalliope
    Thread

    ME/CFS Alert Episode 126: Interview with dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at NIH

    - In this episode, Llewellyn King and Dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at the National...
    Thread by: Kalliope, May 21, 2021, 5 replies, in forum: General ME/CFS news
  11. Kalliope
    Thread

    NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome

    Quotes: As a person living with POTS, Goff wants to see researchers focus more on why POTS happens. “I feel like current treatments aren’t really...
    Thread by: Kalliope, May 1, 2021, 18 replies, in forum: 'Conditions related to ME/CFS' news and research
  12. Andy
    Thread

    Blog: "The Death Threat Myth Exposed", Jennie Spotila

    Last week, an old story was recounted to a new audience. During the March 30, 2021 NIH telebriefing with the ME/CFS community, Dr. Vicky...
    Thread by: Andy, Apr 6, 2021, 45 replies, in forum: General ME/CFS news
  13. Andy
    Thread

    Gender Disparity in the Funding of Diseases by the U.S. National Institutes of Health, 2020, Mirin

    Background: Gender bias has been an ongoing issue in health care, examples being underrepresentation of women in health studies, trivialization of...
    Thread by: Andy, Mar 16, 2021, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. rvallee
    Thread

    A clinical primer for the expected and potential post-COVID-19 syndromes, Walitt and Bartrum, 2021

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7889402/ Abstract In late 2019, a novel coronavirus SARS-CoV-2 (COVID-19) spread unchecked across...
    Thread by: rvallee, Feb 23, 2021, 18 replies, in forum: Long Covid research
  15. Andy
    Thread

    USA: NIH National Institutes of Health news

    A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research Medpage today: "NIH Striving to Avoid False Hope in...
    Thread by: Andy, Jan 16, 2018, 432 replies, in forum: News from organisations
  16. ME/CFS Skeptic
    Thread

    Why is ME/CFS getting so little research funding?

    Looking at figures such as those from the NIH, ME/CFS is receiving far less funding than it should, based on disease burden. I would like to start...
    Thread by: ME/CFS Skeptic, Nov 24, 2020, 72 replies, in forum: General Advocacy Discussions
  17. ahimsa
    Thread

    NIAID will host “Workshop on Post-Acute Sequelae of COVID-19” on Dec 3-4 2020

    Registration is now open for this online, NIAID-hosted workshop: Workshop on Post-Acute Sequelae of COVID-19 December 3, 2020—December 4, 2020...
    Thread by: ahimsa, Nov 16, 2020, 12 replies, in forum: Long Covid news
  18. Andy
    Thread

    USA: NIH annual funding for ME/CFS research (discussion)

    NIH Funding for ME in 2020: Falling Flat NIH funding for ME/CFS research should be increasing each year. Everyone agrees that this is needed....
    Thread by: Andy, Nov 6, 2020, 15 replies, in forum: General ME/CFS news
  19. Trish
    Thread

    A personal letter to the NIH team researching ME/CFS about their PEM study, 2020

    I have spent some time (probably far too much for my health) drafting and redrafting this letter with some helpful suggestions from members on a...
    Thread by: Trish, Oct 6, 2020, 42 replies, in forum: Open Letters and Replies
  20. Cheshire
    Thread

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    Barbara Stussman1*, Ashley Williams2, Joseph Snow3, Angelique Gavin4, Remle Scott1, [IMG]Avindra Nath4 and Brian Walitt5 Background: Myalgic...
    Thread by: Cheshire, Sep 18, 2020, 94 replies, in forum: ME/CFS research
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