I know the issue of severity is sensitive and don't want to get into a 'my ME is worse than yours' kind of debate. But I have only recently begun to notice that most literature (including from the charities) although noting the 25% severely affected, and emphasising the debilitating nature of the disease generally (as they should), the vast majority of ME sufferers who fall into the category between 'mild' and severe rarely get mentioned. People in the general public and (medical health professionals) might know someone who has ME and is still working, and some may be aware of those who are long-term severely affected and bedbound, but how many are aware that the majority of pwME fall somewhere between these two scenarios? I have been trying to find some statistics and the only ones I have found so far are these: "Around 25 per cent of people with ME/CFS will have a mild form and be able to get to school or work either part-time or fulltime, while reducing other activities. About 50 per cent will have a moderate to severe form of ME/CFS and not be able to get to school or work. Another 25 per cent will experience severe ME/CFS and have to stay at home or in bed." https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Might it not be a good idea to get over the additional message that the majority of people with ME struggle just to maintain activities of daily living (https://en.wikipedia.org/wiki/Activities_of_daily_living ) and that only 25% of pwME are able to continue (albeit with difficulty) with regular additional activities? This appears to get lost in any media coverage, and certainly is not something that the benefits assessors appear to be aware of. (if anyone can find any other stats on this issue please post).