Healthwise to "retire the GET/CBT topics" from medical content

If you are on Twitter, consider thanking @Healthwise for removing Graded Exercise Therapy and Cognitive Behavioral Therapy from their ME/CFS content (and the Kaiser Permanente website).

Alternatively, you can contact Healthwise on this webpage:
https://www.healthwise.org/contact.aspx

 

Fantastic!

 

Before thanking anyone else I'd like to thank a certain very determined dog here, and very loudly, too: THANK YOU @Webdog !!!

 

@Webdog well done!! Your name makes me giggle...great work!!

 

This is a big win for Kaiser Permanente members with ME/CFS. But Kaiser Permanente physicians aren't bound by what the website (Healthwise) says, and can still prescribe as they see fit. And, as many have pointed out, although GET/CBT are gone, the website ME/CFS content still needs more changes.

However, much is happening behind the scenes to ensure all Kaiser Permenante physicians will provide better ME/CFS diagnosis and care in the near future. And the Winter 2019 Healthwise update should bring more changes to the Kaiser Permanente website.

Kaiser Permanente has roughly 13 million members.

A sincere thank you to @Keebird, @Medfeb, and "@Learner1 from PR" for their help and contributions.

 

Great work Webdog!

From Solve's latest webinar they hope to work at educating healthcare providers and getting them involved in their registry and biobank and have apparently already started talking to Kaiser.
Slide showing their plans

Skip to about 38 mins in to listen to that bit here.

Code:

https://www.facebook.com/SolveMECFSInitiative/videos/2194607644084672/

 

Good to hear. Getting Kaiser Permanente's Division of Research interested in ME/CFS has been a long term goal for me. Kaiser has the 2nd largest biobank in the US, as well as the ability to do large scale longitudinal studies in diseases.

In past contacts with KP's Division of Research, they weren't interested in studying ME/CFS, but were surprised to hear about its severity and prevalence.

Edit: I've been thinking about the feasibility of an LDN study for KP's Division of Research.

 

I am really excited that Solve is talking with Kaiser Permanente. I truly think this is an approach outside of government that could speed up certain areas of research given the NIH is dragging their feet.

Patients just want better clinical care and more effective treatments providing better quality of life and better health outcomes. Kaiser Permanente wants this too (don't laugh!). Treating ME/CFS as an actual serious biomedical illness is a major cultural shift in medicine. I've been reassured by a doctor I trust that such paradigm changes always take time.

Would also like to see Solve working with the new Kaiser Permanente School of Medicine. They probably already are.

 

@Webdog This is fantastic. Would not have happened without your persistence. And it sounds promising for future improvements in care.

 

Great result for all your hard work @Webdog

 

Nice work @Webdog

 

Thanks for letting me borrow your cape!

 

Terrific work, @Webdog!

 

As a member of KP in Washington state, I'm curious to know what is "happening behind the scenes" if you are able to share. If you can't say publicly, can you send me a PM? Thanks.

 

The orphaned GET/CBT pages have been scheduled to be removed in a special January 2019 Healthwise content update (seems to be an interim update between the usual fall and winter updates). They remain on the website only because of a technical error with the content management system.

Note that these pages only show up in searches and are not linked from the current ME/CFS content. Any Kaiser Permanente member can file a complaint with Member Services requesting that the GET/CBT pages are removed as quickly as possible. I don't think it will speed up the process, but it can't hurt and you will get some kind of response with 30 days.

• https://healthy.kaiserpermanente.or...ing-graded-exercise-to-get-more-energy.zx1021
• https://healthy.kaiserpermanente.or...atigue-syndrome-using-healthy-thinking.zx1040

Edit: I've been promised an estimated date soon. Jan 8.

 

The orphaned GET/CBT pages mistakenly left on the Kaiser Permanente website are scheduled to be deleted tomorrow (Tuesday, Jan 8). That's according to Healthwise, as Kaiser Permanente won't say anything for 30 days.

As noted in previous post, the URLs are:

• https://healthy.kaiserpermanente.or...ing-graded-exercise-to-get-more-energy.zx1021
• https://healthy.kaiserpermanente.or...atigue-syndrome-using-healthy-thinking.zx1040

Also, I've had it pointed out to me there is another problematic old page that should have been deleted. I've requested it be included in the site maintenance tomorrow, but never got a reply. Here's the link to that page:

• https://healthy.kaiserpermanente.or...ZhdfRg!!/dl5/d5/L2dBISEvZ0FBIS9nQSEh/#aa25954

Hopefully after tomorrow, none of these links will work.

Edit: For posterity, I just archived all 3 of these URLs to the Wayback Machine.

 

I pinged Healthwise, and the "product release" update is scheduled for tonight (Jan 8). The pages have been hard coded into the update to ensure they get removed. So everything looks on track.

Still no word about the 3rd link, however. But it's not as important as it's much less visible in searches. If this page does still exist tomorrow, I'll remind Healthwise so they can delete it in the following update.