2020

Abstract: Background Postural orthostatic tachycardia syndrome (POTS) is an autonomic nervous system disorder causing an abnormal cardiovascular response to upright posture. It affects around 0.2% of the population, most commonly women aged 13 to 50 years. POTS can be debilitating...

Solve ME/CFS tweeted this today:https://twitter.com/PlzSolveCFS/status/1319407326621827078 I wanted a bit more info so I searched their website and found this (scroll down past the invisible disabilities week info)...

Full text: https://doi.org/10.1371/journal.pone.0241103241103 Study of 176 Multiple Sclerosis (MS) patients in Saudi Arabia. Spacing mine.

https://www.kcl.ac.uk/news/study-identifies-those-most-risk-long-covid eta: "The findings are due to be published as a pre-print on Medrxiv and have not yet been peer-reviewed."

https://www.jem-journal.com/article/S0736-4679(20)30725-3/abstract

Full title: The Lonely, Isolating, and Alienating Implications of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2227-9032/8/4/413

https://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(20)30414-4/fulltext sci-hub.se/10.1016/S2215-0366(20)30414-4 ("develop specific standards about the type and quantity of evidence required" imo quality needs to be in there; eg getting non-psych hps to review the evidence)

https://www.bacme.info/sites/bacme.info/files/BACME%20Position%20Paper%20on%20the%20Management%20of%20ME-CFS%20October%202020.pdf Available directly from their home page, https://www.bacme.info/ My guess (I have no insider knowledge) is that this gives a strong indication of how the revised...

https://www.cambridge.org/core/journals/zygote/article/oxidative-stress-caused-by-a-dysregulated-wntcatenin-signalling-pathway-is-involved-in-abnormal-placenta-formation-in-pregnant-mice-with-chronic-fatigue-syndrome/732B77AB5F851B50AC2886C97DE5D7F2 Oxidative stress caused by a dysregulated...

https://www.mdpi.com/2227-9032/8/4/406

Free full text: https://bjgpopen.org/content/early/2020/10/12/bjgpopen20X101143

https://journals.sagepub.com/doi/full/10.1177/1178646920936279

https://youtu.be/FqoIf11mY8Q https://youtu.be/NWLu1IfYYH0 ______________________ See also this thread on another Workwell team talk at about the same time: Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm

Paywall, https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(20)32115-2/fulltext Sci hub, https://sci-hub.se/10.1016/S0140-6736(20)32115-2

ABC - Finding hope for those living with Chronic Fatigue Syndrome - interview with Sue Collins, dr. Heidi Nicholl and prof. Ken Walder Imagine going for a short walk one day and then the next morning you can't even get out of bed. That's what life is like for some people living with what's...

https://jaxmecfs.com/2020/10/14/webinar-on-scientific-research-on-me-cfs-in-the-age-of-covid-19/

A few years ago, my friend and colleague Steven Lubet, a law professor and scholar at Northwestern University, wrote the following account of the start of his struggle with what was then largely called chronic fatigue syndrome. While his story does not directly relate to current events, Steve’s...

Preprint paper here: Persistent symptoms after Covid-19: qualitative study of 114 long Covid patients and draft quality criteria for services Emma Ladds, Alexander Rushforth, Sietse Wieringa, Sharon Taylor, Clare Rayner, Laiba Husain, Trisha Greenhalgh This article is a preprint and has not...

Paywall, https://www.sciencedirect.com/science/article/abs/pii/S0399077X20307265 Sci hub, https://sci-hub.se/10.1016/j.medmal.2020.09.026

Open access, https://www.frontiersin.org/articles/10.3389/fneur.2020.00969/full