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Petition for increased research funding in the UK

Discussion in 'Petitions' started by Adrian, Nov 2, 2017.

  1. Adrian

    Adrian Senior Member (Voting Rights)

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    I noticed this on twitter (UK only)

    https://petition.parliament.uk/petitions/203140
     
    Jo Best, Jan, MeSci and 5 others like this.
  2. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    Signed

    1431 signatures so far
     
    MeSci and Andy like this.
  3. Moosie

    Moosie Established Member

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    Signed
     
    MeSci and Andy like this.
  4. Wonko

    Wonko Senior Member (Voting Rights)

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    signed 1436

    and, to me, it is about the next generation of suffers, it being a tad late for some of us ;)
     
    MeSci, Jan, Andy and 1 other person like this.
  5. Esther12

    Esther12 Senior Member (Voting Rights)

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    tbh, I'm wary of signing anything which could lead to more funding for Crawley.

    This is such a ridiculous situation... I should be able to sign that petition, but I just don't trust the UK medical research Establishment at all.
     
    Moosie, Skycloud, Jo Best and 6 others like this.
  6. markiemark

    markiemark Senior Member (Voting Rights)

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    signed! :)

    edit: I definitely understand @Esther12's concerns though. More funding is not the complete picture. Research into where we prioritise research and research standards need to be addressed too.
     
    Moosie, Binkie4, Jo Best and 6 others like this.
  7. MeSci

    MeSci Senior Member (Voting Rights)

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  8. Graham

    Graham Senior Member (Voting Rights)

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    I agree about us not needing more funding for the psychs, but, to be fair, when MPs did get involved with an Early Day Motion back in 2010 it was to push the MRC into funding biomedical research. OK, it was the third attempt by parliament to get things moving, and the MRC only responded in 2011 as a one-off, but I do not think that MPs are happy that money is being spent on CBT etc.

    The other point is that the spending on ME is utterly pitiful. Squabbling over the relative crumbs doled out to the psychs instead of demanding equivalent funding to comparative medical conditions just wastes our energies.
     
  9. Jo Best

    Jo Best Established Member (Voting Rights)

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    Interestingly, the petition was created by Sharon Anne Tiday, mother of 10 year old Shannon Tiday, whose instant response on video to the media hype about Esther Crawley's SMILE trial of the Lightning Process was itself reported in local/regional media.

    So although I completely agree with your comment, this time the petition comes with that bit of background publicity attached.

    The journalist Geoff Baker, had previously written this article inspired by Shannon's video:
    https://www.indyonline.co.uk/indy-column/please-take-vile-illness-seriously/

    Here's the link to her video for ref.



    Sharon Tiday is linking the petition with a campaign she calls 'Listen to ME'.

    She had already been proactive in raising disability awareness and this is her campaign profile on Twitter..

     
    MeSci, Graham, Esther12 and 1 other person like this.

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