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media coverage

  1. SNT Gatchaman
    Thread

    Different patterns of persistent somatic symptoms after COVID-19 reported by the Dutch media and the general population, 2024, Ballering et al.

    Different patterns of persistent somatic symptoms after COVID-19 reported by the Dutch media and the general population Ballering; Plug; van Zon;...
    Thread by: SNT Gatchaman, Mar 29, 2025, 9 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Yann04
    Thread

    Media Opportunities

    A thread for opportunities to get your story (and ME / Long COVID) featured in the media, that don’t quite deserve their own threads.
    Thread by: Yann04, Feb 2, 2025, 4 replies, in forum: Advocacy Action Alerts
  3. Braganca
    Thread

    Tell the New York Times about ME

    https://www.nytimes.com/2024/02/01/well/chronic-disease-callout.html?smid=nytcore-ios-share&referringSource=articleShare From the article: I’m...
    Thread by: Braganca, Feb 2, 2024, 2 replies, in forum: Advocacy Action Alerts
  4. Sean
    Thread

    People with invisible disabilities like me are routinely disbelieved — and it can have long-lasting effects (mentions ME)

    People with invisible disabilities like me are routinely disbelieved — and it can have long-lasting effects...
    Thread by: Sean, Nov 30, 2022, 7 replies, in forum: General ME/CFS news
  5. ahimsa
    Thread

    “Science Journalism & Disability” Pop-up Panel & Discussion on Tuesday, November 15

    [I didn't know where to put this - please move if needed] Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is...
    Thread by: ahimsa, Nov 13, 2022, 0 replies, in forum: Research methodology news and research
  6. Sly Saint
    Thread

    “That's why they don't believe you, you don't look sick!”: Creating Medical Credibility and patient visibility for ME/CFS through Television

    by Giada Da Ros Abstract: Since the end of the 20th century, the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community tried to create...
    Thread by: Sly Saint, Jul 4, 2020, 8 replies, in forum: General ME/CFS news
  7. Andy
    Thread

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Introduction I started writing this blog in 2012. For several years since then, I have kept starting drafts on a particular topic, only to then...
    Thread by: Andy, Jan 7, 2019, 181 replies, in forum: Advocacy Projects and Campaigns
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