United Kingdom: Sheffield ME & Fibromyalgia Group News

https://www.sheffieldmegroup.co.uk/post/meet-cort-johnson-of-health-rising

Register here to join the event: bit.ly/CortJohnson_SMEFG

As always the recording will be available to view on Facebook and YouTube afterwards, and will be broadcast live to Facebook.

 

Live from the desert!

 

https://www.youtube.com/watch?v=YIuHE27eCPU

- I have spotted Cort Johnson who has changed his identity and is now Tyrrell's Classic Workshop.

 

"ONLINE TALK with Prof Ron Davis: Progress and Challenges for a ME/CFS Diagnostic

We are thrilled to be hosting a talk and Q&A session with Prof Ron Davis on the progress and challenges for a Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) diagnostic. What a prestigious guest to celebrate the 20th anniversary of our charity!

This event is free and open to all."

Registration and further details at https://www.sheffieldmegroup.co.uk/...ogress-and-challenges-for-a-me-cfs-diagnostic

 

Anyone watch this?

 

New to me was the findings of high phenylalanine and low BH4. Ron also said they have other indications of low dopamine. Going to add Vitamin C/Folate to my supplement regimen to try and raise BH4

 

"This summer we're delighted to be partnered with Healthwatch Sheffield for their #SpeakUp! campaign - and it launches today!

1. What is #SpeakUp?

Each year, Healthwatch Sheffield works with local voluntary, community, and not-for-profit groups, to help them to reach out to the people they work with. Their aim is to help more people across the city to have their say about health and social care.

Last year they awarded small grants to 12 local organisations, which helped them to hear from over 790 people in Sheffield about the health and social care issues that were important to them.

This year Sheffield ME & Fibromyalgia Group were awarded a small grant to participate, so that we can capture the views and experiences of people in Sheffield with our conditions. Healthwatch Sheffield and SMEFG will write up the findings together, including recommendations for how services could improve, and make sure this is heard by decision-makers."

https://www.sheffieldmegroup.co.uk/post/speakup-blog

 

Recording of webinar: Working, or returning to work, with ME/CFS, fibromyalgia and/or long COVID

Sheffield ME & Fibromyalgia Group Facebook post:

Watch the replay on our website: https://www.sheffieldmegroup.co.uk/watch-previous-talks

Recently, Jon Dale, senior adviser at Sheffield Occupational Health Advisory Service - SOHAS, gave a presentation on the types of advice and support given to people who have ME/CFS, fibromyalgia and/or long COVID who are struggling to stay at work or return after a period of sickness absence.

Much of it will be relevant to people outside Sheffield as it talks about Access to Work and reasonable adjustments.

Local support available

You can find out more about the support available for people in Sheffield on the SOHAS website https://www.sohas.co.uk/ or call them on 0114 2755760. SOHAS Adviser appointments are available via some GP surgeries in Sheffield. Check with your GP surgery to see if they can refer you.

Unfortunately, we’re not aware of any similar services available elsewhere in South Yorkshire and North Derbyshire. If you have heard of or can recommend any similar free Occupational Health services in our area, please let us know as we’d like to share that with our members.
You can find out more about Access to Work and apply via the government website: https://www.gov.uk/access-to-work