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General Advocacy Discussions

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  1. JaimeS

    Who was it that said being in support groups leads to poor outcome?

    JaimeS, Jul 24, 2018 ... 12 13 14
    Replies:
    274
    Views:
    27,269
    Arvo
    Nov 27, 2022
  2. Esther12

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Esther12, Jul 28, 2019 ... 7 8 9
    Replies:
    179
    Views:
    20,725
    Amw66
    Sep 10, 2019
  3. ME/CFS Skeptic

    A proposal for ME Action: a commitment to evidence-based medicine

    ME/CFS Skeptic, Oct 2, 2019 ... 6 7 8
    Replies:
    154
    Views:
    15,850
    Trish
    Nov 6, 2020
  4. Trish

    Is it true that more than half of medical consultations are for MUS? A look at the evidence.

    Trish, Mar 12, 2019 ... 5 6 7
    Replies:
    132
    Views:
    14,714
    Esther12
    Jul 31, 2022
  5. Rossy191276

    Ideas For Marketing ME More Effectively...

    Rossy191276, May 14, 2018 ... 5 6 7
    Replies:
    125
    Views:
    14,397
    Dragonflies and dreams
    Aug 13, 2018
  6. Hip

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    Hip, Sep 10, 2018 ... 4 5 6
    Replies:
    110
    Views:
    11,052
    Hutan
    Oct 13, 2018
  7. JohnTheJack

    What research do you want to see?

    JohnTheJack, Jul 7, 2018 ... 4 5 6
    Replies:
    107
    Views:
    9,880
    duncan
    Apr 14, 2024
  8. RuthT

    #MEAction - UK Organiser

    RuthT, May 23, 2018 ... 4 5 6
    Replies:
    100
    Views:
    12,485
    Andy
    Oct 3, 2018
  9. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    InitialConditions, Jul 4, 2023 ... 3 4 5
    Replies:
    98
    Views:
    5,557
    AknaMontes
    Jul 11, 2023
  10. Dolphin

    Fundraising for ME/CFS research - opportunities, problems

    Dolphin, Aug 14, 2019 ... 2 3 4
    Replies:
    75
    Views:
    5,852
    Dolphin
    Sep 6, 2023
  11. ME/CFS Skeptic

    Why is ME/CFS getting so little research funding?

    ME/CFS Skeptic, Nov 24, 2020 ... 2 3 4
    Replies:
    72
    Views:
    6,068
    chrisb
    Nov 30, 2020
  12. Sarah94

    ME Association magazine summer 2019

    Sarah94, Aug 12, 2019 ... 2 3 4
    Replies:
    65
    Views:
    8,153
    dratalanta
    Aug 21, 2019
  13. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3
    Replies:
    57
    Views:
    5,912
    bobbler
    Nov 11, 2023
  14. InitialConditions

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    InitialConditions, Jul 5, 2021 ... 2 3
    Replies:
    57
    Views:
    4,802
    Amw66
    Aug 15, 2021
  15. Hutan

    UK Action for ME - policies, actions and publications - discussion thread

    Hutan, Jul 26, 2021 ... 2 3
    Replies:
    55
    Views:
    3,440
    NelliePledge
    Sep 10, 2021
  16. Guest 2176

    Should ME organisations do more direct action to get more funding for ME research?

    Guest 2176, Oct 30, 2019 ... 2 3
    Replies:
    55
    Views:
    4,039
    ChloeC
    Nov 12, 2019
  17. freddyV

    Harassment claims in the media and social media.

    freddyV, Aug 25, 2021 ... 2 3
    Replies:
    53
    Views:
    5,432
    Lou B Lou
    Feb 26, 2023
  18. Sly Saint

    Why are the majority of pwME rarely mentioned?

    Sly Saint, Jan 18, 2019 ... 2 3
    Replies:
    52
    Views:
    10,018
    Sly Saint
    Aug 3, 2023
  19. Obermann

    Twitter activity of Professor Blanchflower

    Obermann, Feb 11, 2019 ... 2 3
    Replies:
    52
    Views:
    7,260
    chrisb
    Feb 25, 2019
  20. Dx Revision Watch

    The future and funding of UK ME/CFS charities

    Dx Revision Watch, Sep 12, 2019 ... 2 3
    Replies:
    50
    Views:
    3,448
    Mike Dean
    Dec 6, 2020
Showing threads 1 to 20 of 204

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