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United Kingdom: Sheffield ME & Fibromyalgia Group News

Discussion in 'News from organisations' started by Gecko, Oct 9, 2018.

  1. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
    The below is from Sheffield ME & Fibromyalgia Group. Would be grateful if people could distribute around any Sheffield related networks and/or share with people who may be interested in applying. I'll attach as a word doc too in case you want to download and send that way. Thanks!

    Job Vacancies at Sheffield ME & Fibromyalgia Group
    We are excited to be recruiting 3 new members of staff to join our team. They will significantly expand the service we are able to offer members and reach out to many more people living with the debilitating chronic illnesses myalgic encephalomyelitis (ME) and fibromyalgia in South Yorkshire.

    Information on each role is below including links to the adverts, job description and person specification, and application form where applicable. Please distribute widely across your networks.

    Activities Coordinator
    A part-time Activities Coordinator wanted to support and enable those suffering with ME/CFS or Fibromyalgia to join in activities and reduce isolation.

    Sessional. £13 per hour, 13 hours/week until Feb 28th 2019.

    · Job Advert here
    · Job Description & Person Specification here
    · Application form here

    To apply, please email the application form, including the supporting statement to applications@sheffieldmegroup.co.uk by noon Monday 15th October 2018.  Please ensure you address the requirements in the person specification.

    Information Officer
    Gather, develop, and design high quality information using a range of media to disseminate to and engage with people with ME and fibromyalgia in their communities and online.

    £21,000 pro rata. 30 hours/week. 20 days holiday + statutory holiday pro rata. Pension entitlement.

    · Job Advert here
    · Job Description & Person Specification here

    To apply, please download the job description and person specification and send your CV along with supporting statement (maximum 2 sides of A4, ensuring you address the requirements in the person specification) to applications@sheffieldmegroup.co.uk by midnight Monday 22nd October 2018.

    Benefits Adviser
    The postholder will work to ensure those affected by myalgic encephalomyelitis or fibromyalgia can fully access the benefits they are entitled to, through tailored welfare benefits advice and support.

    £21,000 pro rata. 18 hours/week. 20 days holiday + statutory holiday pro rata. Pension entitlement.

    · Job Advert here
    · Job Description & Person Specification here

    To apply, please download the job description and person specification and send your CV along with supporting statement (maximum 2 sides of A4, ensuring you address the requirements in the person specification) to applications@sheffieldmegroup.co.uk by midnight Monday 22nd October 2018.

    Sheffield ME and Fibromyalgia Group is an Equal Opportunities Employer and welcomes applications from all sections of the community. Post-holders will undergo a DBS check. Data protection: please note that when applying your data will be held in accordance with our recruitment privacy policy. Registered Charity 1095416.
     

    Attached Files:

    andypants, JohnM, Trish and 4 others like this.
  2. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
    Just boosting this. Deadline for the activities coordinator role is this coming Monday, 15th.
     
    andypants, adambeyoncelowe and Trish like this.
  3. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    10,237
    Location:
    UK West Midlands
    Hi @Gecko is this on a website somewhere I could link to on Facebook I want to share with local group further south in case they know anyone who might be able to get involved
     
    andypants likes this.
  4. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
  5. MEMarge

    MEMarge Senior Member (Voting Rights)

    Messages:
    2,536
    Location:
    UK
    Would MEA put a link to this on their website?
     
    Gecko and andypants like this.
  6. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
    @MEMarge thanks for the suggestion and sorry for the slow reply. I think we're aiming a bit more at Sheffield/South Yorkshire networks and MEA are more national. Charles Shepherd is at the groups conference today though so I'll get someone to ask him. Still predominantly housebound so can't be there to meet him myself. Admittedly I've left this a bit late now as deadline is Monday but we'll see.
     
    andypants, MEMarge and Trish like this.
  7. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
    Bit late posting this as so much has been going on but...

    Sheffield ME & Fibromyalgia Group AGM with 3 Speakers from the UK ME Biobank

    2-5pm Thursday 23rd May.

    Anyone welcome to join us.
    Quaker Meeting House, 10 St James' St, Sheffield S1 2EW, UK

    Livestreamed to our Facebook page from 2:30pm Thurs 23rd May here: https://www.facebook.com/SheffieldMEandFibromyalgiaGroup/


    Website event page here: https://www.sheffieldmegroup.co.uk/events-1/agm

    I realise S4ME are already doing a Q&A session with the ME Biobank team, but if there are questions you'd particularly like to ask the above members please do drop them in the comments below and we'll see what can be done.

    Should be a great afternoon!
     
    ukxmrv, MEMarge, JaneL and 14 others like this.
  8. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
    Skycloud, MEMarge, Wonko and 2 others like this.
  9. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
    Andy and Wonko like this.
  10. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    6,088
    Location:
    UK
    Sorry but i'll have to wait for the youtube version, as the facebook one keeps stopping.

    Sounded interesting but I'm out of patience with constantly refreshing.
     
    Andy and Gecko like this.
  11. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
    Same, we'll get it up on YouTube afterwards, not sure what's gone wrong :(
     
    Skycloud, MEMarge, Trish and 3 others like this.
  12. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    7,808
    Location:
    UK
    "
    You can join Prof Carding's talk through Zoom, or watch it livestreamed to our Facebook page, and a recording will be uploaded to YouTube afterwards.This is event is online only.

    2:30pm Welcome and Professor Carding

    3:30 Q&A

    4:00pm Close

    Join us on Zoom

    https://zoom.us/j/94057622868?pwd=b0xyeWxCcGtXZ1l6b0dkbVNpM3JHdz09

    Meeting ID: 940 5762 2868
    Password: 782865"

    details here:
    https://www.eventbrite.com/e/gut-mi...-simon-carding-tickets-95566039597?aff=efbneb
     
  14. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
    Cheers for posting this @Slysaint - I had been meaning to!
     
  15. Trish

    Trish Moderator Staff Member

    Messages:
    42,107
    Location:
    UK
    Will this be available to watch afterwards?
     
  16. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    2,865
    The Sheffield events usually are, I watched David Tuller’s recent (or a life time ago) MUS talk after the event.

    [Added - Note - though I could not find it archived on their website, @dave30th ’s talk is still on their Facebook page
    ]
     
    Last edited: Apr 22, 2020
  17. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
    Both on Facebook and YouTube yes :)
     
  18. Gecko

    Gecko Senior Member (Voting Rights)

    Messages:
    258
    Location:
    England
  19. Grigor

    Grigor Senior Member (Voting Rights)

    Messages:
    382
    I could only listen to him a few seconds but this man is amazing! I sincerely hope this trial will work out for us!! Hopeful!
     
  20. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

    Messages:
    984
    Location:
    UK
    Many thanks to Simon and to the organisers.

    A couple of comments/questions in addition to those that I asked, and were answered, on Zoom.

    1. Has what is listed in the slide below under “what we have discovered so far” been published in peer-reviewed journals? How much has been replicated?

    EDDA8E94-4D8D-4E90-91D8-2A6030F5B89E.jpeg


    2. Prof Carding talked about the importance of researching severe ME and the slide above refers to differences in the microbiome “signatures” between severe and mild/moderate ME. However, I note that the proposed FMT trial does not appear to include people with severe ME.

    ——

    I hope there will be more of these Zoom presentations with other ME researchers in future. Excellent way for housebound patients to be able to engage. And much cheaper and more environmentally friendly than flying scientists around the world to attend conferences/symposiums. Maybe something S4ME could try to facilitate? @Andy
     

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