nih

Persistent immune dysregulation and metabolic alterations following SARS-CoV-2 infection Silvia Lucena Lage; Katherine Bricker-Holt; Joseph M. Rocco; Adam Rupert; Frank X. Donovan; Yevgeniya A. Abramzon; Settara C. Chandrasekharappa; Colton McNinch; Logan Cook; Eduardo Pinheiro Amaral; Gabriel...

Complementary and integrative health approaches used for pain management by U.S. adults with [ME/CFS]: Findings from the 2022 National Health Interview Survey https://www.sciencedirect.com/science/article/abs/pii/S1876382025000150 Highlights Limited research on pain management for chronic...

At the risk of getting mods mad—I’m making this a new thread. This is the agenda for this meeting. https://recovercovid.org/sites/default/files/docs/RECOVER-TLC_Workshop-Agenda.pdf If they had any interest in addressing Covid triggered MECFS, then this is really bad. Like maybe two people here...

This thread has been split from the NIH News thread The thread on the paper for the NIH ME/CFS study which is the subject of this symposium is here: Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al Link to the recording of the symposium...

Solve ME has created an automated tool (meant for folks in the USA) that will contact your Member of Congress (email/phone/twitter) and ask them to support a new "home" for "Infection-Associated Chronic Conditions and Illnesses" (IACCIs). Text part of the automated tool: There's another...

Copied from Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al I do not get the impression that this part of the study is an honest, illness- and patientinput-driven look into ME; to me it looks an awful lot like an effort to (further)...

First news: https://www.statnews.com/2024/02/21/nih-study-myalgic-encephalomyelitis-chronic-fatigue-syndrome-news/ Moderator note: Posts on some specific parts of the study are in separate threads, for improved readability: Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024...

Copied post News from NIH: NINDS is seeking feedback on ME/CFS Research Roadmap Priorities NINDS is seeking your input on the ME/CFS Research Roadmap priorities. The goal is to collect broad feedback from the public on the research priorities being developed by the Myalgic...

December 6 press release from the NIH: Home Test to Treat program extends nationwide Program now offers testing, telehealth and treatment for COVID-19 and flu. https://www.nih.gov/news-events/news-releases/home-test-treat-program-extends-nationwide (some line breaks added, bolding mine)...

Vote to get money for Simmaron Research foundation (free and easy) Hi everyone, this came up on my Facebook. I don't know how long it is going to go on for. It involves daily voting, but any votes would be good. It is very easy. You just click on the link below, then after a few seconds a box...

A thread for news from the US that isn't covered by other threads such as (in no particular order) USA: News from the Workwell Foundation. USA: News from Solve ME USA: NIH National Institutes of Health Overview of NIH grants for ME/CFS research USA: News from #MEAction USA: The RECOVER...

NIH awards will fund Post-Treatment Lyme Disease Syndrome research | National Institutes of Health (NIH)

"Our foundation supports nationally and internationally recognized research projects, non-profit organizations to support those affected and charity projects to combat diseases such as myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and related diseases. "We can build on a network...

Neurology, Neuroimmunology & Neuroinflammation Deep Phenotyping of Neurologic Postacute Sequelae of SARS-CoV-2 Infection Abstract Background and Objectives SARS-CoV-2 infection has been associated with a syndrome of long-term neurologic sequelae that is poorly characterized. We aimed to...

Not sure if this was already posted. https://www.nih.gov/news-events/news-releases/va-nih-launch-study-gulf-war-illness

https://www.statnews.com/2023/04/20/long-covid-nih-billion/

NIH = National Institute of Neurological Disorders and Stroke and the website is described as "An official website of the United States Government" Title : Functional Neurological Disorder Link : https://www.ninds.nih.gov/health-information/disorders/functional-neurologic-disorder I'm only...

WebMD: Researchers Hunt Biomarkers – Potential Keys to Long COVID https://www.webmd.com/covid/news/20230106/researchers-hunt-long-covid-biomarkers Brief mention of ME/CFS:

Hey all, Just sharing an outreach opportunity to the newly formed Advanced Research Projects Agency for Health (ARPA-H - https://arpa-h.gov/) that will get off the ground in 2023 in the US. Thus far, it seems that ARPA-H is genuinely interested to hear from the American people (...

There is a petition—looks like all nationalities can sign. Treatments include CBT, exercise.