symptoms

From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/ https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf

My thanks to rvallee for pointing out that "brain fog" has no medical name and therefore no proper, medical recognition. I seem to have internalized the fact so deeply that the obvious had escaped me. The "fog" has been, for me, as bad as the lead overalls. If I could just stay in but still...

Merged thread: 'Stock photos are terrible at depicting illness' http://www.slate.com/articles/health_and_science/medical_examiner/2017/11/stock_photos_are_terrible_at_depicting_mental_and_physical_illness.html They are particularly deplorable for ME... More threads on this topic Psychosocial...

https://sapc.ac.uk/conference/2017/abstract/effect-of-cbt-get-and-pacing-treatments-mecfs-symptoms-analysis-of-patient

I'm trying to track my activity & symptoms to see if i can pace a bit better after a recent unexpected deterioration. I know it will sound daft to non sufferersm but i cant remember them all - which is a symptom in itself. I know i have seen many lists of symptoms in the poosibility of ME after...

Unravelling intracellular immune dysfunctions in chronic fatigue syndrome: interactions between protein kinase R activity, RNase L cleavage and elastase activity, and their clinical relevance Mira Meeus 1, Jo Nijs, Neil McGregor, Romain Meeusen, Guy De Schutter, Steven Truijen, Marc Frémont...

I came across this question on Twitter, I think in the context of longcovid. For those of you that had a clear viral/infectious onset: Do your symptoms resemble the initial infection you had? For me, that's absolutely the case. If I had to choose a name for my illness that describes it the...

Barbara Stussman1*, Ashley Williams2, Joseph Snow3, Angelique Gavin4, Remle Scott1, Avindra Nath4 and Brian Walitt5 https://www.frontiersin.org/articles/10.3389/fneur.2020.01025/full

Factors Affecting the Characterization of Post-Exertional Malaise Derived from Patient Input https://digitalscholarship.unlv.edu/jhdrp/vol13/iss2/5/ (This would normally fit in research but is neither psychosocial nor biomedical, perhaps a category for research on clinical care is needed?)

Hi all, I'd like to share with you a new theoretical piece I've written with Tony Ward, and our terrific PhD student, Sam Clack (pdf attached). It is a pretty dense piece, about what symptoms are in psychiatry, and not of general relevance to MECFS. But I'd love your input on the bit I've...

The other day, my caree suggested that there might be a link between over-exertion (in this case, a phone conversation with a friend, I think) and excessive sweating. Has anyone else had any experience of this?

A note for any of us who notice cardiac symptoms being called out as 'serious' and caused by covid. It may be worth calling attentions to these symptoms being part of CFS too, and are another reason to suspect that the various experiences of the 'long tail' of covid may 'just' be CFS, and...

https://bmjopen.bmj.com/content/10/7/e035833.info eta:

Just wondering if that is something others experience as well? Has the effect of exertion on water balance or relevant hormones in ME/CFS ever been studied?

Moderator note: This post has been copied and following posts moved from this thread: Epidemiological and clinical factors associated with post-exertional malaise severity in patients with ME/CFS. Ghali et al. 2020 ____________________ PEM studies always catch my attention, especially ones...

Paywall, https://content.iospress.com/articles/work/wor203169 Sci hub, https://sci-hub.tw/10.3233/WOR-203169

Abstract only, https://www.medicaljournals.se/jrm/content/abstract/10.2340/16501977-2697 Note @PhysiosforME , one of interest to you?

Split from the Coronavirus Worldwide Spread and Control thread From the COVID-19 symptom tracker app: It shows the prominence of loss of smell. This is data from the UK. It looks like they’re using people who have been tested in this graph. https://covid.joinzoe.com/us Ive been recording...

https://link.springer.com/article/10.1186/s13223-020-0417-3

Moderator note: This post has been copied and following posts moved from this thread: Concerns about craniocervical instability surgery in ME/CFS __________________________ Not really clear on how credible this statement is, at least in terms of POTS. I thought there were tachacardia and...