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    13th Invest in ME Research International ME Conference - 1st June 2018

    "The last 50,000 crowns go to Professor and Pediatrician Kristian Sommerfelt, who will investigate how children and adolescents who are diagnosed with ME are diagnosed." https://www.bt.no/direkte/politikk-og-samfunn/pinned/120966
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    13th Invest in ME Research International ME Conference - 1st June 2018

    Article by another parent involved in the IiMER conference events -
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    13th Invest in ME Research International ME Conference - 1st June 2018

    Kristian Sommerfelt sent IiMER a picture drawn by nine year old Emma and that's a timely example of the people running IiMER charity and why they have worked so hard and so consistently every single day over the past thirteen years or so to bring people together to change the barren landscape of...
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    13th Invest in ME Research International ME Conference - 1st June 2018

    It may have been Peter Holger Johnsen (FMT) or Karl Johan Tronstad, both on the agenda here: http://investinme.eu/IIMEC13-13-13-Agenda.shtml It was Kristian Sommerfelt...
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    13th Invest in ME Research International ME Conference - 1st June 2018

    Maybe it's time that we don't leave it at that @Jonathan Edwards given that you chose to comment on this thread? Your claim that your comments are are based on facts are just that - claims. My observation is that you've been played from the moment I told a CMRC member organisation - in good...
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    13th Invest in ME Research International ME Conference - 1st June 2018

    @Jonathan Edwards it's because people take note of what you say that I feel it important to be fair in distinguishing facts from opinions or assumptions. IiMER and other advocates for that matter, are also damned if they do and if they don't. If they speak out or let off steam occasionally...
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    13th Invest in ME Research International ME Conference - 1st June 2018

    It's a pity that you prefer instead to add fuel to the fire by making such comments.
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    13th Invest in ME Research International ME Conference - 1st June 2018

    @Jonathan Edwards you say that a particular student wasn't invited by IiMER to their event "as far as I can see". I'm certain that is not the case. I don't know which groups seem to you "to have not received invitations because of connections to third parties of no fault of their own", but...
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    13th Invest in ME Research International ME Conference - 1st June 2018

    I have a fair idea as I've been following events since 2010 when IiME(R) published their proposal to establish a Centre of Excellence for ME. The comments you quoted here follow from their comments on their link to their webpage for the Centre of Excellence, which gives some context. I also...
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    13th Invest in ME Research International ME Conference - 1st June 2018

    I'm looking forward to the era of individualised medical assessments and treatments, and perhaps an increase in genetic testing may help with differential diagnosis, e.g. after watching the 2017 IiME Conference DVD (IIMEC12) I decided to have a DNA test and unexpectedly found I have two copies...
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    13th Invest in ME Research International ME Conference - 1st June 2018

    Out of respect for Anne Örtegren, I'm sharing this photo from today's conference of Invest in ME Research Trustee Richard Simpson, organiser of the charity's conference events along with Pia Simpson and Chairman, Kathleen McCall, with the help of fellow staunch advocates such as Anne. A few...
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    13th Invest in ME Research International ME Conference - 1st June 2018

    Looks as though Emma Joy will do some catch-up tweets using #IIMEC13 hashtag..
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    13th Invest in ME Research International ME Conference - 1st June 2018

    Just wanted to wish those of you able to go on Friday a Happy #IIMEC13!
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    30 & 31 May | Invest in ME Research international colloquium

    Maybe it's a gut-brain connection ;)...
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