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News from Australia

Discussion in 'Regional news' started by Kalliope, Oct 14, 2020.

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  1. RoseE

    RoseE Senior Member (Voting Rights)

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    341
    https://naac-mecfs.org/me-cfs-international-conference-2021-research-innovation-and-discovery-rid/

     
    RoseE, Apr 20, 2021
    #21
    Trish, Ravn and oldtimer like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    ‘Hard to accept’: Tiff Hall reveals health battle

    https://www.news.com.au/lifestyle/h...e/news-story/ce36187f04c824916f0a437294d78c90
     
    Sly Saint, Apr 27, 2021
    #22
    Colin, Sean, Hutan and 4 others like this.
  3. Trish

    Trish Moderator Staff Member

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    52,324
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    UK
    Interesting - she's a fitness coach and seems to be totally confident she is going to recover. I wish her well.
     
    Trish, Apr 27, 2021
    #23
    MEMarge, Chezboo, Dolphin and 5 others like this.
  4. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,926
    Location:
    Aotearoa New Zealand
    Hutan, Apr 29, 2021
    #24
    Sean, Andy and Trish like this.
  5. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    585
    Location:
    Adelaide, Australia
    On a related note, I recall that the 'Fatigue Clinic' at the Austin has (or will soon) close since they can't find someone to take it over after the last head retired. That clinic had a reputation for being particularly barbaric.
     
    Art Vandelay, Apr 30, 2021
    #25
    Snow Leopard, Wyva, Sean and 1 other person like this.
  6. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    585
    Location:
    Adelaide, Australia
    There was a short story on Tiffiny Hall on A Current Affair tonight (a tabloid current events program).

    Video:
    https://9now.nine.com.au/a-current-...out-shock-diagnosis/ckobaqbiw00050io6yuispe5s

    Text summary:
    https://9now.nine.com.au/a-current-...n-battle/97565f3e-54d9-45bf-af0b-c2ee15155ee7

    It is encouraging that someone of her stature has come forward about having the illness. While the story wasn't too terrible, her social media posts hint that she might end up promoting woo-woo treatments like mindfulness. I hope that proves to be incorrect.
     
    Art Vandelay, May 5, 2021
    #26
    Colin, oldtimer and Hutan like this.
  7. Colin

    Colin Established Member (Voting Rights)

    Messages:
    92
    Location:
    Brisbane, Australia
    For A Sultana Adultery, that was quite good. They did present it as basically a women's disease, and there was no mention of LC, and it was pretty obviously a PR job as she was a Nine personality, but she was pretty forthright and they had Dr Heidi Nicholl in there and a little ad for Emerge Australia and I imagine that they'd be pretty happy with that.
     
    Colin, May 6, 2021
    #27
    Snow Leopard, cfsandmore, Sean and 2 others like this.
  8. Wyva

    Wyva Senior Member (Voting Rights)

    Messages:
    1,391
    Location:
    Budapest, Hungary
    Ask an Exercise Physiologist: Hacks for burnout and struggling with fatigue

    The question:

    I suffer from Chronic Fatigue Syndrome (coming up to 12 years). I was wondering if there are any hacks for preventing burn-out and CFS?

    Whenever I’m overwhelmed and stressed, my exercise routine is the first thing to go. Hard to push through a weights program when I’m depleted. I’m at the gym 4-6 days a week—it’s all-or-nothing for me.

    – Sammy, 28
    ​
    The answer from the physiotherapist who says she has chronic fatigue includes: GET, CBT, pacing, communication, nutrition, sleep hygiene.

    https://hercanberra.com.au/active/w...acks-for-burnout-and-struggling-with-fatigue/
     
    Wyva, May 13, 2021
    #28
    Snow Leopard, Trish, Hutan and 2 others like this.
  9. oldtimer

    oldtimer Senior Member (Voting Rights)

    Messages:
    646
    Location:
    Melbourne Australia
    I read this appalling hercanberra trash a little while ago and now the web page is not available. I hope it stays that way.
     
    oldtimer, May 13, 2021
    #29
    MEMarge, mango, Sean and 4 others like this.
  10. Wyva

    Wyva Senior Member (Voting Rights)

    Messages:
    1,391
    Location:
    Budapest, Hungary
    Oh wow, good! Maybe they received a lot of complaints.
     
    Wyva, May 13, 2021
    #30
    MEMarge, NelliePledge, Sean and 3 others like this.
  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Location:
    UK
    job ad

    Exercise Physiologist
    Institution Info
    [​IMG]
    University of New South Wales High St
    Kensington, Australia
    https://uniroles.com.au/display-job/21582/Exercise-Physiologist.html
     
    Sly Saint, May 26, 2021
    #31
    Sean, oldtimer and Hutan like this.
  12. Hutan

    Hutan Moderator Staff Member

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    Ugh. I think it's worth writing to the University. It might be a good opportunity to draw attention to the quality of the research going on associated with that clinic.

    There was that amazing episode of the recruitment strategy for a CFS trial that involved posters asking 'Are women with CFS ovary-reacting' - discussed here.

    And then there was that very shoddy piece of work re-analysing the Dubbo study results and completely mis-representing the findings - discussed here.
     
    Hutan, May 26, 2021
    #32
    MEMarge, Snow Leopard, Sean and 3 others like this.
  13. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,464
    Location:
    Canada
    Rules not enforced are just empty words and a profession can only claim to be based on science if it actually follows through and accepts reality, exemptions like this are exactly why they are not acceptable.

    A neurological disease, categorized as such, with an immune origin/trigger is neither neurological nor immunological. Evidence is irrelevant in medicine, what matters is what evidence is accepted. They usually align, but when they don't the outcome is disastrous. This is not science and it's immoral.

    https://twitter.com/user/status/1399220714545115138
     
    rvallee, May 31, 2021
    #33
    bobbler, merylg, Snow Leopard and 2 others like this.
  14. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    585
    Location:
    Adelaide, Australia
    An Australian ME patient has written a very good article on lockdowns and how people with chronic illness are ignored in more ways than one:

    https://www.mamamia.com.au/chronic-illness/
     
    Art Vandelay, Jun 14, 2021
    #34
    MEMarge, Snow Leopard, Hutan and 3 others like this.
  15. RoseE

    RoseE Senior Member (Voting Rights)

    Messages:
    341
    Has anyone taken a look at this beta app from a team in Australia?
    https://apollojourneys.com/

    It is still in development.

    ----------------------------
    Discussed on this thread:     Apollo Journeys ME/CFS App
     
    Last edited by a moderator: Jul 12, 2021
    RoseE, Jun 17, 2021
    #35
    Trish likes this.
  16. alex3619

    alex3619 Senior Member (Voting Rights)

    Messages:
    2,143
    Not seen it, but it sounds like what in computer science is called a hill climbing algorithm. I was using that in 1993 to treat my ME, but was aware of a glaring pitfall of this algorithm - local minima and maxima cause it to deliver sub optimal outcomes.
     
    alex3619, Jun 17, 2021
    #36
    RoseE, Trish and Snow Leopard like this.
  17. Hutan

    Hutan Moderator Staff Member

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    Location:
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    Hutan, Jun 29, 2021
    #37
    MEMarge, merylg, Andy and 2 others like this.
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Location:
    UK
    Active Physiotherapy
    How is ME/CFS treated, and will it get better?
    https://activephysiowagga.com.au/bl...ephalomyelitis-chronic-fatigue-syndrome-mecfs
     
    Sly Saint, Jun 29, 2021
    #38
    Hutan, Trish, Sean and 1 other person like this.
  19. alex3619

    alex3619 Senior Member (Voting Rights)

    Messages:
    2,143
    Sadly, more evidence many in the medical profession are not scientists.
     
    alex3619, Jun 29, 2021
    #39
    Hutan, rvallee, Trish and 3 others like this.
  20. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,926
    Location:
    Aotearoa New Zealand
    I just heard this woman speak on New Zealand radio about the Australian response to Covid-19:
    WHO advisor and Professor of Epidemiology at the University of New South Wales, Mary-Louise McLaws.

    She mentioned the risk of Long Covid, specifically talking about how the risks to young adults, those aged less than 39, have not been given the weight that they should have had. She said that it is these people who will raise the children and keep the economy going, and great care must be taken not to handicap them with Long Covid. She mentioned at one point 'ever-lasting symptoms'.

    I think it's the first time I've seen someone in her sort of position being so explicit about the risk of Long Covid. I think she could be a good person for Australian advocates to be in touch with. @Simone
     
    Hutan, Jul 8, 2021
    #40
    Midnattsol, rvallee, shak8 and 6 others like this.
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