News from Australia

Apparently, a Royal Australian College of GPs committee is meeting to re-evaluate its recommendation for graded exercise therapy for ME/CFS. Final decision is due end of May.
Has this been discussed here?

The committee values the 2019 Cochrane review into exercise therapy for ME/CFS.

I don't know who the author is, but a critical review of the Cochrane review has been published on https://mecfs.au/racgp-recommendation-of-graded-exercise-therapy-for-me-cfs/ and this has been sent to RACGP.

There is an opportunity to add more voices by lodging a complaint with RACGP about promotion of Graded Exercise Therapy using their complaint form. https://www.racgp.org.au/do-you-have-a-complaint
 
Apparently, a Royal Australian College of GPs committee is meeting to re-evaluate its recommendation for graded exercise therapy for ME/CFS. Final decision is due end of May.
Has this been discussed here?

The committee values the 2019 Cochrane review into exercise therapy for ME/CFS.

I don't know who the author is, but a critical review of the Cochrane review has been published on https://mecfs.au/racgp-recommendation-of-graded-exercise-therapy-for-me-cfs/ and this has been sent to RACGP.

There is an opportunity to add more voices by lodging a complaint with RACGP about promotion of Graded Exercise Therapy using their complaint form. https://www.racgp.org.au/do-you-have-a-complaint

Would it help to send it in the form of a personal story about how it's negatively impacted someone or would that just be seen as taking the piss? And does an outsider commenting count?
 
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Apparently, a Royal Australian College of GPs committee is meeting to re-evaluate its recommendation for graded exercise therapy for ME/CFS. Final decision is due end of May.
Has this been discussed here?

The committee values the 2019 Cochrane review into exercise therapy for ME/CFS.

I don't know who the author is, but a critical review of the Cochrane review has been published on https://mecfs.au/racgp-recommendation-of-graded-exercise-therapy-for-me-cfs/ and this has been sent to RACGP.

There is an opportunity to add more voices by lodging a complaint with RACGP about promotion of Graded Exercise Therapy using their complaint form. https://www.racgp.org.au/do-you-have-a-complaint

@Caroline Struthers
 
From Natalia Hodgins on Twitter.

"A heartfelt thank you to @SenatorJordon and @MariaVamvakinou for re-establishing the Parliamentary Friends of ME/CFS in Australia. A launch event will be held on 13 June, 11am-12pm AEST at Parliament House. All are welcome to attend via live-stream: us02web.zoom.us/j/88962701771"

"For any MEeeps who can attend in-person, there's limited seating at the venue so please RSVP to the Sentor's office to express your interest in attending: Naomi.Brooks@aph.gov.au."

"At the event, MPs will be invited to hear from community advocates, including reps from @EmergeAus, @MECFSAustLtd and @australia_call about how they can best support people with ME/CFS from their positions in Parliament House."

 
This is a good article about the difficulty in accessing support in Australia:

‘The Lucky Country’ Let Me Down: Australia’s Broken Disability Support System

Imagine if you woke up tomorrow morning, and instead of having fourteen usable hours in the day, you only had two. That’s the best way to describe what it feels like to acquire an energy-limiting disability like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). One day, you wake up, and your life force has disappeared into thin air.

Suddenly, life is about impossible choices. When I first became unwell, I was forced to choose between working and living. Between washing my hair and cooking dinner. And later, as I lost more and more energy; between brushing my teeth and speaking to my family. These are the choices people with energy-limiting disabilities make every day. Our time is not the same as yours; we need rest; we need support. And we deserve care.
 
Fifth Covid wave hits Australia as cases spike in every state and territory
A prominent epidemiologist says it is 'obvious' Australia is heading into its fifth wave of Covid.

Over the last week, 38,226 cases were reported across Australia, with an average of 5,461 cases per day.

While cases are spiking in almost every state and territory - including a 44 per cent spike in Tasmania - the seven-day rolling average of 5,461 is well below the nation's peak of more than 100,000 cases in January 2022.

University of South Australia Professor Adrian Esterman said it is already very clear a new wave is coming in South Australia, where infections are forecast to double in the next fortnight.

'It's pretty much clear now across the country we're going into a fifth Omicron wave,' he told the ABC.

'We've seen numbers going up now for three weeks in a row.'

It comes as health authorities are also reporting an increase in cases of influenza and Respiratory Syncytial Virus (RSV).


'It's a triple whammy at the moment,' he said.

Diagnosis rates of influenza are 100 times higher than they were last year, with more than 40,000 cases of laboratory-proven influenza so far in 2023.

Fifth Covid wave hits Australia as cases spike in every state and territory (msn.com)
 
A meeting in Canberra today will push for new national guidelines to treat chronic fatigue syndrome.

Queensland scientists will provide up-to-date scientific data to support changes to existing protocols for patients with CFS, known medically as myalgic encephalomyelitis or ME/CFS.

They will join politicians, ME/CFS patient representatives and other researchers from across the country at Parliament House.

https://www.abc.net.au/news/2023-06...s-researching-chronic-fatigue-mecfs/102471386
 
You beat me to it @Sean.

I'm looking forward to a reply from the RACGP to the ABC's request for a comment.

I was just about to write yet another complaint about the ABC using Chronic Fatigue instead of Chronic Fatigue Syndrome when I noticed the full name was there in headline. What a nice surprise.
 
Further to the above posts about the new Parliamentary Friends of ME/CFS group:

Due to a delayed start, Spokesperson for ME/CFS Australia, Penelope McMillan, was asked to cut her presentation time in half; and due to technical difficulties, she was unable to share the slides. Due to many requests from the ME/CFS community and others, the planned presentation appears here.

Presentation: slides, transcript, video below.

https://mecfssa.org.au/event/parliamentary-friends-of-me-cfs-1
 
About scientific fraud and misconduct:

Founded by a concerned senior scientist, the "online tool Retractions Australia [ https://retractions.au/ ] is tracking scientific papers that have been retracted – or pulled – by peer-reviewed journals".
https://www.theage.com.au/national/...ience-fraud-in-australia-20230626-p5djj6.html

The online tool has an interesting page of information about Australia sourced from Retraction Watch listing the top ten institutions and journals involved, those with the most papers retracted, the most common reasons for the retractions, and the titles of the most recent retractions.
 
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website Calendar-Australia.com

What does a CFS crash feel like?

uses quotes from different websites to answer questions.

this one could do with changing
How long do chronic fatigue flare ups last?
Overview. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complicated disorder. It causes extreme fatigue that lasts for at least six months. Symptoms worsen with physical or mental activity but don't fully improve with rest.

Takedown request | View complete answer on mayoclinic.org

https://www.calendar-australia.com/faq/what-does-a-cfs-crash-feel-like
 
Doesn't seem to have been posted.


Medical Research Future Fund announces panels for priorities including childhood mental health and long Covid

The long Covid group’s terms of reference require it to consider a recent parliamentary inquiry into long Covid, as well as existing research funding. Its three main priorities will be post-viral syndromes, the effects of Covid-19 in triggering specific conditions, and “medically unexplained conditions” such as fatigue. The panel will be chaired by Gail Matthews, head of infectious diseases at St Vincent’s Hospital in Sydney. The funding for this stream is A$50m.

https://www.researchprofessionalnew...-appointed-to-guide-227m-in-mrff-investments/


Very unimpressed at "fatigue" being a "medically unexplained condition" rather than a symptom but whatever.
 
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