News about Long Covid including its relationship to ME/CFS 2020 to 2021

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Science News: "A faulty immune response may be behind lingering brain trouble after COVID-19"


"It’s not a new idea. Immune systems gone awry have been implicated in cognitive problems that come with other viral infections such as HIV and influenza, with disorders such as myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CSF, and even from the damaging effects of chemotherapy."

"What’s different with COVID-19 is the scope of the problem. Millions of people have been infected, says neurologist Avindra Nath of the National Institutes of Health in Bethesda, Md. “We are now faced with a public health crisis,” he says."

"Tragic as the pandemic is, it may ultimately lead to something good, adds Nath, who is setting up a small clinical trial to study possible long COVID treatments. All these other syndromes such as ME/CSF that researchers have struggled to understand “might benefit from what we learn here from long COVID. We might be able to develop treatments for them all.”

(they used ME/CSF which is incorrect obviously)
 
Dakota15 said:
(if not posted yet)

The Guardian: The great gaslighting: how Covid longhaulers are still fighting for recognition

Features Dr. Komaroff & a fair amount of ME/CFS excerpts.
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Wow this is solid, worth reading. Can't believe this is in the Guardian, must be their international office, or they forgot how much they hate us for a minute.

The story of psychosomatic medicine is seriously one of the darkest chapters in human history outside of pure conflict, war and all the stuff that is horrible because it's the whole point.
 
rvallee said:
Wow this is solid, worth reading. Can't believe this is in the Guardian, must be their international office, or they forgot how much they hate us for a minute.
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I had a look. The writer Mike Mariani is from Hoboken NJ. So not from the UK.

It's probably safe to say that Ian Sample and the previous holder of the post Sarah Boseley are still engaged in upholding BPS propaganda at our expense. Just doin' their job.
 
Time: Long COVID Patients Are Waiting Months for Care, and the Problem May Only Get Worse

"The problem is, nobody fully understands how to cure Long COVID. In that regard, it’s similar to other mysterious and complex chronic illnesses like myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), chronic Lyme disease, and fibromyalgia. “To be frank,” Geng says, “we don’t have a curative therapy.”
 
Dakota15 said:
Science News: "A faulty immune response may be behind lingering brain trouble after COVID-19"


"It’s not a new idea. Immune systems gone awry have been implicated in cognitive problems that come with other viral infections such as HIV and influenza, with disorders such as myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CSF, and even from the damaging effects of chemotherapy."

"What’s different with COVID-19 is the scope of the problem. Millions of people have been infected, says neurologist Avindra Nath of the National Institutes of Health in Bethesda, Md. “We are now faced with a public health crisis,” he says."

"Tragic as the pandemic is, it may ultimately lead to something good, adds Nath, who is setting up a small clinical trial to study possible long COVID treatments. All these other syndromes such as ME/CSF that researchers have struggled to understand “might benefit from what we learn here from long COVID. We might be able to develop treatments for them all.”

(they used ME/CSF which is incorrect obviously)
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The error has been corrected, did you email the journalist?
 
Interview with among other Ed Yong.

news.com.au 'Mass disability event' warning as huge numbers diagnosed with long Covid

Quote:
Yong likened long Covid to other “marginalised” diseases.

“The piece I want to highlight, and that I think a lot of people still miss, is that long Covid has important similarities to ME/CFS, dysautonomia and other chronic, complex, marginalised conditions.

“There aren’t many scientists who study these conditions but they do exist, and their work means that we’re not starting from scratch when it comes to understanding long Covid.

“Even many scientists are unaware of this, and are thus reinventing the wheel.”
 
Paywalled news article in Sweden's third largest morning paper. (Cultural illness is not mentioned, thank you!)

Flera covid-sjuka vittnar om en extrem trötthet
https://www.svd.se/flera-covid-sjuka-vittnar-om-en-extrem-trotthet

Auto-translate said:
Many covid sufferers report extreme fatigue

[...] - The extreme fatigue has been described from the beginning of the pandemic, but the vast majority recover. Then there is a group of patients where fatigue and other symptoms become more prolonged, what we call long covid, which is a condition that lasts more than 12 weeks," says Judith Bruchfeld, associate professor at Karolinska Institutet and a specialist in infectious diseases.

It's quite normal that you don't fully recover immediately after covid-19. But after three to four weeks, anyone who remains tired after a covid infection should seek medical attention, says Bruchfeld.

- You should see your GP first. It's important to rule out other diseases as a cause of symptoms, as well as to investigate complications after covid-19," she says.

Previous research has shown that there are several genetic factors that determine who develops long-term symptoms. [...]
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Irish article. No mention of ME/CFS or "post viral":

Long Covid: Parents exposing kids to virus without knowing the risk, expert warns
https://www.irishexaminer.com/news/arid-40801611.html

Includes:

"Model Care

In June, the HSE published a draft ‘model of care’ for Long Covid, with a projected cost of €6.6 million.

This will cover seven clinics for people immediately after a Covid infection, and six clinics for Long Covid, as well as an epidemiological study of the syndrome.

Each clinic will be led by an infectious diseases consultant with a team to include nurse specialists, and staff from psychology and psychiatry.

A spokeswoman said the HSE is continuing to work on “implementing and resourcing” the service, including recruitment.
“It is important to advise that patients currently experiencing symptoms of post-acute and long Covid are being managed by both general practitioners and hospital consultants across the country,” she said."
 
Of all the weird things I will never be able to wrap my head around, medical doctors commonly insisting, asserting, that children are perfectly safe from an infectious disease and should in fact be infected on purpose, with a virus that clearly does not care about anyone's thoughts and beliefs about herd immunity, ranks very high. It just doesn't compute with even minimal knowledge of history and medicine, roughly half of all humans who were ever born died of infectious disease in childhood. Just an absurd moment of derp.



Actually there are treatments for this, they just don't work, and are unfit for purpose. But they do exist and have been in common use for years. Do they know even this? Probably not, even though outside the context of the pandemic, most pediatricians would be offering those treatments that both exist and don't exist depending on who you ask and what they happen to believe about the limits of medical knowledge, and a bunch of other unrelated factors.

 
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