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  1. Graham
    Post

    The ‘medically unexplained symptoms’ syndrome concept and the cognitive-behavioural treatment model, 2021, Scott, Crawford, Geraghty and Marks

    Actually the current NICE guidelines make it clear that there is no evidence to support the use of CBT or GET for those with severe ME, and that...
    Post by: Graham, Sep 25, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Graham
    Post

    A Guideline for Reporting Mediation Analyses of Randomized Trials and Observational Studies, The AGReMA Statement, 2021, Lee et al

    Well I tried to read it, but it isn't in my language of choice.
    Post by: Graham, Sep 25, 2021 in forum: Research methodology news and research
  3. Graham
    Thread

    Recovering from severe acute illness

    As you can guess, I have been thinking a lot about illnesses lately. Going back to my twenties, I went down with chicken pox, which was really...
    Thread by: Graham, Sep 22, 2021, 3 replies, in forum: General and other signs and symptoms
  4. Graham
    Post

    BMJ Opinion: To speed progress in treating chronic conditions, engage patients and caregivers as research partners, 2021, Lubell

    I think some carers can be a more reliable source for information than patients: that is certainly true in my household. My wife spots when I am...
    Post by: Graham, Sep 21, 2021 in forum: General ME/CFS news
  5. Graham
    Post

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    I was involved for a while working on a website for a charity for the deaf, and we tried to use photos of actual members. They did give an air of...
    Post by: Graham, Sep 18, 2021 in forum: ME/CFS research
  6. Graham
    Post

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    I think the interesting part is my clarity of thought. This was when I was "trapped" in my hospital room (covid restrictions) and when my...
    Post by: Graham, Sep 18, 2021 in forum: Drug and supplement treatments
  7. Graham
    Post

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    I remember a conversation I had way back with AfME about their use of stock photos, and the artificial image that was portrayed. Their argument,...
    Post by: Graham, Sep 18, 2021 in forum: ME/CFS research
  8. Graham
    Post

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    I've been on a low dose (10mg) of prednisolone for a long time to stave off bad head pains. Strangely, after my recent bout of covid, in hospital,...
    Post by: Graham, Sep 17, 2021 in forum: Drug and supplement treatments
  9. Graham
    Post

    BMJ editorial: Long covid clinics should be run as research hubs

    I wish they took the same attitude when printing some of the editorials about ME.
    Post by: Graham, Aug 20, 2021 in forum: Long Covid news
  10. Graham
    Post

    Researchers in Sussex launch pioneering study looking into Long Covid

    My brain has been scanned a couple of times, but not for ME. I was told I had some scattering of "white nodules" (I think), and when I said that I...
    Post by: Graham, Aug 20, 2021 in forum: Long Covid news
  11. Graham
    Post

    United Kingdom: Sussex & Kent ME/CFS Society News

    Actually the Sussex and Kent ME/CFS society was running before Colin Barton took over, and I gather there was some unpleasantness. Certainly...
    Post by: Graham, Aug 20, 2021 in forum: News from organisations
  12. Graham
    Post

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    With PACE, the uptake of benefits increased a little. You need to look at the table in the McCrone et al report on the "cost benefits"....
    Post by: Graham, Aug 18, 2021 in forum: General Advocacy Discussions
  13. Graham
    Post

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    One of the key questions to ask any clinician who claims that CBT and GET are successful is to ask about follow-up assessments. Do those patients...
    Post by: Graham, Aug 18, 2021 in forum: General Advocacy Discussions
  14. Graham
    Post

    Articles on NICE guidelines 'pause'

    Liverpool "No formal follow-up due to the limited resources and our remit to cover the North-West Region. Patient can be re-referred and contact...
    Post by: Graham, Aug 18, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  15. Graham
    Post

    Articles on NICE guidelines 'pause'

    Unsurprisingly, when we carried out our Freedom of Information trawl of ME/CFS clinics in England, we found that virtually none of them would have...
    Post by: Graham, Aug 18, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  16. Graham
    Post

    Does the Lightning Process Training Programme Reduce Chronic Fatigue in Adolescents and Young Adult Cancer Survivors? 2021, Fauske, Reme et al

    Thirteen people and relying on questionnaires? Time I carried out a study to show that bald, retired mathematicians are beautiful. Quote "The LP...
    Post by: Graham, Aug 15, 2021 in forum: Other psychosomatic news and research
  17. Graham
    Post

    Long Covid in adults discharged from UK hospitals after Covid-19: A prospective, multicentre cohort study..., 2021, Sigfrid et al

    So, has my covid (in Feb) added to my ME? I'm certainly struggling to get back on to my usual plateau.
    Post by: Graham, Aug 14, 2021 in forum: Long Covid research
  18. Graham
    Post

    The Washington Post: My hope vs. myalgic encephalomyelitis, a chronic neuroimmuno illness

    I ought to add though that I was and am on the mild/moderate side. That makes a massive difference. I don't know how he would have handled it if I...
    Post by: Graham, Aug 9, 2021 in forum: General ME/CFS news
  19. Graham
    Post

    The Washington Post: My hope vs. myalgic encephalomyelitis, a chronic neuroimmuno illness

    I too needed a clear statement that I would not recover in the forseeable future in order to get ill-health retirement. I was diagnosed by Prof...
    Post by: Graham, Aug 9, 2021 in forum: General ME/CFS news
  20. Graham
    Post

    UK: Expiry of Photo Driving Licences

    Every three years when you reach 70!
    Post by: Graham, Aug 9, 2021 in forum: Work, Finances and Disability Insurance
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