symptoms

  1. Sly Saint

    Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory.

    Physiotherapy. 2018 Mar;104(1):129-135. doi: 10.1016/j.physio.2017.07.005. Epub 2017 Aug 4. Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory. Thompson DP1, Antcliff D2, Woby SR3...
  2. andypants

    Springtime sleepiness - pollen or coincidence?

    These last few days I’ve taken to my bed, not feeling bad but just so very very tired and sleepy. I’m not normally sleepy, and although I’m often fatigued and without energy reserves I would not say I normally feel tired. I did have a busy week before this and it could theoretically just be...
  3. Andy

    SEID/CFS is common in sleep centre patients with hypersomnolence: A retrospective pilot study, 2018, Trotti et al

    Paywalled at https://onlinelibrary.wiley.com/doi/full/10.1111/jsr.12689
  4. adambeyoncelowe

    The aetiologic relation between disequilibrium and orthostatic intolerance in patients with myalgic encephalomyelitis (CFS), 2018, Miwa & Inoue

    http://www.journal-of-cardiology.com/article/S0914-5087(18)30058-3/fulltext#.WrzVHiFZs-E.twitter
  5. H

    Balance deficits in Chronic Fatigue Syndrome with and without Fibromyalgia (2018) Natelson et al

    https://www.ncbi.nlm.nih.gov/pubmed/29562557
  6. Cheshire

    Functional Status and Well-Being in People with ME/CFS Compared with People with MS and Healthy Controls (2018) Kingdon and al.

    Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul, Eliana M. Lacerda https://link.springer.com/article/10.1007%2Fs41669-018-0071-6
  7. Cheshire

    Medscape/Miriam Tucker: Much Can Be Done to Ease 'Chronic Fatigue Syndrome' Symptoms

    https://www.medscape.com/viewarticle/893766 See also this thread about Dr. Bateman's Summary of Clinicians' Summit March 2-3, 2018
  8. Jenny TipsforME

    What does your crash feel like?

    I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in mind I won’t be able to read long answers ;)) To me it feels like the top of my spine is inflamed and also the area which is likely my spleen. Light...
  9. Sly Saint

    Jeremy Vine (BBC radio2 discussions)

    Extending blue badge scheme to include non-physical Just listened to a discussion on this on the Jeremy Vine show. ie now https://www.bbc.co.uk/radio/player/bbc_radio_two it will be available to listen to on iplayer later. The last caller had Chronic Fatigue Syndrome, Fibro.
  10. Daisymay

    Restricted Spatial Windows of Visibility in ME (2018) Hutchinson et al.

    http://www.mdpi.com/2411-5150/2/1/2 Restricted Spatial Windows of Visibility in Myalgic Encephalomyelitis (ME) Nadia S. Ahmed, Irene Gottlob, Frank A. Proudlock and Claire V. Hutchinson * Department of Neuroscience, Psychology and Behaviour, College of Life Sciences, University of Leicester...
  11. Woolie

    2008: Electronic Support Groups, Patient-Consumers, and Medicalization: The Case of Contested Illness, Barker

    One for those who enjoy being wound up by this stuff. The main example they discuss is fibro, not ME, but that's unlikely to reduce your outrage. It is interesting that this sociologist is unquestioningly buying into the assumption that those with contested illness are not really ill at all...
  12. hedgehog

    Breathlessness and air hunger in ME/CFS

    I've seen the word air hunger used with respect to me/cfs, and I'm wondering how to tell if that's what I have. It feels difficult to get enough air, as if I'm taking half a breath instead of a whole one. I don't have mucus. It feels sore and tiring if I expand my lungs all the way. I feel like...
  13. Joel

    A test of the adaptive network explanation of functional disorders using a machine learning analysis of symptoms, 2018, Melidis, Hyland et al

    A test of the adaptive network explanation of functional disorders using a machine learning analysis of symptoms Author Information: Melidis C, Denham SL, Hyland ME. University of Plymouth Abstract The classification and etiology of functional disorders is controversial. Evidence supports both...
  14. Kalliope

    Tricia Pendergrast et al on housebound versus non-housebound ME-patients. Study correctly described?

    Perhaps some of you remember the study Housebound versus non housebound patients with myalgic encephalomyelitis and chronic fatigue syndrome from last year by Tricia Pendergrast, Abigail Brown, Madison Sunnquist, Rachel Janice, Julia L. Newton, Elin Bolle Strand and Leonard A. Jason...
  15. Sly Saint

    The Voice of the patient - FDA report ME & CFS 2013

    I found this report from 2013 which I think is pretty good and accurate (I'm only skimmed thro it though). It is more than the title would suggest. It's a shame that it would seem nothing resulted from it...
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