2021

  1. Hoopoe

    Neuropsychological and neurophysiological correlates of fatigue in post-acute pts with neurological manifestations of COVID-19 (2021) Ortelli et al

    • Neuropsychological and neurophysiological features of fatigue were studied in post-COVID-19 patients. • Apathy, deficits in executive functions and reduction in global cognition were found. • Abnormal shortening of cortical silent period and lack of MEP depression were demonstrated after a...
    • Hoopoe
    • Thread
    • 2021 cognitive dysfunction covid-19 fatigue paper post covid-19 syndrome
    • Replies: 1
    • Forum: Long Covid research
  2. Andy

    UK: Public survey to gather views and experiences for the National Strategy of Disabled People, closes 23rd April 2021

    https://www.gov.uk/government/news/citizen-space-survey-national-strategy-for-disabled-people AfME article on this, https://www.actionforme.org.uk/news/national-strategy-for-disabled-people-have-your-say/
  3. John Mac

    Modulatory effects of cognitive exertion on regional functional connectivity of the salience network in women with ME/CFS: A pilot study, 2021, Manca

    https://www.jns-journal.com/article/S0022-510X(21)00019-8/fulltext
    • John Mac
    • Thread
    • 2021 brain brain imaging cognitive effort fmri functional connectivity insula pain pem post-exertional malaise salience network
    • Replies: 20
    • Forum: ME/CFS research
  4. Andy

    Developing services for long COVID: lessons from a study of wounded healers, Ladds, Greenhalgh et al, 2021

    Open access, https://www.rcpjournals.org/content/clinmedicine/21/1/59
    • Andy
    • Thread
    • 2021 long covid paper patient experience trisha greenhalgh
    • Replies: 11
    • Forum: Long Covid research
  5. Esther12

    Medically unexplained symptoms: assessment and management (2021) Mujtaba Husain and Trudie Chalder

    https://www.rcpjournals.org/content/clinmedicine/21/1/13 This is barely worth posting, but I read it. It's so basic it felt like it was written for children - is that because it's in a journal for doctors rather than researchers? So many strong assertions ("The first and most important step is...
  6. Caroline Struthers

    HealthWatchUK: It is not only drugs and devices that can harm, 2021, Struthers

    Split from Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian Hi all Got a version of the post about poor research into behavioural and psychological treatments in the HealthWatchUK newsletter. It mentions PACE and...
  7. John Mac

    Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Jason et al

    https://www.mdpi.com/2227-9032/9/2/106/htm
    • John Mac
    • Thread
    • 2021 25% bedbound homebound leonard jason me/cfs paper severity
    • Replies: 19
    • Forum: ME/CFS research
  8. Kalliope

    The evidence for CBT in any condition, population or context... A meta-review... and panoramic meta-analysis, 2021, Fordham et al.

    The evidence for cognitive behavioural therapy in any condition, population or context: a meta-review of systematic review and panoramic meta-analysis by Fordham et al. Abstract The majority of psychological treatment research is dedicated to investigating the effectiveness of cognitive...
  9. Sly Saint

    Special Issue: Recent Advances in Faecal Microbiota Transplantation, 2021, Review article and call for submissions.

    Fecal Microbiota Transplantation: A New Therapeutic Attempt from the Gut to the Brain Hao-Ming Xu,1 Hong-Li Huang,1 You-Lian Zhou,1 Hai-Lan Zhao,1 Jing Xu,1 Di-Wen Shou,1 Yan-Di Liu,1 Yong-Jian Zhou,1 and Yu-Qiang Nie https://www.hindawi.com/journals/grp/2021/6699268/
  10. Andy

    ME Awareness Day / Week / Month, May 2021

    A thread for article, events and anything else related to ME Awareness Day/Week/Month 2021.
  11. Andy

    Exercise modifies glutamate and other metabolic biomarkers in cerebrospinal fluid from Gulf War Illness and [ME/CFS], Baranuik et al, 2021

    Open access, https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0244116
    • Andy
    • Thread
    • 2021 baraniuk carnitine exercise glutamate gulf war illness paper
    • Replies: 6
    • Forum: ME/CFS research
  12. InfiniteRubix

    Local immune response to food antigens drives meal-induced abdominal pain, 2021, Aguilera-Lizarraga et al

    Local immune response to food antigens drives meal-induced abdominal pain https://www.nature.com/articles/s41586-020-03118-2
  13. John Mac

    Salivary DNA loads for human herpes viruses 6 and 7 are correlated with disease phenotype in ME/CFS, Lee, Lacerda, Nacul, Cliff et al, preprint 2021

    Full title: Salivary DNA loads for human herpes viruses 6 and 7 are correlated with disease phenotype in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome https://www.medrxiv.org/content/10.1101/2021.01.06.20248486v1
    • John Mac
    • Thread
    • 2021 cliff ebv herpes virus hhv-6b hhv-7 lacerda lee me/cfs nacul paper viral reactivations
    • Replies: 15
    • Forum: ME/CFS research news
  14. Mij

    Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic... in hospitalized patients with EDS: a case... study, 2021, Brooks et al.

    Full title: Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic manifestations in hospitalized patients with Ehlers-Danlos syndrome: a case-control study https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/keaa926/6067343
  15. John Mac

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Major Impact on Lives of Both Patients and Family Members, Brittain et al, 2021

    https://www.mdpi.com/1010-660X/57/1/43/htm
  16. Sly Saint

    Continuous pain report demonstrates time delay of pain ratings in Fibromyalgia, Kharko et al, 2021

    preprint https://www.medrxiv.org/content/10.1101/2020.12.28.20248780v1
  17. John Mac

    “it’s a medical condition … you need to support as much as possible”: a qualitative analysis of teachers’ experiences of CFS/ME, Brigden et al, 2021

    Full title: “it’s a medical condition … you need to support as much as possible”: a qualitative analysis of teachers’ experiences of chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME) https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-020-02461-7 ETA link to article
  18. Sly Saint

    CADENCE study: to assess whether raised CRP is associated with probable depression in children and young people with CFS/ME, Loades, Crawley - ongoing

    This study aims to assess whether raised CRP (a blood test used as a marker of inflammation) is associated with probable depression in children and young people with CFS/ME. CACH team: Sandy Royston, Maria Loades, Esther Crawley...
  19. Hoopoe

    Dr Byron Hyde - Canada

    Dr Byron Hyde surrenders his medical license https://doctors.cpso.on.ca/DoctorDetails/Byron-Marshall-Hyde/0016579-21364
    • Hoopoe
    • Thread
    • 2021 book byron hyde me/cfs me/cfs alert nightingale research foundation polio video
    • Replies: 124
    • Forum: Other clinics and doctors
  20. Sly Saint

    ExFACTR Study: Exploring the Feasibility of ACT for Children and young people with CFS/ME ... in prep. for an RCT. Crawley et al. Recruiting Jan 2021

    https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/exfactr-study/ ACT, 'new' replacement for CBT. A favourite of Trudie Chalder. @dave30th
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