letter

nb also a letter from Charles Shepherd. https://pmc.ncbi.nlm.nih.gov/articles/PMC1882994/ eta: I think it was in response to this Follow up of patients presenting with fatigue to an infectious diseases clinic, 1992, Sharpe et al. | Science for ME

Caroline Kamau-Mitchell, senior lecturer https://www.bmj.com/content/374/bmj.n1995

https://www.acpjournals.org/do/10.5555/comment1538/full/ Name: Peter C. Rowe Email: XXXXXXXXXXXXXXXX Affiliation: Johns Hopkins University Pubdate: 12 April 2019 Title: Response to Michael Sharpe Comment: To The Editor:

From an email from Solve. Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments. Ten other ME/CFS organizations joined...

I have spent some time (probably far too much for my health) drafting and redrafting this letter with some helpful suggestions from members on a members only thread: https://www.s4me.info/threads/draft-letter-to-the-authors-of-the-nih-pem-study-2020.17052/ The letter refers to a paper discussed...

https://www.bmj.com/content/370/bmj.m3565 It's basically a manifesto for care and research.

Times Letters: Research into Chronic Fatigue Syndrome https://www.thetimes.co.uk/edition/comment/times-letters-research-into-chronic-fatigue-syndrome-w3scg6f9l

I’m writing a letter to local doctors in the hopes some can be convinced to complete this new medscape CME on ME/CFS diagnosis and treatment (which I chose because of the positive feedback it received in this thread.) I’m trying to improve my chances of success by making it feel personal—to that...

Earlier this week we sent this letter to Dr Karla Soares-Weiser, the new editor of Cochrane, who in this article, https://www.cochrane.org/news/publication-cochrane-review-exercise-therapy-chronic-fatigue-syndrome, has promised Dear Dr Soares-Weiser, re: Publication of Cochrane Review...

http://www.virology.ws/2019/09/16/trial-by-error-my-letter-to-professor-chalder-about-the-prince-trial/

Trial By Error: Time to Retract the LP Study; Letter to Archives of Disease in Childhood http://www.virology.ws/2019/06/03/trial-by-error-time-to-retract-the-lp-study-letter-to-archives-of-disease-in-childhood/ 3 June 2019 By David Tuller, DrPH Let me say this directly: It is way past time...

Trial By Error: My Letter about MUS to the British Journal of General Practice http://www.virology.ws/2019/05/06/trial-by-error-my-letter-about-mus-to-the-british-journal-of-general-practice/ 6 May 2019 By David Tuller, DrPH Reuters reporter Kate Kelland informed me in January that my habit...

http://www.virology.ws/2019/04/29/trial-by-error-my-latest-letter-to-bristols-legal-department/

https://www.meaction.net/2019/03/23/our-community-will-not-suffer-stigma-and-distortion/

David Tuller: Trial By Error: My Letter to Kate Kelland http://www.virology.ws/2019/03/18/trial-by-error-my-letter-to-kate-kelland/

Download link, https://25megroup.org/download/2302/?v=2840

This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. Sorry I forgot to post it here earlier

Following discussion on this thread, I contacted Action for ME to express concern about the document and ask for the research evidence on which the advice in the document was based. The staff member who replied asked me for more details of my concerns and seemed bemused by the idea that there...

rest of letter here: https://themighty.com/2018/12/thank-you-friend-of-person-with-illness-holidays/

This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. We are posting here so that it and the responses are available publicly. To: Dr Peter Barry Chair, NICE ME/CFS Guideline committee cc...