Search results

That is what we need to change. We need some of the best and brightest going into ME research.

I think there is a time for creativity and a time for good process and reliability. When planning you can be creative but once executing a plan (trial, experiment) its important to know the results are a result of the defined protocol and other issues are controlled (i.e. have a good quality...

I do wonder if with ME (or more accurately CFS) research we have seen some of the worst practices.

As you say we need to be careful with long covid as some have ME like disease but it seems to cover a whole range of other long term issues.

Also people report getting ME after being vaccinated which is a weak infection (i.e. in causes the immune system to work). I had assumed that there maybe a state where if in that state when the immune system in activated more than normal it could cause ME.

I think its slightly different as the artifact (model) is available and can be externally examined and tested. Its not just a paper that you can read with chosen results. With an open weight model I can (and do) download it and test its capabilities (and bad things it may help me do) - I can...

It does still exist although I think less than it used to where it was common. Partly driven by government initiatives - But I'm probably thinking in terms of software that an enterprise would be happy to deploy. AI is moving really fast and doing the right thing is often ignored in favor of...

Publishing has changed as well. These days most AI papers are published on archive way before they appear in a journal or conference. The field is fast moving. But also much of the research is done by companies (with or without academics) possibly due to the costs. Surprising maybe how many...

I always thought of a GWAS study as being hypothesis generating rather than giving the answer. I think that is how they are more generally seen. So in ME/CFS research this means that if say DECODE comes up with come genes of interest then this could translate to research projects that explore...

Does getting ME relate to infection severity? I had the impression that it didn't

I'm a believer that different fields can learn from each other and its useful to understand different ways of working/ideas and concepts from different fields - then use them in your own. Sometimes this is a good approach to innovation. I do think that one thing we have on this forum is people...

More than that people are paid for finding security critical significant bugs (bug bounty programs). And lots of academic research tries to crack crypto, protocols, etc. It feels very different from the medical world which seems very defensive and resistant to criticism of techniques - look at...

Having worked on modelling systems (not biological systems) I think its necessary to have people who understand the area as well as people who understand modelling. What we have found in modelling complex systems is that often no one has a good overall understanding of all the areas that...

The MRC say they don't do ring fenced funding but they do seem to have politically driven initiatives. Personally for research I think more needs to be done than ring fenced funding as that has failed in the past to grow research capacity.

In the end change comes when there is a political will. One thing I noticed was how much the civil servants react to the minister and government policies. If we want real change that will only happen when driven by senior politicians who demand things. If you look at where research money has...

I don't think there was much input from the BPS crowd, certainly not in the meetings that I was in - there may have been a few comments. What we don't know is what behind the scenes lobbying happened, From my perspective those writing the plan get the issues and that people have been...

It is worth saying that there was a lot of effort in negotiation with other departments. One thing that made this plan tricky is it crossed so many organizational boundaries (i.e. different ministers and departments),

I don't know about all the courses they produce. I intent with module 1 was to make the first one widely available so that it could be targeted at a range of different people involved in the care of people with ME. For example, social workers, carers, dwp staff, medical receptionists as well as...

We could collect negative comments from GPs here and else where and send them to the team in the DHSC responsible for long term conditions and this plan. To show the issues and the work that needs to be done

I agree with this I think they made the first module more generally available. I don't understand why they restrict them. I think the severe one will come out soon and from what I have seen its ok. I assume its there default position to keep training modules private.