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  1. Esther12

    Long Covid in the media and social media 2023

    I understand people not wanting to promote things like that, but linking to an archive site can be useful for the future. Sympathies to those in Norway...
  2. Esther12

    Trisha Greenhalgh on ME/CFS and Long Covid

    To be fair to the GMC on this, maybe they recognise that they're not up to the job of deciding what is or is not misinformation? Doctors promoting anti-vaccine nonsense is bad, but do we think that the GMC is up to the job of deciding what doctors should or should not say? There are things that...
  3. Esther12

    Will psychotherapists corrupt pacing?

    I think that there's a danger that any medical professionals, however well intentioned, will have a negative impact on how 'pacing' is understood if they start to make a career from providing 'pacing'. It seems that medical culture makes it really difficult to make a virtue of leaving patients...
  4. Esther12

    UK: Aberdeen Uni: Major new study aims to increase understanding of fatigue

    Looks like Rosalind Adams was working at a pain clinic: http://scotlandgptraining.blogspot.com/p/rosalind-adam-salaried-gp-and-academic.html
  5. Esther12

    Long Covid Advocacy: Is the “greatest medical scandal of the last century" being repeated for a generation of children? (about the CLoCK study)

    With Stephenson as head of the HRA, the HRA might not provide the most critical assessment of his project.
  6. Esther12

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Recovery Norway promoting Vinay Prasad's video on this paper, titled 'Long COVID has nothing to do with COVID in kids! Loneliness and poor physical activity' https://www.facebook.com/RecoveryNorway/posts/pfbid0dLmwhpgSN5muPqPVnjDnxsXVWpqNivL1vtGVnF3KMi9hi1xmQzY2fZF7cLst9fGRl
  7. Esther12

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    This webpage listing Recovery Norway as the organisation for this project is of interest: https://dam-no.translate.goog/prosjekter/langtidseffekter-etter-koronavirusinfeksjon-hos-ungdom/?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp Elias Brodwall and Wyller are authors of the JAMA...
  8. Esther12

    News from Canada

    Just saw Jason Busse liked two teets announcing this, so that's not a good sign:
  9. Esther12

    Long Covid in the media and social media 2023

    According to the linked to document Stephen J. Kirsch, M.D was the doctor who Unum initially turned to to assess this claimant, and he want against the advice of her doctors in claiming she was able to return to work. Scott Norris, M.D was the Unum doctor who denied her appeal. I think it can...
  10. Esther12

    Online Health Communities in Controversy over ME/CFS and Long Covid, 2023, Jackson

    Not read the paper yet, but interested in all the discussion. One thing I thought to add is that while I share people's tendency to be most interested in discussing the things I'm more critical of, it can also be good to acknowledge the work that's gone into papers that seem to be making a...
  11. Esther12

    Long Covid in the media and social media 2023

    BBC journalist Lucy Adams talks about her experiences with Long Covid, and Alan Carson: https://www.bbc.co.uk/news/uk-scotland-65058119 She said: "He was the first person who could explain in a way that I understood what was happening to me and how the communication systems between my brain and...
  12. Esther12

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    Reminds me of the 2019 NHS Lothian response on PACE : https://archive2021.parliament.scot/S5_PublicPetitionsCommittee/Submissions%202019/PE1690_LL.pdf
  13. Esther12

    Finland: 2023 Helsinki University Long Covid conference

    Does anyone know if there's a recording of what was said at the conference, rather than just summaries?
  14. Esther12

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Interesting discussion on Vogt's FB page about this: https://www.facebook.com/HenrikVogtMDPhD/posts/pfbid02q2QVhWgi3RhopXV3W1BbHe3wo3MaohVD1KH36fTbn66GpQvcUMmLmFiBo9RxLj8rl Also, funny the Vogt introduces his comment with "Below you can read clarifications from Recovery Norway of some...
  15. Esther12

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    I agree with others that 'believing patients' isn't the best way of thinking of this (did the patients even start making claims about sonic weapons? I thought that was others), and if you start rejecting views just because other people hold them, that's only going to make it easier for them to...
  16. Esther12

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    The various 'sonic weapons' theories floating about always seemed pretty questionable imo. When the CIA is promoting it it's difficult to judge - maybe they'd cooked up some bizarre secret weapon themselves - but there was never much in the way of evidence to support that view. When the whole...
  17. Esther12

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    But even there, where even the supportive journalist seems wary of Garner's vociferousness, it's not made clear who 'the activists' or 'these people' are exactly, and what marks them as 'us'. The whole article seems so lacking in specifics that it's difficult to draw much of substance from it...
  18. Esther12

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    What quote from Garner do you think is the most clearly despicable example of him using this e-mail (or others) as a weapon against 'the ME community' or trying to silence legitimate criticism? I've not re-read the article, but my impression is that there's a move towards more cautious and...
  19. Esther12

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think that it also depends on specifics, and that many of those specifics are more favourable to Garner than the SMC. I think it's fair for patients to provide accurate quotes from researchers and doctors that illustrate troubling behaviour, and if Garner is getting e-mails like the one...
  20. Esther12

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think that the specifics of the promotion of 'positive thinking' to ME/CFS patients has been one of the most destructive things to surround the condition, and an important part of why things are so bad now. But I also think that there is doubt here, and maybe I'm wrong. Some ME/CFS patients...
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