letter

Appointees will not be changed...so surprising! I sent my email using ME Action tool so assume a generic reply going to all. They can ignore us with no consequences whatsoever. Email below Thank you for your recent email to the National Institute for Health and Care Excellence (NICE), in which...

http://www.virology.ws/2018/10/19/my-letter-to-organizer-of-4th-columbia-psychosomatics-conference/

Here is a copy of my first draft. Feel free to be as critical as you wish: I really do not get upset! I take it as a compliment that you are sufficiently interested to sort me out. It is a personal rant. It might be better to create a more neutral one in parallel: let me rant away, and let you...

Professor Edwards' Letter to MRC's Fiona Watt Professor Edwards signed the open letter to The Lancet. He originally wrote his own letter to Professor Watt in confidence. Since she has now strongly endorsed PACE in her letter to The Times, he has given me permission to post what he wrote.

Published this morning: CHRONIC FATIGUE Sir, Further to your report “Call for review of ‘flawed’ ME research”(Aug 21), as funders of the Pace trial we reject the view that the scientific evidence provided by the trial for using cognitive behavioural theory and managed exercise in the...

Short article in online version of The Times today reporting on the letter to the Lancet. Written by Tom Whipple- that the Lancet declined to comment.

The BPS Brigades Score Another Own Goal Not long ago, Sir Simon scored an own goal by enticing a childhood buddy to enter the PACE debate. That buddy, attorney and social commentator Mike Godwin, soon pronounced the trial—which Sir Simon had called “a thing of beauty”–to be “so profoundly...

Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP http://www.margaretwilliams.me/2018/hooper-to-phillipson.pdf 16th July 2018 Dear Bridget, Many thanks for forwarding the letter of 14th June 2018 (PO-1133220) from Lord O’Shaughnessy, Parliamentary Under Secretary of...

The NIH responds to #MEAction, nexts steps Following the global day of action on May 12, 2018, #MEAction gathered photos and petition signatures from people all over the world and mailed it to Director of the NIH, Francis Collins. Along with your beautiful photos and anecdotes, we delivered a...

[Apologies if this has been posted before] Dear Paediatrician, We are parents of children with ME. We are writing to as many Paediatricians as we can because many of you look after children with ME. ME is the single greatest cause of long term school absences in children, and in this...

My Letter to MP Monaghan About BMJ Studies This morning, I sent an e-mail about BMJ to Scottish National Party MP Carol Monaghan. MP Monaghan, a science teacher by profession, has a keen interest in research accountability as well as in the plight of ME/CFS patients. In February, she organized...

Pleased to report that The Times has published my letter about the lack of investment in biomedical ME research: https://www.thetimes.co.uk/edition/comment/brexit-s-self-inflicted-wound-on-uk-s-future-vksr9j2jw It appears in Wednesday’s edition. The omission of “most” is their error.

Forward ME Letter to The Times: Patients with ME/CFS ‘are not simply “deconditioned” as claimed by many psychiatrists’ | 23 March 2018...

A coalition of parents and other carers to children and adolescents with ME has written a letter to the Norwegian Directorate of Health about the national centre of excellence for CFS/ME. The centre has a biopsychosocial approach to ME, and the parents give several examples of how this view is...

Trial By Error: A Letter to BMJ Open 19 February 2018 By David Tuller, DrPH http://www.virology.ws/2018/02/19/trial-by-error-a-letter-to-bmj-open/

My letter. The only edit (besides removal of personal info) is the KP web link I included in my email went stale, so I updated it below: CDC response (emphasis mine): As instructed by the CDC, I've written to California State Department of Health. When I get a reply, I'll post it. I used...

In short they are asking for GET and CBT to be removed as treatments before the review concludes in 2020. Core of first letter Core of Mark Baker's reply And core of IiME response Link leads to, at time of posting, all three letters - http://www.investinme.org/IIMER-Newslet-1801-01.shtml

I just came upon this, and thought it was pretty funny how badly it has aged. The first two sentences are hilarious imo: the "obvious paradox" and then the "should be proof enough". He's showing off about the fact that he doesn't know how to think. Should be proof enough?! Acknowledge good...

I did not put this on public record when I sent it a year ago. I have had no reply or even an acknowledgement. I sent it by snail mail marked Private and Confidential. Now that we have a forum for keeping a record of open letters, I've decided to share it here. 29th November...

I submitted a letter to The Lancet in response to the GETSET publication back in July. @Tom Kindlon provided invaluable support. I heard today it has been rejected, so I see no reason to not show it here. See attached file. The submission limit was 250 words, and I used them all. The letter is...