Hi, I thought I would start a thread about symptoms and treatment management, as I heard that will be being discussed by the NICE guidelines in...
I took Valcyte for 2 1/2 years. I had suspected infectious onset based on initial fever and symptoms, as well as chronically very high EBV, CMV,...
A note for those who use sleep medication to help combat ME sleep issues - this might be more difficult to answer since the body becomes somewhat...
One of the most debilitating aspects of my ME is that the disease causes me major sleep inversion. On most evenings, after significant enough...
I’ve just recovered from the first proper cold I’ve ever gotten since I fell ill with ME/CFS six years ago. The first 3-4 years I never once felt...
I purposely picked 1-2 days as a sweet spot educated guess. Too little time fasting might not be enough time to see symptoms improve, too much...
My question really is about the semantics of 'crash' and 'PEM'. I guess I used to use both these words somewhat interchangeably and wanted to ask...
Here's the full poll question (because I couldn't fit it): Are all ME cases and most of the symptoms, at least at onset and in early disease,...
Study: Five years before multiple sclerosis onset: Phenotyping the prodrome http://journals.sagepub.com/doi/full/10.1177/1352458518783662 Press...
These last few days I’ve taken to my bed, not feeling bad but just so very very tired and sleepy. I’m not normally sleepy, and although I’m often...
I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in...
I found this report from 2013 which I think is pretty good and accurate (I'm only skimmed thro it though). It is more than the title would...
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