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Possibility of ME or PVFS after COVID-19, Long Covid

Discussion in 'Epidemics (including Covid-19)' started by Hip, Jan 21, 2020.

  1. anniekim

    anniekim Senior Member (Voting Rights)

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    Thank you @daftasabrush for your comments. I agree the whole notion of rehab in the context of longCovid is problematic as you rightly say it indicates that the issue is temporary when that is not known yet. My concern is that the Longhaul Support Group made up of people with longhaul CoVid have put their support behind rehab by having it in their slogan.
     
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  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Coronavirus symptoms update: The two main symptoms which persist even after recovery

    https://www.express.co.uk/life-styl...-fogginess-myalgic-encephalomyelitis-covid-19

    wish someone would let the author know that one of the problems in getting ME researched seriously is due to inaccurate conflation of ME with 'chronic fatigue' as in their article.
    eta:
    and another one does the same
    https://pressfrom.info/us/lifestyle...drome-and-long-term-coronavirus-symptoms.html
     
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  3. Dolphin

    Dolphin Senior Member (Voting Rights)

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    alktipping, Barry and Kitty like this.
  4. Mij

    Mij Senior Member (Voting Rights)

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    From the article above. Again with this David Putrino, a physical therapist with a PhD in neuroscience, director of rehabilitation innovation in the Mount Sinai Health System advising exercise when he doesn't understand that long-haulers COVID patients could possibly develop ME. The article does not explain that pwME can have both dysautonomia and ME.
     
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  5. John Mac

    John Mac Senior Member (Voting Rights)

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    Video on DailyMotion 24h news.
    Mentions Covid-19 and ME/CFS
    If you can stand the auto generated speech, "it affects 2.5 metre Americans"
     
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  6. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  7. rvallee

    rvallee Senior Member (Voting Rights)

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    Most of the clinical research teams seem to be doing this. Haven't kept notes but from articles talking about those rehabilitation efforts most of them state using exercise rehabilitation based on the assumption of deconditioning.

    So at least there's the test of this paradigm that would have been too unethical to do without this context. Sadly those harmed by this will also be dropped dead by medical services but we can't do anything more than warn people that it will happen and that they are making a mistake.
     
    Perrier and anniekim like this.
  8. rvallee

    rvallee Senior Member (Voting Rights)

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    After Recovering From COVID-19, Many Still Have Painful Symptoms

    https://www.npr.org/transcripts/905015250

    "Too much energy" probably meant too much exertion. Yay, brain fog.

    It's incredible that the complete disconnect between "we've known about this for a long time" and "nobody knows anything about it" while presenting with this problem at a clinic means you will likely get dismissed with prejudice about your not-medically-relevant "psychological issues" is not yet seen as an issue. Right up there with "climate change may be real but it's not related to human activity" in the moving-the-goalposts.

    Hello? Consistency would be nice. It's literally expected and required but I guess we'll settle for it would be nice. Is it something we've known about for a long time or something that does not exist and deserving of the mockery we are systematically subjected to? Can you possibly make up your mind and stop believing too mutually exclusive things? That would be great, thanks.

    I get that it's hard after decades of denial but ignoring this blatant cognitive dissonance only means you are OK with continuing to harm people out of failure.
     
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  9. Kalliope

    Kalliope Senior Member (Voting Rights)

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    They talk among other about symptoms that are not on the CDC list, as hair falling out, which has been reported many places. But she also mentions that the nails are growing really long. How weird..
     
    Last edited: Aug 23, 2020
    MEMarge, Shinygleamy and alktipping like this.
  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    ah, demons.
    (sorry I've been watching a lot of Buffy recently)
     
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  11. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    8 hours ago.

    I was wondering when the post Covid-19 > CCI thing would surface:


    [​IMG]



    As someone said to me this morning, is she going to start uploading scans of her empty sella for Dr Tedros G and then the #MEspine, #nightingales, #zebras and #giraffe folk will start piling in on Dr G?
     
  12. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Anna H, MEMarge, Alton and 1 other person like this.
  13. JemPD

    JemPD Senior Member (Voting Rights)

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    :eek::(
     
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  14. Trish

    Trish Moderator Staff Member

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  15. rvallee

    rvallee Senior Member (Voting Rights)

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    Can't remember seeing this yet.


    Long-term immunological health consequences of COVID-19

    British Society for Immunology

    https://www.immunology.org/sites/default/files/BSI_Briefing_Note_August_2020_FINAL.pdf

    Diverse, instead of the usual, clearly pejorative, "complex".

    Under the heading "fatigue":
    A scientific concept cannot include itself, folks. Good grief mature up over this, it's completely silly. "Fatigue" cannot itself contain "fatigue", classification and categorization form the basis of science, being able to tell things apart from other things. Clean up your damn vocabulary.

    Recommendations:
     
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  16. rvallee

    rvallee Senior Member (Voting Rights)

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    Published on the French government's official twitter account:



    Not really worth doing a transcript, just describing the experience of long Covid, but the source is significant.
     
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  17. Andy

    Andy Committee Member & Outreach

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    Research Examines Links Between 'Long COVID' and ME/CFS
    Requires log-in to read
    https://www.medscape.com/viewarticle/936252
     
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  18. Ravn

    Ravn Senior Member (Voting Rights)

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    Lily Chu making sense, as usual.
     
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  19. Kalliope

    Kalliope Senior Member (Voting Rights)

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  20. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Herald.ie After-effects of even mild Covid 'like ME or chronic fatigue'

    Irish cardiologists have seen a number of people infected with Covid-19 go on to suffer myocarditis which can affect the heart muscle, reducing its ability to pump and causing rapid or abnormal rhythms.

    Some people have described having a kind of 'brain fog' and experiencing problems trying to think clearly.

    They can have a normal brain scan but still not feel right. It's unclear what is happening but it has been suggested it is similar to a post-viral fatigue related to inflammation in the body.

    Because Covid-19 has been around for such as short time there is still a lot to learn by medics about the lasting effects.

    It will only become clear over time and when the findings of more studies emerge and are confirmed.



    Article also quotes dr. Fauci saying it's extraordinary many who have a post-viral syndrome strikingly similar to ME or CFS.
     
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