Understanding the economic impact of myalgic encephalomyelitis/chronic fatigue syndrome in Ireland: a qualitative study, 2020, Cullinan, Kindlon et al

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Andy, Dec 7, 2020.

  1. Andy

    Andy Committee Member

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    @Tom Kindlon is one of the authors.
    Open access, https://hrbopenresearch.org/articles/3-88/v1
     
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  2. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  3. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  4. NelliePledge

    NelliePledge Moderator Staff Member

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  5. mat

    mat Senior Member (Voting Rights)

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    I imagine that there is also a great number of people with mild CFS who never get diagnosed or who aren't aware of it. The cases who can manage it somehow and try to compensate for it by lifestyle change simply because they believe that they aren't physically fit enough anymore. They would do sports and stop because it makes things worse, then they would try other lifestyle changes like a diet change and this shows some improvement, so they won't ever visit a doctor. Overall, these unreported cases would still reduce productivity in their jobs. Not enough to stand out for an individual (unless you work for a company like Amazon which takes protocol of very single step), but enough to become significant for the productivity of a country that is affected by COVID-19, for example.
     
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  6. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  7. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  8. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  9. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  10. Viola

    Viola Senior Member (Voting Rights)

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    Hi Everyone, I am Orla, one of the co-authors of the study. Might see some of you at our talk.
     
  11. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Hi @Orla, excllent paper, good to see you on here.
     
  12. Viola

    Viola Senior Member (Voting Rights)

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    Thanks MEMarge. I've been absent from ME forums for a while but hope to get back into it.
     
  13. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    The Economic Impact of ME.PNG

    https://www.youtube.com/watch?v=PCqp6a62Lcw



     
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  14. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Our new blog post on the HRB Open Research* website:

    "It’s time to start listening to people with Myalgic Encephalomyelitis"

    https://blog.hrbopenresearch.org/20...erstanding-the-healthcare-barriers-and-costs/

    Headings:

    - What is ME?

    - Controversy around ME

    - Our PPI research partnership

    - Healthcare barriers & costs

    - Implications for long-term effects of COVID-19

    *The open access journal of the Health Research Board
     
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  15. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    An excellent post, thank you to all involved.
     
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