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Healthwise to "retire the GET/CBT topics" from medical content

Discussion in 'Advocacy Projects and Campaigns' started by Webdog, Apr 11, 2018.

  1. Sean

    Sean Senior Member (Voting Rights)

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    Propaganda.
     
  2. Allele

    Allele Senior Member (Voting Rights)

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    "change the behaviors that cause these chronic diseases"

    Well, that's a presumptive mouthful right there.
     
  3. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    I wonder about these figures they quote. I suspect that they all boil down to

    1) obesity and the health related conditions (heart disease, type 2 diabetes etc)
    2) some studies showing that we don’t get enough exercise

    Now ...behaviour is a broad term ...if it’s down to a patients choice then does everyone need CBT?

    Personally I think not ...this is just a bullshit excuse for treating patients with disdain.....clearer more trustworthy sources of advice would be better or free membership to slimming world or discounts off a gym or any other financial investment programmes might be a better way of helping patients with their “lifestyle problems” and probably more effective and cheaper to administer than some gravy train created by a load of BPS types.
     
  4. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    @Webdog is this kind of thinking directed at other chronic conditions like lupus and MS. Or is it just ME/CFS? Sorry haven't the energy to read thru it all. Feels like we always get the crap!!
     
    MEMarge and Invisible Woman like this.
  5. Webdog

    Webdog Senior Member (Voting Rights)

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    I think the eBrief mentions type 2 diabetes, heart disease, cancer, and COPD but implies that changing patient behavior improves patient satisfaction, clinical outcomes and healthcare costs for chronic conditions in general.

    I see no differentiation between chronic illness that is linked to behavioral issues and chronic illness which isn't. It's a general behavioral approach for all chronic conditions. This one-size-fits-all approach concerns me, as behavioral interventions (GET) have caused ME/CFS patients so much harm.
     
    Simone, MEMarge, Sunshine3 and 3 others like this.
  6. Webdog

    Webdog Senior Member (Voting Rights)

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    Latest from Healthwise on their Fall 2018 update, which removes GET and CBT from the ME/CFS content:
    If all goes according to plan, in about 6 weeks the Kaiser Permanente website will no longer recommend Graded Exercise Therapy and Cognitive Behavioral Therapy for ME/CFS.
     
    Simone, GodGenghis, TiredSam and 38 others like this.
  7. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Amazing work @Webdog
     
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  8. dave30th

    dave30th Senior Member (Voting Rights)

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    wow
    wow! congratulations!
     
    Simone, Daisymay, Webdog and 16 others like this.
  9. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    Dog with a bone :thumbup:
     
  10. Sean

    Sean Senior Member (Voting Rights)

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    Nice work. :thumbup:
     
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  11. andypants

    andypants Senior Member (Voting Rights)

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    Well done!!! :)
     
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  12. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Dogged :D
     
  13. ahimsa

    ahimsa Senior Member (Voting Rights)

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    All dogs are good dogs but @Webdog is amazing! :trophy@:thumbup:
     
  14. Webdog

    Webdog Senior Member (Voting Rights)

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    Last edited: Nov 15, 2018
  15. Webdog

    Webdog Senior Member (Voting Rights)

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    The Healthwise update on the Kaiser Permanente website is running late for some reason. I'm investigating as to why and trying to get a firm date, but it could just be the holidays.
     
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  16. Webdog

    Webdog Senior Member (Voting Rights)

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    Kaiser Permanente has interpreted my repeated requests for info about the delayed Healthwise update as a complaint. All good. I now have a tracking number and people looking into the issue. Healthwise has also promised to try to get an estimated release date for me as well.
     
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  17. Webdog

    Webdog Senior Member (Voting Rights)

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    The Healthwise Fall 2018 update still hasn't made it onto the Kaiser Permanente website. No one seems to know why it's taking so long. But it appears it's not just an ME/CFS issue... none of the Fall 2018 Healthwise content has appeared yet on the Kaiser Permanente website.

    Healthwise is trying to get a response from Kaiser Permanente. Kaiser Permanente has promised to respond to my complaint by Dec 13.

    On the plus side, Healthwise told me the changes to the section on support groups are included in the Fall 2018 content. This was originally scheduled for the Winter 2019 release. Healthwise should be removing warnings about joining certain types of ME/CFS support groups. - Edit: this didn't happen and I will ask why once other issues are resolved.
     
    Last edited: Dec 7, 2018
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  18. Webdog

    Webdog Senior Member (Voting Rights)

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    Graded Exercise Therapy and Cognitive Behavioral Therapy are no longer recommended in the Healthwise content for ME/CFS on the Kaiser Permanente website. Yay!

    See for yourself:

    https://healthy.kaiserpermanente.or...halomyelitis-chronic-fatigue-syndrome.hw32907

    That said, 3 issues remain that I'm working with Healthwise and Kaiser Permanente to resolve:
     
  19. ahimsa

    ahimsa Senior Member (Voting Rights)

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  20. Webdog

    Webdog Senior Member (Voting Rights)

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    Latest on my 3 remaining issues:
    • Regarding the revision date, Healthwise says June 3, 2018 was the last time this content was medically reviewed, and that is why the revision review date didn't change although the content did. :cookie:
    • The regional Kaiser Washington website apparently has to be manually updated, and Healthwise is now working with Kaiser to get them to switch over to automatic updates. :nerd:
    • Healthwise says the orphaned GET and CBT pages were supposed to have been deleted and they are looking into this. :cautious:
     
    Last edited: Dec 7, 2018

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