Search results

For the early peaks , depending on where you live , it may not be clinics but paediatricians diagnosing . Diagnosis will therefore be dependent on on the criteria they work to . Until recently PEM was not understood well ( arguably at all ) , so general post viral fatigue will be a confounder...

I queried goal setting on Facebook in the PROMS debacle and was effectively told it was an inherent aspect of " treatment" by Sarah Tyson . It seemed so fundamental that she seemed peeved it was questioned . With a rehab model goals seem built in .

wine ...bottles.... ship ...port...

Re funding for long covid clinics in Scotland, with ME/CFS tagged on as a " post infectious illness" I've had feedback from NHS Ayrshire & Arran re their online survey which simply acknowledges a problem - it will be interesting to see what is actually done. The data would be interesting- many...

There's a police investigation underway as Dr Taylor was advised she was on a "hit list" and the social media pile on seems to have been " botted". We had an appointment cancelled on the day of the appointment when this was coming to a head. It's clear that there's been issue with admin/...

it's an excellent article- it elucidates the cumulative effect of " living" that makes PEM so insidious and dangerous; something that is paid too little attention. Too many have been floored by exactly this, and it's something that too few understand. ( and something the likes of BACME fail to...

An assessment 24 /48 hours after exercise would have been valuable.

New post https://open.substack.com/pub/centerleftstack/p/the-debt-came-due?utm_source=share&utm_medium=android&r=1d5w3s

I found this on Instagram. For some reason I can't copy and paste Instagram posts so have screenshotted it and attached . ETA didn't realise the transcript would post so no need to read screenshot

From X I teach the fraudulent PACE trial as how not to conduct research in my research methods course. My students ask how this demonstrated slop got into and stays in a prestigious journal. Maybe someday I’ll have @TheLancet editors in as guest speakers to tell my students themselves.

I thought it was established that being in continual " fight or flight" mode was bad for health.?

And vitamin D plays a role in innate immunity

David J Black.has died . His son has ME/ CFS and now lives in hospital Sadly he died prior to his book being published. "Very sad to hear of the death of David J Black who wrote some very important pieces on #ME. His son is severely affected and now lives in hospital. Black never mentioned...

This seems a rework of info deriving from a project done in Scotland pre COVID. I took part in this to address lack of understanding and the real risk of FII resulting from non attendance . Unless a member of staff has experience of ME/CFS there is not a clue , and a very real risk of becoming...

From @Lucibee on X UPDATE!!! (A version of) the Severe ME module has now been given general access, and is available here: learninghub.nhs.uk/Resource/79376… #MEDeliveryPlan

and not sweating at all

Cells overworking - or cells signaling distress ? There's more than 1 function to ATP .

Vic Harbottle is a paediatric physiotherapist So physios now expert re neurodivergence ....

Yes, she did

I don't know - it may depend on publishing status of some of the presentations. I'm not sure how much ME/CFS Alliance put online. Hopefully some sort of synopsis will be put online, if not by ME/CFS Alliance , then perhaps by one of the charities ( AfME perhaps)