symptoms

  1. Sly Saint

    'Heaviness' - could it be used as a measurement?

    At the other place I started a thread (Feeling very heavy - symptom that rarely gets mentioned) with this post: " I have come across anecdotal mention of this symptom but never seen it included in any diagnostic criteria I can remember. It is something that I regularly experience a lot...
  2. Andy

    Increased risk of chronic fatigue syndrome following burn injuries, 2018, Tsai et al

    Open access at https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-018-1713-2
    • Andy
    • Thread
    • 2018 burn me/cfs paper symptoms tsai
    • Replies: 12
    • Forum: ME/CFS research
  3. John Mac

    Prospective Biomarkers from Plasma Metabolomics of ME/CFS Implicate Redox Imbalance in Disease Symptomatology, 2018, Hanson et al

    https://www.mdpi.com/2218-1989/8/4/90
    • John Mac
    • Thread
    • 2018 biomarker maureen hanson me/cfs metabolism paper symptoms
    • Replies: 15
    • Forum: ME/CFS research
  4. Hoopoe

    Multiple Symptoms Study 3: pragmatic trial of a community based clinic for patients with persistent (medically unexplained) physical symptoms

    Chris Burton, who is on the NICE panel reviewing the ME/CFS guidelines, is behind this study apparently. Note that an earlier version used the term chronic fatigue syndrome instead of chronic fatigue. http://www.isrctn.com/editorial/retrieveFile/6b3d6b51-92b3-4825-89a8-9060bf0da471/35773...
  5. Andy

    Can a Chronic BPPV w/a History of Trauma be the Trigger of Symptoms in Vestibular Migraine, ME/CFS & Whiplash Associated Disorders?, 2018, Carsten

    Not at all sure of the value of this. Paywall at https://journals.lww.com/otology-neurotology/Abstract/publishahead/Can_a_Chronic_BPPV_With_a_History_of_Trauma_be_the.96598.aspx
    • Andy
    • Thread
    • 2018 carsten me/cfs migraine neurology paper psychosomatic medicine symptoms temporomandibular joint pain tinnitus trauma
    • Replies: 8
    • Forum: ME/CFS research
  6. JaimeS

    Issues w/nausea in PEM

    Once I get truly exhausted, my throat starts to hurt (whether or not I've been talking a lot). It starts to feel dry and my speaking grows hoarse. If I continue speaking (in a meeting, what-have-you) I start to feel like I'm going to throw up. Eventually it becomes overwhelming and I have to...
  7. Dolphin

    "Quality of Life of Patients with Chronic Fatigue Syndrome" (Van Heck & De Vries, 2002)

    2002 study that doesn't seem to have been cited very many times, most likely because of the journal it was published in, which was not PubMed-listed. https://www.tandfonline.com/doi/abs/10.1300/J092v10n01_03 Journal Journal of Chronic Fatigue Syndrome Volume 10, 2002 - Issue 1 Original...
    • Dolphin
    • Thread
    • 2002 de vries epidemiology me/cfs paper qol symptoms van heck
    • Replies: 1
    • Forum: ME/CFS research
  8. MeSci

    Appropriately and Accurately Assessing Symptoms in Patients with ME

    Source: Solve ME/CFS Initiative Date: September 13, 2018 Time: 15:00-16:00 UTC URL: https://register.gotowebinar.com/register/7863577812392103170 Appropriately and Accurately Assessing Symptoms in Patients with ME ---------------------------------------------------------- Join Leonard A...
    • MeSci
    • Thread
    • 2018 diagnosis me/cfs solve mecfs initiative symptoms video webinar
    • Replies: 8
    • Forum: General ME/CFS news
  9. Sly Saint

    Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in ME/CFS, 2018, Stevens et al

    Provisionally accepted. Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Staci Stevens1, Chris Snell1, Jared Stevens1, Betsy keller2 and J. Mark VanNess3* 1Workwell Foundation, United States 2Department of...
    • Sly Saint
    • Thread
    • 2018 cpet exercise exercise physiology mark vanness me/cfs paper pem stevens symptoms workwell
    • Replies: 20
    • Forum: ME/CFS research
  10. Hoopoe

    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    Background and Aim The clinical association between dry eye syndrome (DES) and chronic fatigue syndrome (CFS) remain unclear with less evidences. We aimed to investigate the relationship between CFS and DES using a national insurance and prospective cohort study. Methods Data from the...
    • Hoopoe
    • Thread
    • 2018 dry eye syndrome me/cfs paper symptoms taiwan
    • Replies: 22
    • Forum: ME/CFS research
  11. leokitten

    Poll: Do your symptoms improve when you fast for 1-2 days?

    I purposely picked 1-2 days as a sweet spot educated guess. Too little time fasting might not be enough time to see symptoms improve, too much time fasting might cause ME symptoms to get worse.
  12. leokitten

    Is PEM a crash? Is a crash PEM? Semantically distinct? Or distinct phenomena?

    My question really is about the semantics of 'crash' and 'PEM'. I guess I used to use both these words somewhat interchangeably and wanted to ask PRers what they think. In my experience with ME, PEM, or a worsening of symptoms, happens after mental or physical overexertion and only when I have...
  13. H

    Association between cytokines and psychiatric symptoms in chronic fatigue syndrome and healthy controls (2018), Groven et al

    https://www.ncbi.nlm.nih.gov/pubmed/30063870 I wasn't sure whether to put this here or in the BPS forum so mods, please move it if BPS would be more suitable.
    • hixxy
    • Thread
    • 2018 groven immunology me/cfs paper psychiatry symptoms
    • Replies: 17
    • Forum: ME/CFS research
  14. leokitten

    Poll: Are most ME symptoms in beginning driven by drastic impairment of glucose metabolism?

    Here's the full poll question (because I couldn't fit it): Are all ME cases and most of the symptoms, at least at onset and in early disease, driven by the drastic intracellular impairment of glucose metabolism? The realm of intracellular glucose metabolism impairments suggested by the various...
  15. JaimeS

    PEM discussion thread - post-exertional malaise

    Posts on PEM moved from this thread as they had gone off topic.
  16. E

    Symptom diary

    Any ideas on the best format/method for keeping track of symptoms? Inspired by a post by @JaimeS about the need to keep a symptom diary, realise need to keep better track of my symptoms to know what's helping or not! How do you record and measure your symptoms and changes? Any ideas for...
  17. Webdog

    Five years before multiple sclerosis onset: Phenotyping the prodrome (2018) Wijnands et al

    Study: Five years before multiple sclerosis onset: Phenotyping the prodrome http://journals.sagepub.com/doi/full/10.1177/1352458518783662 Press Release: A constellation of symptoms presages first definitive signs of multiple sclerosis...
  18. Sly Saint

    Two-Year Follow-Up of Impaired Range of Motion in Chronic Fatigue Syndrome - Peter C. Rowe ,MD +

    THE JOURNAL OF PEDIATRICS " Performing the ROM examination was more likely to provoke increased fatigue and other abnormal symptomatic responses in those with CFS (40vs 4%;P<.001).19 Subsequent work has shown that in response to a 15-minute passive straight leg raise maneuver, individuals with...
  19. Indigophoton

    Comparing Post-Exertional Symptoms Following Serial Exercise Tests, Mateo et al, 2018

    Mark VanNess, PhD presented at the annual meeting of the American College of Sports Medicine. Lariel Mateo presented at the University of the Pacific’s Undergraduate Research and Creativity Conference. http://www.workwellfoundation.org/research-and-latest-news/
  20. Indigophoton

    Insufficient sleep, even without extended wakefulness, leads to performance impairments

    Presumably relevant to some PWME given the sleep issues. The article, https://m.medicalxpress.com/news/2018-05-insufficient-impairments.html The paper, http://www.pnas.org/content/early/2018/05/15/1706694115
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