What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

I haven't read this yet myself.

https://meassociation.org.uk/literature/items/infographic-poster-management-of-me-cfs/

Infographic Poster – Management of ME/CFS
A comprehensive infographic with expert information from Dr Charles Shepherd (Honorary Medical Adviser to the ME Association) to help healthcare professionals with the management of ME/CFS

It contains information surrounding the important parts of management including:

  • Early and accurate diagnosis
  • Information and guidance as soon if a diagnosis ME/CFS is suspected
  • Recognise and manage co-morbidities that may be present.
  • Explains who should manage people with ME/CFS
  • Severe and very severe ME/CFS
  • Activity and energy management – pacing
  • Symptom management
  • Diet, nutrition and supplements
  • DWP benefits and social care
  • Education and employment
You can also view our first infographic poster on Diagnosis.




You can download a PDF file of this item
https://meassociation.org.uk/wp-content/uploads/2025/05/MECFS-Management-Poster.pdf
 
Dolphin said:
https://meassociation.org.uk/literature/items/infographic-poster-management-of-me-cfs/

Infographic Poster – Management of ME/CFS
Click to expand...

Only skimmed -- overall looks good. Not sure about the section on co-morbidities though:

From the poster:

"Recognise and manage co-morbidities that may be present."

▪ Joint Hypermobility Syndrome (JHS)
▪ Interstitial Cystitis
▪ Irritable Bowel Syndrome (IBS)
▪ Mast Cell Activation Syndrome
(MCAS)
▪ Migraine type headaches
▪ Postural Orthostatic Tachycardia
Syndrome (PoTS)


Edit: What evidence is there for MCAS, PoTS, Joint Hypermobility Syndrome (JHS) being relevant co-morbidities or helpful diagnoses? (Forum discussions have been skeptical).
 
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The first two recently produced S4ME factsheets (see post above) to me are a big change -- they are the only ones I'm really happy to share with doctors (and everyone else) -- I think they contain nothing that makes me/ my sources of information appear untrustworthy.

They also give as resources the NICE guideline and basic papers rejecting the BPS claims on causes and treatment and so maybe for a mail-out no need to add these?

Edit: Maybe the UK NICE GL could be highlighted in the cover letter & that the factsheets align with them?
 
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