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Understanding the economic impact of myalgic encephalomyelitis/chronic fatigue syndrome in Ireland: a qualitative study, 2020, Cullinan, Kindlon et al

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Andy, Dec 7, 2020.

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  1. Andy

    Andy Committee Member

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    @Tom Kindlon is one of the authors.
    Open access, https://hrbopenresearch.org/articles/3-88/v1
     
    Andy, Dec 7, 2020
    #1
    Skycloud, Evergreen, Kitty and 21 others like this.
  2. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Dec 7, 2020
    #2
    Kitty, Simbindi, MEMarge and 13 others like this.
  3. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Dec 7, 2020
    #3
    Skycloud, Kitty, Simbindi and 15 others like this.
  4. NelliePledge

    NelliePledge Moderator Staff Member

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    NelliePledge, Dec 7, 2020
    #4
    Skycloud, Kitty, Simbindi and 12 others like this.
  5. mat

    mat Senior Member (Voting Rights)

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    I imagine that there is also a great number of people with mild CFS who never get diagnosed or who aren't aware of it. The cases who can manage it somehow and try to compensate for it by lifestyle change simply because they believe that they aren't physically fit enough anymore. They would do sports and stop because it makes things worse, then they would try other lifestyle changes like a diet change and this shows some improvement, so they won't ever visit a doctor. Overall, these unreported cases would still reduce productivity in their jobs. Not enough to stand out for an individual (unless you work for a company like Amazon which takes protocol of very single step), but enough to become significant for the productivity of a country that is affected by COVID-19, for example.
     
    mat, Dec 7, 2020
    #5
    oldtimer, Kitty, MEMarge and 7 others like this.
  6. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, May 7, 2021
    #6
    oldtimer, Evergreen, Barry and 12 others like this.
  7. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, May 7, 2021
    #7
    Barry, Kitty, Simbindi and 6 others like this.
  8. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, May 7, 2021
    #8
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  9. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    May 25 webinar final.png
     
    Tom Kindlon, May 14, 2021
    #9
    Evergreen, shak8, Barry and 11 others like this.
  10. Viola

    Viola Senior Member (Voting Rights)

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    Hi Everyone, I am Orla, one of the co-authors of the study. Might see some of you at our talk.
     
    Viola, May 17, 2021
    #10
    Evergreen, OverTheHills, Invisible Woman and 17 others like this.
  11. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Hi @Orla, excllent paper, good to see you on here.
     
    MEMarge, May 17, 2021
    #11
    Invisible Woman, Viola, Peter Trewhitt and 3 others like this.
  12. Viola

    Viola Senior Member (Voting Rights)

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    Location:
    Ireland
    Thanks MEMarge. I've been absent from ME forums for a while but hope to get back into it.
     
    Viola, May 17, 2021
    #12
    Invisible Woman, Simbindi, Barry and 1 other person like this.
  13. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    The Economic Impact of ME.PNG

    https://www.youtube.com/watch?v=PCqp6a62Lcw



     
    Tom Kindlon, May 26, 2021
    #13
    Simbindi, Mithriel, Viola and 4 others like this.
  14. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Our new blog post on the HRB Open Research* website:

    "It’s time to start listening to people with Myalgic Encephalomyelitis"

    https://blog.hrbopenresearch.org/20...erstanding-the-healthcare-barriers-and-costs/

    Headings:

    - What is ME?

    - Controversy around ME

    - Our PPI research partnership

    - Healthcare barriers & costs

    - Implications for long-term effects of COVID-19

    *The open access journal of the Health Research Board
     
    Tom Kindlon, Aug 20, 2021
    #14
    Simbindi, Mithriel, oldtimer and 3 others like this.
  15. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    An excellent post, thank you to all involved.
     
    Peter Trewhitt, Aug 20, 2021
    #15
    Simbindi, Mithriel and Tom Kindlon like this.

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