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News from Australia

Discussion in 'Regional news' started by Kalliope, Oct 14, 2020.

  1. ola_cohn

    ola_cohn Established Member (Voting Rights)

    Messages:
    90
    Location:
    Australia
    RoseE, Sean, oldtimer and 3 others like this.
  2. ola_cohn

    ola_cohn Established Member (Voting Rights)

    Messages:
    90
    Location:
    Australia
    Some quotes from the piece:







     
    Last edited: Dec 10, 2021
  3. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    584
    Location:
    Adelaide, Australia
    It was a very good piece. So many parts resonated with me:

    I've always described feeling 'poisoned' or 'hungover'.

    Similarly, a close friend could always spot when I was really unwell. She said my eyes would become glassy and my skin would be very pale.

    Sadly, the Australian medical community still can't comprehend it.
     
    Last edited: Dec 10, 2021
    Lidia, chrisb, RoseE and 8 others like this.
  4. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,534
    Location:
    Aotearoa New Zealand
    Yes, a very good article to share with the cricket fans in your life.
     
    NelliePledge, Trish, Sean and 3 others like this.
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    oldtimer and Snow Leopard like this.
  6. RoseE

    RoseE Senior Member (Voting Rights)

    Messages:
    340
    4 minute video shared by Emerge Australia
    https://fb.watch/albGDbF7zM/
    or post on their page...

     
    Last edited: Jan 5, 2022
  7. cfsandmore

    cfsandmore Senior Member (Voting Rights)

    Messages:
    205
    Location:
    USA
    Aquatic therapy is graded exercise in a pool. I was given a sheet of paper that was an exercise plan with time increases.

    Aquatic therapy only works when the patient is at a place where they can increase their activity. I was beginning to feel like I might live again. I was coming off of medication. I had to become more active at home before I could start aquatic therapy. I was able to comfortably travel to and from the YMCA, before I could begin the exercises.

    I know some of the patients dropped out of our study because they wasn't at a place where they could handle short term PEM. Starting the therapy to soon can lead to crashes that make MECFS much worse. I'm guessing many people with long covid are going to learn that hard lesson.

    My heart goes out to the young woman in the video, I hope she waits before trying GET in a pool.
     
  8. Trish

    Trish Moderator Staff Member

    Messages:
    51,890
    Location:
    UK
    The Australian GP organisation still has a section on GET for CFS. David Tuller has written about it. See this thread:
    Australia: RACGP: GET for CFS
     
  9. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    584
    Location:
    Adelaide, Australia
    Another excellent video from Emerge with an interview of an ME/CFS sufferer:



    Or on social media if you'd like to share it:


    I found this video particularly heart-breaking.
     
    Last edited: Jan 12, 2022
    alktipping, Hutan, Lidia and 5 others like this.
  10. kilfinnan

    kilfinnan Established Member (Voting Rights)

    Messages:
    69
    Location:
    Lochmaben
    This is my story. Yet when I used the word hangover recently with a consultant in rehabilitation, she only raised one eyebrow.
     
  11. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    584
    Location:
    Adelaide, Australia
    I got an eye-roll.

    "Worst flu of my life combined with a hangover" was used mockingly against me in a specialist's report to my employer.
     
  12. chrisb

    chrisb Senior Member (Voting Rights)

    Messages:
    4,602
    But that is what it is , isn't it? Mind you, it is perhaps not as serious as unfitness to practice medicine.
     
    alktipping, Lilas and Trish like this.
  13. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,534
    Location:
    Aotearoa New Zealand
    From an email:

    "Emerge Australia’s Online Community Groups pilot project is in its final phase!
    We are pleased to announce that our final groups are now open for bookings.


    Now is the time to confirm your place, booking in for a peer support group that suits you. We have groups for people living with ME/CFS as well as their carers. All groups are kicking off in February and March 2022.

    ...
    Bookings are essential and are now open for the following groups:
    Full details of the groups, including information about the facilitators and bookings, can be found by clicking the group names, or by visiting our website."
     
    cfsandmore, Trish and Sean like this.
  14. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,534
    Location:
    Aotearoa New Zealand
    Simone, cfsandmore, Trish and 2 others like this.
  15. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    584
    Location:
    Adelaide, Australia
    The new Emerge CEO has had some good input into this piece on Long Covid.

    Unfortunately much of the article is about 'fatigue'. I know I sound like a broken record, but this misplaced obsession with fatigue diminishes the hellishness of post-viral illnesses.

     
    alktipping, Missense, Dolphin and 7 others like this.
  16. bobbler

    bobbler Senior Member (Voting Rights)

    Messages:
    2,315
    :laugh::laugh: weird isn't it - you'd think more of them would admire the Oliver Sacks stuff and have (if they didn't innately have it) learned to look into that. Their attitude seems so backwards looking to decide that insight from the person living in the body is 'irrelevant'. Someone is giving them bum steers during their training and onwards.
     
  17. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    584
    Location:
    Adelaide, Australia
    Solstice, alktipping, Simone and 12 others like this.
  18. cfsandmore

    cfsandmore Senior Member (Voting Rights)

    Messages:
    205
    Location:
    USA
    The ending was really good.
     
    alktipping, Ravn, oldtimer and 4 others like this.
  19. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,534
    Location:
    Aotearoa New Zealand
    Yeah, this made me happy. Quite a bit of the detail was speculative, but the message that there is a biological underpinning, and that there needs to be more research came through really well. Thanks for sharing it @Art Vandelay. The Project is a tv program watched by a lot of people - googling suggests 600,000 to 700,000 people a night.

    And Waleed, the guy who narrated the piece, has a high profile in Aus media.
     
    Last edited: Feb 4, 2022
  20. Ravn

    Ravn Senior Member (Voting Rights)

    Messages:
    2,044
    Location:
    Aotearoa New Zealand
    Yes, the doctor at the end was excellent. Not so the other person on the panel who made a stupid joke insinuating only doctors were guilty of treating pwME badly. Pity the doctor didn't get a chance to reply because he could have pointed the finger straight back at the media for being just as guilty.
     
    alktipping, Simone, Chezboo and 8 others like this.

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