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symptoms

  1. lunarainbows
    Thread

    Symptoms and treatment management: NICE guidelines

    Hi, I thought I would start a thread about symptoms and treatment management, as I heard that will be being discussed by the NICE guidelines in...
    Thread by: lunarainbows, Aug 14, 2019, 80 replies, in forum: Information for NICE guidelines
  2. leokitten
    Thread

    The antiviral drug ganciclovir does not inhibit microglial proliferation and activation (2015) Skripuletz, et al.

    I took Valcyte for 2 1/2 years. I had suspected infectious onset based on initial fever and symptoms, as well as chronically very high EBV, CMV,...
    Thread by: leokitten, Feb 1, 2019, 9 replies, in forum: Health News and Research unrelated to ME/CFS
  3. leokitten
    Thread

    Does your ME cause problems with falling asleep at night at a normal time? (Without sleep meds)

    A note for those who use sleep medication to help combat ME sleep issues - this might be more difficult to answer since the body becomes somewhat...
    Thread by: leokitten, Jan 28, 2019, 8 replies, in forum: Sleep Disturbance
  4. leokitten
    Thread

    Does your ME cause sleep inversion?

    One of the most debilitating aspects of my ME is that the disease causes me major sleep inversion. On most evenings, after significant enough...
    Thread by: leokitten, Jan 23, 2019, 83 replies, in forum: Sleep Disturbance
  5. leokitten
    Thread

    First real cold since I got ME/CFS (6 years) and all symptoms temporarily disappeared

    I’ve just recovered from the first proper cold I’ve ever gotten since I fell ill with ME/CFS six years ago. The first 3-4 years I never once felt...
    Thread by: leokitten, Jan 7, 2019, 13 replies, in forum: Immunological
  6. leokitten
    Thread

    Poll: Do your symptoms improve when you fast for 1-2 days?

    I purposely picked 1-2 days as a sweet spot educated guess. Too little time fasting might not be enough time to see symptoms improve, too much...
    Thread by: leokitten, Aug 7, 2018, 12 replies, in forum: Alternative Therapies
  7. leokitten
    Thread

    Is PEM a crash? Is a crash PEM? Semantically distinct? Or distinct phenomena?

    My question really is about the semantics of 'crash' and 'PEM'. I guess I used to use both these words somewhat interchangeably and wanted to ask...
    Thread by: leokitten, Aug 2, 2018, 2 replies, in forum: Post-Exertional Malaise, Fatigue, and Crashes
  8. leokitten
    Thread

    Poll: Are most ME symptoms in beginning driven by drastic impairment of glucose metabolism?

    Here's the full poll question (because I couldn't fit it): Are all ME cases and most of the symptoms, at least at onset and in early disease,...
    Thread by: leokitten, Jul 29, 2018, 7 replies, in forum: Post-Exertional Malaise, Fatigue, and Crashes
  9. Webdog
    Thread

    Five years before multiple sclerosis onset: Phenotyping the prodrome (2018) Wijnands et al

    Study: Five years before multiple sclerosis onset: Phenotyping the prodrome http://journals.sagepub.com/doi/full/10.1177/1352458518783662 Press...
    Thread by: Webdog, Jul 18, 2018, 16 replies, in forum: Health News and Research unrelated to ME/CFS
  10. andypants
    Thread

    Springtime sleepiness - pollen or coincidence?

    These last few days I’ve taken to my bed, not feeling bad but just so very very tired and sleepy. I’m not normally sleepy, and although I’m often...
    Thread by: andypants, Apr 15, 2018, 21 replies, in forum: Post-Exertional Malaise, Fatigue, and Crashes
  11. Jenny TipsforME
    Thread

    What does your crash feel like?

    I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in...
    Thread by: Jenny TipsforME, Feb 17, 2018, 23 replies, in forum: Post-Exertional Malaise, Fatigue, and Crashes
  12. Sly Saint
    Thread

    The Voice of the patient - FDA report ME & CFS 2013

    I found this report from 2013 which I think is pretty good and accurate (I'm only skimmed thro it though). It is more than the title would...
    Thread by: Sly Saint, Nov 10, 2017, 7 replies, in forum: Diagnostic Guidelines
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