2020

  1. Andy

    USA: ME/CFS Collaborative Research Centers launch new Community Advisory Committee

    From the NIH MECFS Information List emailing list To foster communication and engagement with ME/CFS stakeholders, the ME/CFS Collaborative Research Centers have launched a new Community Advisory Committee (CAC), which will be managed by the Center for Solutions for ME/CFS at Columbia...
    • Andy
    • Thread
    • 2020 center for solutions columbia university community advisory committee me/cfs usa
    • Replies: 2
    • Forum: General ME/CFS news
  2. John Mac

    Re-analysis of genetic risks for Chronic Fatigue Syndrome from 23andMe data finds few remain, Bedford et al, 2020 [Preprint]

    https://www.medrxiv.org/content/10.1101/2020.10.27.20220939v1 Threads on genetic risks listed here: https://www.s4me.info/threads/evidence-for-a-genetic-component-in-me-cfs-discussion-thread.16117/#post-277072
    • John Mac
    • Thread
    • 2020 23andme bastian greshake tzovaras bedford genetics me/cfs paper snp
    • Replies: 9
    • Forum: ME/CFS research
  3. Andy

    Effect of disease duration in a randomized Phase III trial of rintatolimod, an immune modulator for [ME/CFS], 2020, Mitchell et al

    Rintatolimod = Ampligen Open access, https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0240403
    • Andy
    • Thread
    • 2020 ampligen me/cfs paper rintatolimod
    • Replies: 16
    • Forum: ME/CFS research
  4. Andy

    Impact of hypnotic safety on disorders of gut-brain interaction: A pilot study, 2020, Damis and Hamilton

    Paywall, https://www.tandfonline.com/doi/full/10.1080/00029157.2020.1794434 Sci hub, https://sci-hub.se/10.1080/00029157.2020.1794434
  5. Sly Saint

    NZ: The 2020 Brain Health Research Centre Lecture - Professor Warren Tate - 23 November 2020

    Split from the NZ News thread The 2020 Brain Health Research Centre Lecture Emeritus Professor Warren Tate will present the 2020 BHRC Lecture, entitled "Understanding the biological basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and its sudden increase in public profile...
  6. Andy

    The negative impact of the psychiatric model of chronic fatigue syndrome on doctors’ understanding and management of the illness, 2020, Geraghty

    Paywall, https://www.tandfonline.com/doi/full/10.1080/21641846.2020.1834295 Sci hub, https://sci-hub.se/10.1080/21641846.2020.1834295
  7. Sly Saint

    Systematic Review of Primary Outcome Measurements for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in RCTs: 2020, Do-Young Kim et al

    Systematic Review of Primary Outcome Measurements for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in Randomized Controlled Trials https://www.mdpi.com/2077-0383/9/11/3463 eta:
    • Sly Saint
    • Thread
    • 2020 cfq cis do-young kim korea me/cfs measurement paper review sf-36
    • Replies: 3
    • Forum: ME/CFS research
  8. Sly Saint

    Therapists’ perceptions of barriers and facilitators to uptake and engagement with therapy in long‐term conditions - Oct 2020 Moss-Morris et al

    https://bpspsychub.onlinelibrary.wiley.com/doi/10.1111/bjhp.12475 (only mentions 'chronic fatigue' but also LTC (long term conditions) and MUS) eta: All authors declare no conflict of interest.
  9. John Mac

    Do treatments for paediatric chronic fatigue syndrome improve pain? a systematic review, Ascough et al, 2020 G535(P)

    https://adc.bmj.com/content/105/Suppl_1/A189.2
  10. Andy

    Assessment of Emergency Department and Inpatient Use and Costs in Adult and Pediatric Functional Neurological Disorders, 2020, Lungu et al

    Paywall, https://jamanetwork.com/journals/jamaneurology/article-abstract/2771918 Sci hub, https://sci-hub.se/10.0000/jamanetwork.com/jamaneurology/article-abstract/2771918
  11. John Mac

    Prediction of Discontinuation of Structured Exercise Programme in Chronic Fatigue Syndrome Patients, Kujawski, Newton, Hodges et al, 2020

    https://www.mdpi.com/2077-0383/9/11/3436
    • John Mac
    • Thread
    • 2020 autonomic nervous system brain fog chronotropic incompetence exercise hodges julia newton lynette hodges maximal heart rate paper pawel zalewski zalewski
    • Replies: 16
    • Forum: ME/CFS research
  12. John Mac

    Substrate utilisation of cultured skeletal muscle cells in patients with CFS, Tomas et al, 2020

    https://www.nature.com/articles/s41598-020-75406-w
    • John Mac
    • Thread
    • 2020 cara tomas cultured glucose julia newton muscle cells oxidation paper skeletal muscle
    • Replies: 51
    • Forum: ME/CFS research
  13. m.patriarca

    Exercise Guidelines for Postural Tachycardia Syndrome, De Wandele, Low, Rowe, Simmonds, 2020

    Preview: https://link.springer.com/chapter/10.1007/978-3-030-54165-1_26 It is a chapter from an anthology. CFS is also mentioned in other chapters. I have quoted this chapter because of the recommendation for exercises. (Please forgive me, if something like this does not belong here, this is my...
  14. Andy

    Webinar: COVID 19: Known Unknowns (hosted by Dr Fiona Godlee & Professor George Davey Smith), 20th Nov 2020

    Register at https://zoom.us/webinar/register/WN_CBJIXWzwSp-EyWLyQ0mIow https://twitter.com/BJSM_BMJ/status/1320029382602182657
  15. Sly Saint

    Reliability and Validity of the Modified Korean Version of the Chalder Fatigue Scale (mKCFQ11) 2020, Yo-Chan Ahn et al

    https://www.mdpi.com/2227-9032/8/4/427 eta: (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected)
  16. Andy

    Brain astrocytes & microglia express functional MR1 molecules that present microbial antigens to ... (MAIT) cells, 2020, Priya et al

    Full title: Brain astrocytes and microglia express functional MR1 molecules that present microbial antigens to mucosal-associated invariant T (MAIT) cells Paywall, https://www.jni-journal.com/article/S0165-5728(20)30689-5/fulltext Sci hub, https://sci-hub.se/10.1016/j.jneuroim.2020.577428
  17. Andy

    Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: A qualitative study, 2020, Bridgen, Crawley et al

    Open access, https://journals.sagepub.com/doi/10.1177/1359104520964528
  18. Dolphin

    Impact of Q-fever fatigue syndrome on patients’ work status, 2020, Reukers et al

    Free full text: https://academic.oup.com/occmed/advance-article/doi/10.1093/occmed/kqaa166/5929827 Impact of Q-fever fatigue syndrome on patients’ work status D F M Reukers, J A F van Loenhout, I Roof, T F Senden, S P Keijmel, C P Bleeker-Rovers, C H M van Jaarsveld, J L A Hautvast, K van der...
  19. Andy

    Biomarkers in functional movement disorders: a systematic review, 2020, Edwards et al

    Paywall, https://jnnp.bmj.com/content/early/2020/10/21/jnnp-2020-323141 Sci hub, https://sci-hub.se/10.1136/jnnp-2020-323141
  20. Andy

    Recognising and explaining functional neurological disorder, 2020, Stone et al

    Paywall, https://www.bmj.com/content/371/bmj.m3745 Sci hub, https://sci-hub.se/10.1136/bmj.m3745
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