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Page 15 of 17
  1. Tom Kindlon
    Thread

    House of Commons Library: Myalgic Encephalomyelitis treatment and research. Debate pack. (June 2018)

    http://researchbriefings.parliament.uk/ResearchBriefing/Summary/CDP-2018-0155#fullreport [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, Jun 20, 2018, 7 replies, in forum: General ME/CFS news
  2. Sly Saint
    Thread

    Media articles on Westminster debate June 2018

    For years dismissed as 'laziness', but now cruel disease is finally getting attention it deserves Rochdale News: "Now a three-hour Westminster...
    Thread by: Sly Saint, Jun 20, 2018, 32 replies, in forum: Advocacy Projects and Campaigns
  3. Indigophoton
    Thread

    The Canary: Esther McVey and her department are now totally out of control

    Another article by Steve Topple using ME and PACE as illustrative of current government policy, Last year, the UN accused the Department for Work...
    Thread by: Indigophoton, Jun 19, 2018, 15 replies, in forum: Other health news and research
  4. Andy
    Thread

    Consultation on the update to Developing NICE guidelines: the manual

    As a NICE stakeholder, S4ME can have input on this update process. I can't imagine that there is much, if any, interest here, we've got lots of...
    Thread by: Andy, Apr 4, 2018, 4 replies, in forum: Other guidelines
  5. Andy
    Thread

    NICE guideline on ME/CFS: diagnosis and management: draft scope consultation period and lay member recruitment period

    Communication just received from NICE Please be advised that the draft scope consultation period for this NICE guideline will now run for an...
    Thread by: Andy, Jun 11, 2018, 1 replies, in forum: General ME/CFS news
  6. Sasha
    Thread

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Well done to Carol for getting this done. Details here: https://www.meaction.net/2018/06/06/uk-secures-westminster-hall-debate-on-me/ I don't...
    Thread by: Sasha, Jun 6, 2018, 422 replies, in forum: General ME/CFS news
  7. Sasha
    Thread

    UK Tues 5 June 2:30 pm - live on Parliament TV - Carol Monaghan to ask for debate on ME

    Only just seen this: [MEDIA] Edit: Here's a link to it online (it was earlier this afternoon), which starts just as the discussion begins:...
    Thread by: Sasha, Jun 5, 2018, 29 replies, in forum: General ME/CFS news
  8. Sly Saint
    Thread

    The great QOF (Quality and Outcomes Framework) fiasco - UK

    " QOF Fiasco 2: ’Immoral’ refusal to learn from mistakes By Jerome Burne Last week I wrote about the great QOF (Quality and Outcomes Framework)...
    Thread by: Sly Saint, May 31, 2018, 1 replies, in forum: Research methodology news and research
  9. Sly Saint
    Thread

    Patients with Chronic Fatigue Syndrome needed for new study - Keele University UK

    " Posted on 17 May 2018 Researchers at Keele University are looking for people with Chronic Fatigue Syndrome (CFS) or Myalgic Encephalomyelitis...
    Thread by: Sly Saint, May 18, 2018, 27 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Sly Saint
    Thread

    MP Nicky Morgan to raise awareness of ME illness

    " LOUGHBOROUGH MP Nicky Morgan has said she will work in Parliament to raise awareness of the devastating illness, ME. She spoke after joining...
    Thread by: Sly Saint, May 10, 2018, 12 replies, in forum: General ME/CFS news
  11. Cinders66
    Thread

    Department of health quoting £3.5m investment in CFS/ME to look at new approaches to treatment - misleads public

    hi I've just been listening to radio Solent at 7:40am BBC local radio. Great advocacy by local lady regarding millions missing but the main...
    Thread by: Cinders66, May 10, 2018, 13 replies, in forum: General Advocacy Discussions
  12. Sly Saint
    Thread

    Shropshire ME Group Conference 26th May 2018

    [ATTACH]
    Thread by: Sly Saint, Apr 27, 2018, 0 replies, in forum: Advocacy Projects and Campaigns
  13. Liv aka Mrs Sowester
    Thread

    inTune Choir is Going Blue for ME Awareness Day at Wheal Martyn, St Austell, Cornwall 3pm on Saturday May 12th

    [MEDIA] We've organised a performance to raise awareness and funds for ME at Wheal Martyn, China Clay Museum, St Austell, Cornwall. We hope that...
    Thread by: Liv aka Mrs Sowester, Apr 25, 2018, 20 replies, in forum: Advocacy Projects and Campaigns
  14. Indigophoton
    Thread

    UK: Disabled people lose legal aid in 99% of benefits disputes

    Speaks for itself really, appalling: Official figures show that cuts have caused a massive drop in claimants granted help for welfare battles....
    Thread by: Indigophoton, Apr 17, 2018, 1 replies, in forum: Other health news and research
  15. Sly Saint
    Thread

    Lyme disease : article in Daily Mirror UK

    " What is Lyme disease? How ticks spread the disease, and the symptoms to watch out for Natasha Holt Lyme disease is an infectious illness spread...
    Thread by: Sly Saint, Apr 12, 2018, 0 replies, in forum: Other health news and research
  16. Sly Saint
    Thread

    #MillionsMissing 2018 UK

    I know there are already a couple of threads on #Millions Missing for the UK (ie London, Southampton) but as they are all likely to be on the same...
    Thread by: Sly Saint, Apr 8, 2018, 9 replies, in forum: Advocacy Projects and Campaigns
  17. Sbag
    Thread

    Chief Medical Officer's Working Group on CFS/ME

    I think all of the reports from the Chief Medical Officer's Working Group on CFS/ME are available online in various places. Do people already...
    Thread by: Sbag, Apr 5, 2018, 1 replies, in forum: General ME/CFS news
  18. Sbag
    Thread

    Shropshire Star article

    News article from the Shropshire Star A nice story but my bolded bits stand out to me as refreshing change in how ME is reported! "The...
    Thread by: Sbag, Mar 31, 2018, 0 replies, in forum: General ME/CFS news
  19. Sly Saint
    Thread

    Wesselys Mental Health review could also replace Mental Capacity Act

    In light of recent events I thought this was important. " In England and Wales, you can be detained in hospital against your will if you are...
    Thread by: Sly Saint, Mar 20, 2018, 104 replies, in forum: Other health news and research
  20. Sly Saint
    Thread

    Hidden disease in the spot light in York: more about Myalgic Encephalomyelitis (M.E.)

    "M.E awareness: Liberal Democrats look to kick-start campaign on the hidden disease In a motion to Council on the 22nd March, Liberal Democrat...
    Thread by: Sly Saint, Mar 17, 2018, 7 replies, in forum: General ME/CFS news
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