nih

https://www.medrxiv.org/content/10.1101/2021.09.21.21263845v2 Abstract While significant attention has been paid to the immunologic determinants of disease states associated with COVID-19, their contributions to post-acute sequelae of COVID-19 (PASC) remain less clear. Due to the wide array of...

Apologies if there is already a thread on this

Abstract Background and Objectives Various peripheral neuropathies, particularly those with sensory and autonomic dysfunction may occur during or shortly after acute COVID-19 illnesses. These appear most likely to reflect immune dysregulation. If similar manifestations can occur with the...

Copied post from here More info: White House launches national plan to address long COVID https://www.reuters.com/world/us/white-house-launches-national-plan-address-long-covid-2022-04-05/ President Joe Biden on Tuesday announced a national action plan to be developed by the U.S. health...

New thread created by collecting posts from a number of other threads If someone's in a listening mood, there's no transcript. 30 minutes with the NIH Recover initiative lead: Direct link: https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo006435&aid=10.1056/NEJMe2201619&area=.

Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.

Copied post: USA: Massachusetts ME/CFS & FM Association news Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long Covid https://sites.google.com/massmecfs.org/2021annualmeeting

full details https://www.cc.nih.gov/sites/nihinternet/files/internet-files/recruit/pdfs/20_fatigue.pdf (this pdf seems to have been created last year?)

I was browsing https://thedysautonomiaproject.org/ and I found this free e-book, "Principles of Autonomic Medicine" by David S. Goldstein : https://thedysautonomiaproject.org/wp-content/uploads/2020/06/Principles-of-Autonomic-Medicine-v.-3.0.pdf I have not read this book. But I did skim the...

(Very unsure where to put this, not quite guidelines, related to ME, but not research either) (Also unsure why it took 2 years to publish this but it's new) Part 1 of 2 (according to this tweet). https://www.sciencedirect.com/science/article/pii/S1566070221000588 Abstract Postural...

Pain treatment at the NIH is under the rubric of addiction to opioids. Therefore, since alternative/integrative therapies are, according to them, shown to be helpful in alleviating some pain, surgeons at the Mayo clinic will be part of a pilot study in verbally suggesting alternative therapies...

"This publication is provided for historical reference only and the information may be out of date." Introduction The AHRQ evidence report on the Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome was published in December, 2014 and provided a literature review for...

I personally believe that ME/CFS is antibody driven and I therefore think this breakthrough technology could tell us alot about at least a subset of patients. Here you can identify antibodies to extracelluar proteins (non tissue degenerating) which relates to us as patients since there is no...

- In this episode, Llewellyn King and Dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at the National Institutes of Health, discuss the new goverment funding for long-haul Covid and its impact on ME/CFS research. Dr. Koroshetz is hopeful that the $1.15 billion...

Quotes: As a person living with POTS, Goff wants to see researchers focus more on why POTS happens. “I feel like current treatments aren’t really getting to the root problem, and I also worry about the effects of taking steroids long term,” Goff said. “I’d like to see possibly better treatments...

Last week, an old story was recounted to a new audience. During the March 30, 2021 NIH telebriefing with the ME/CFS community, Dr. Vicky Whittemore said that there had been death threats against grant reviewers in the past, and that this was one reason why NIH is now withholding the names of...

Background: Gender bias has been an ongoing issue in health care, examples being underrepresentation of women in health studies, trivialization of women's physical complaints, and discrimination in the awarding of research grants. We examine here a different issue—gender disparity when it comes...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7889402/ Abstract In late 2019, a novel coronavirus SARS-CoV-2 (COVID-19) spread unchecked across the world's population. With tens of millions infected, the long-term consequences of COVID-19 infection will be a major health care focus for years...

A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research Medpage today: "NIH Striving to Avoid False Hope in Chronic Fatigue" Shame about the title, yet again. https://www.medpagetoday.com/publichealthpolicy/publichealth/70529

Looking at figures such as those from the NIH, ME/CFS is receiving far less funding than it should, based on disease burden. I would like to start a discussion on why ME/CFS is receiving so little research funding. Finding what the obstacles are, might help to improve the situation. Evelien and...