Please take a moment to email Laura Pidcock MP at laura.pidcock.mp@parliament.uk with your experiences of claiming PIP before next Wednesday 31st January.
I believe the system is cruel and short sighted, making sick people worse will inevitably lead to higher costs on the social care, health...
Joint Commissioning Panel
for Mental Health
Guidance for commissioners of
services for people with
medically unexplained symptoms
pge 6 Functional somatic syndromes by specialty
Chronic Fatigue Syndrome/
Myalgic Encephalomyelitis
https://www.jcpmh.info/wp-content/uploads/jcpmh-mus-guide.pdf
I've put both a report of my impressions of the meeting, and my list of points to raise, into this blog post.
http://sallyjustme.blogspot.co.uk/2018/01/nice-stakeholder-meeting-for-cg53.html
Both items also exist as "Notes" on my Facebook wall.....
And now I need to sleep... xx
This blog/ article has a few red flags..........maybe the writer should have done a bit more research or is it deliberate?
Starts off OK ish.....
"British people suffering from Myalgic Encephalitis otherwise known as ME or Chronic Fatigue syndrome (CFS) have suffered from over 30 years of...
As it seems a lot of people go on to develop ME following a virus (children in partic seem particularly susceptible after mono,EBV), I thought I'd take a look at the NICE guidelines for EBV.
"
Management
How should I manage a person with suspected or confirmed glandular fever?
Give information...
The below is from Sheffield ME & Fibromyalgia Group. Would be grateful if people could distribute around any Sheffield related networks and/or share with people who may be interested in applying. I'll attach as a word doc too in case you want to download and send that way. Thanks!
Job Vacancies...
agm
carding
charity
cort johnson
gut
gut microbiome
jen brea
job
me & fibro group
nigel speight
pip
quadram institute
ron davis
sheffield
tymes trust
uk me/cfs biobank
unitedkingdom
unrest
video
young people
https://twitter.com/CommonsSTC/status/936602832593149952
https://twitter.com/ivanoransky/status/936231793786793985
ParliamentLive TV (not sure if that's what IO means) is online here: http://www.parliamentlive.tv/Commons
and on actual TV here:
Sky (UK only): Channel 504
Virgin Media (UK)...
I had no idea that a 'Chronic Fatigue Syndrome/Myalgic Encephalomyelitis National Outcomes Database' existed.
Does anyone know when it started and when it stopped?
"Health Secretary Jeremy Hunt has been brutally taken down by Ralf Small in 42 tweets – after he challenged the actor to a ‘double-dare’.
Small accused Hunt of lying on Twitter about claims he masterminded the ‘largest expansion of mental health provision in Europe’ on the BBC’s Andrew Marr...
Source: Action for ME
Date: November 14, 2017
URL:
https://www.actionforme.org.uk/news/raising-concerns-about-me-in-scottish-parliament/
Raising concerns about M.E. in Scottish Parliament
--------------------------------------------------
Action for M.E. has raised concerns about the lack of...
Deadline of November 10th 2017 to submit your input to the parliamentary inquiry on PIP and ESA
http://www.parliament.uk/business/committees/committees-a-z/commons-select/work-and-pensions-committee/inquiries/parliament-2017/pip-esa-assessments-17-19/
Moderator note - three threads on questions in the UK House of Lords and House of Commons have been merged at the request of the original posters
"The Countess of Mar Deputy Chairman of Committees, Deputy Speaker (Lords)
To ask Her Majesty's Government whether the Department of Health...
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