@Sly Saint its still worth discussing the charity/organisation aspect though. I don’t object to a merger as long as the new organisation is properly constituted to represent members by having voting rights and set up so the majority of trustees must be people with a diagnosis of ME/CFS. The organisation would have to use ways of working that enable participation of people with ME. Part of its constitution would be to act as a role model on engaging people with ME. I think #MEAction has some more up to date practices that would be a good starting point. ME Association has the knowledge around being a charity with voting rights. ETA I think there are examples in the UK where disabled people have overturned the paternalistic approach of charities supposedly speaking for them. Didn’t this happen with ME Association. But I think predecessors to Disability Rights UK too which is a much bigger organisation.