1. Read the 'News in Brief' post for w/c 16th Sept by clicking here, Guest.
    Dismiss Notice

Appropriately and Accurately Assessing Symptoms in Patients with ME

Discussion in 'General ME/CFS News' started by MeSci, Aug 31, 2018.

  1. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    1,733
    Likes Received:
    10,858
    Location:
    Cornwall, UK
    Source: Solve ME/CFS Initiative

    Date: September 13, 2018

    Time: 15:00-16:00 UTC

    URL: https://register.gotowebinar.com/register/7863577812392103170

    Appropriately and Accurately Assessing Symptoms in Patients with ME
    ----------------------------------------------------------

    Join Leonard A. Jason, PhD, as he provides an overview of the multi-year effort to develop patient symptom questionnaires for ME and CFS. He will explain why it is important to reliably assess domains of this illness so that more homogenous groups can be studied that are comparable across labs. Without such tools, efforts to define and characterize this illness will be hampered. In addition to speaking about the importance of reaching consensus on operationalizing data collection and deciding on thresholds for when symptoms should be counted as indicative of illness, he will explain why there is a need for more international consensus on a variety of other methodological issues including the research case definition.

    Leonard Jason is a professor of psychology at DePaul University in Chicago and a prolific researcher in the field of ME/CFS; particularly the epidemiology and prevalence of the disease.

    He serves as the Director of the Center for Community Research at DePaul, which includes studies on pediatric epidemiology, prospective studies of college students with mono, and QEEG research.
     
    Last edited: Sep 14, 2018
    inox, Andy, Invisible Woman and 11 others like this.
  2. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

    Messages:
    505
    Likes Received:
    4,560
    Location:
    Toronto
    @Dechi

    "Leonard Jason is a professor of psychology at DePaul University in Chicago and a prolific researcher in the field of ME/CFS; particularly the epidemiology and prevalence of the disease.

    He serves as the Director of the Center for Community Research at DePaul, which includes
    studies on pediatric epidemiology, prospective studies of college students with mono, and QEEG research.
    "
     
  3. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    4,834
    Likes Received:
    31,759
    If ME proves due to a physical problem in the brain somehow, then I don't see any problem with trying to better understand that.
     
  4. Dechi

    Dechi Senior Member (Voting Rights)

    Messages:
    512
    Likes Received:
    2,536
    Thanks, I appreciate that. I subscribed. Did you ?
     
    andypants likes this.
  5. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,303
    Likes Received:
    16,020
    Tomorrow 1pm EST
     
    Last edited: Sep 12, 2018
    Dolphin likes this.
  6. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    1,733
    Likes Received:
    10,858
    Location:
    Cornwall, UK
    Appropriately and Accurately Assessing Symptoms in Patients with ME - SMCI-Webinar Leonard Jason

    Station: YouTube / SMCI

    Date: September 13, 2018

    WebTV:
     
    JaimeS, Dolphin, Johanna WJ and 6 others like this.
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    3,374
    Likes Received:
    28,576
    Location:
    UK
    Nice to see he and his team are doing work on pediatric ME; the Pediatric Epidemiology Study (Jason) that he says is due to be published soon will be interesting. Also that they have developed a pediatric version of the DSQ ( DSQ-Ped ) one for parents and one for the children.
    (And there is a spanish version of the DSQ).
     
  8. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,303
    Likes Received:
    16,020
    A couple of screenshots


    Untitled.jpg
    Untitled1.jpg
     
    Dolphin, MeSci, rvallee and 1 other person like this.
  9. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,303
    Likes Received:
    16,020
    I asked a question about this and it was answered. He said it would show up on an EEG or sleep study but computer processing on the data would be needed to see anything which they don't do.
    Hopefully the presentation is youtubed soon.
     
    Dolphin likes this.

Share This Page