united kingdom

  1. Arnie Pye

    Very interesting article on reducing life expectancy in the UK

    Article continues here : http://www.nzherald.co.nz/world/news/article.cfm?c_id=2&objectid=11983125
  2. Liv aka Mrs Sowester

    PIP claimants - email your experiences of the process to Laura Pidcock MP before Westminster debate next Wednesday

    Please take a moment to email Laura Pidcock MP at laura.pidcock.mp@parliament.uk with your experiences of claiming PIP before next Wednesday 31st January. I believe the system is cruel and short sighted, making sick people worse will inevitably lead to higher costs on the social care, health...
  3. Sly Saint

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    Joint Commissioning Panel for Mental Health Guidance for commissioners of services for people with medically unexplained symptoms pge 6 Functional somatic syndromes by specialty Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis https://www.jcpmh.info/wp-content/uploads/jcpmh-mus-guide.pdf
  4. Keela Too

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    I've put both a report of my impressions of the meeting, and my list of points to raise, into this blog post. http://sallyjustme.blogspot.co.uk/2018/01/nice-stakeholder-meeting-for-cg53.html Both items also exist as "Notes" on my Facebook wall..... And now I need to sleep... xx
  5. Dolphin

    UK: NRS Healthcare - information page on ME

    https://www.nrshealthcare.co.uk/articles/condition/chronic-fatigue-syndrome
  6. Sly Saint

    A Disabled Community Abandoned: The ME/CFS Public Health Crisis In Britain

    This blog/ article has a few red flags..........maybe the writer should have done a bit more research or is it deliberate? Starts off OK ish..... "British people suffering from Myalgic Encephalitis otherwise known as ME or Chronic Fatigue syndrome (CFS) have suffered from over 30 years of...
  7. Sly Saint

    EBV, Glandular fever (infectious mononucleosis)

    As it seems a lot of people go on to develop ME following a virus (children in partic seem particularly susceptible after mono,EBV), I thought I'd take a look at the NICE guidelines for EBV. " Management How should I manage a person with suspected or confirmed glandular fever? Give information...
  8. Esther12

    Chronic fatigue syndrome (CFS/ME) symptom-based phenotypes & 1-year treatment outcomes in two clinical cohorts of adult patients.., 2017, Collin et al

    http://www.jpsychores.com/article/S0022-3999(17)30841-3/pdf posted by @Sly Saint in another thread, so it's getting it's own thread here.
  9. Gecko

    United Kingdom: Sheffield ME & Fibromyalgia Group News

    The below is from Sheffield ME & Fibromyalgia Group. Would be grateful if people could distribute around any Sheffield related networks and/or share with people who may be interested in applying. I'll attach as a word doc too in case you want to download and send that way. Thanks! Job Vacancies...
  10. Sasha

    4 Dec | Oral evidence to UK Commons Select Committee on research integrity - live on Parliament TV?

    https://twitter.com/CommonsSTC/status/936602832593149952 https://twitter.com/ivanoransky/status/936231793786793985 ParliamentLive TV (not sure if that's what IO means) is online here: http://www.parliamentlive.tv/Commons and on actual TV here: Sky (UK only): Channel 504 Virgin Media (UK)...
  11. N

    UK: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis National Outcomes Database

    I had no idea that a 'Chronic Fatigue Syndrome/Myalgic Encephalomyelitis National Outcomes Database' existed. Does anyone know when it started and when it stopped?
  12. Sly Saint

    Health Secretary Jeremy Hunt taken down by Ralf Little

    "Health Secretary Jeremy Hunt has been brutally taken down by Ralf Small in 42 tweets – after he challenged the actor to a ‘double-dare’. Small accused Hunt of lying on Twitter about claims he masterminded the ‘largest expansion of mental health provision in Europe’ on the BBC’s Andrew Marr...
  13. MeSci

    Action for ME raises concerns in Scottish Parliament

    Source: Action for ME Date: November 14, 2017 URL: https://www.actionforme.org.uk/news/raising-concerns-about-me-in-scottish-parliament/ Raising concerns about M.E. in Scottish Parliament -------------------------------------------------- Action for M.E. has raised concerns about the lack of...
  14. Andy

    Join the Chronic Illness Inclusion Project focus group - UK only

    From an email The Chronic Illness Inclusion Project can also be found at http://inclusionproject.org.uk/ and https://www.facebook.com/ChronicInclude/
  15. Andy

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    Deadline of November 10th 2017 to submit your input to the parliamentary inquiry on PIP and ESA http://www.parliament.uk/business/committees/committees-a-z/commons-select/work-and-pensions-committee/inquiries/parliament-2017/pip-esa-assessments-17-19/
  16. Cheshire

    Opinion on "ME/CFS Service", UK

    https://www.careopinion.org.uk/opinions/422141
  17. Sly Saint

    UK House of Lords/ House of Commons Questions

    Moderator note - three threads on questions in the UK House of Lords and House of Commons have been merged at the request of the original posters "The Countess of Mar Deputy Chairman of Committees, Deputy Speaker (Lords) To ask Her Majesty's Government whether the Department of Health...
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