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Springtime sleepiness - pollen or coincidence?

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by andypants, Apr 15, 2018 at 11:18 AM.

  1. andypants

    andypants Established Member (Voting Rights)

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    These last few days I’ve taken to my bed, not feeling bad but just so very very tired and sleepy.

    I’m not normally sleepy, and although I’m often fatigued and without energy reserves I would not say I normally feel tired.

    I did have a busy week before this and it could theoretically just be PEM without any of my normal symptoms. However this exact thing happened at this exact time last year.

    I was six weeks into my rtx treatment and assumed it was related at the time. For maybe 16-18 days I was completely wiped out, in bed, but with zero pain or other issues. I remember saying I didn’t feel bad at all, just tired. It’s almost a relief in a way, because it feels so “normal”, like the body is for once acting predictably. Then one day I woke up and felt absolutely amazing, and for a week or so I felt like I had almost recovered from ME entirely.

    This is funnily the exact opposite of what happens when I get a cold. Then I feel amazing for 2-3 days first (cortisol boost maybe?) before the cold breaks out and I’m down and sniveling for a week and a half.

    Anyway, two episodes a year apart are hardly statistically significant but it is weird that the timing is exactly the same. Could it be the beginning of the pollen season? I have never been allergic to pollen and I would think I should have been affected for the entire season if pollen is it, but ME has made me more sensitive in all sorts of unpredictable ways. Other suggestions?


    edited for errors.
     
    Last edited: Apr 15, 2018 at 3:50 PM
    MeSci and Mij like this.
  2. Mij

    Mij Senior Member (Voting Rights)

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    @AndyPandy Every year(for at least the last 14) starting in the spring my immune system goes into overdrive (lack of better word). I get a viral infection, mouth ulcers, head aches, inflamed ears/glands and generally feel more exhausted.

    I feel that it is 'allergy season' related because it occurs every year around this time. It continues right into mid June.
     
  3. andypants

    andypants Established Member (Voting Rights)

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    @Mij that is the only thing that seems to make sense with the timing, but what is so weird is that I don’t feel bad or sick at all, I just have this overwhelming need to sleep all the time that is not normally present.

    I don’t even have the sore throat or itchy eyes that normally show up at the slightest sign of fatigue.
     
  4. Mij

    Mij Senior Member (Voting Rights)

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    The timing is the only thing that connects changes in symptoms and sleep. Perhaps this is the way your immune system responds? Sleepiness.

    How long does the sleepiness last?
     
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  5. andypants

    andypants Established Member (Voting Rights)

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    Probably. Last year 2-3 weeks. Still in the middle of it now.

    ETA: I think I've read somewhere that many who tried rtx became more sensitive to allergies during/after treatment. That might be it.

    I'm not worried about it, just curious about this random change in condition for such a short period of time. I'll have to pay attention to the pollen rates when I return to my usual fatigued-but-awake state:)


    ETA2: It doesn't add up with the pollen statistics from last year in my area at all, but maybe I'm just reacting to it in the beginning before my body adjusts. Or possibly it's not pollen, but something else. Either way I'm crossing my fingers for that week of feeling amazing:angelic:
     
    Last edited: Apr 15, 2018 at 4:08 PM
  6. OverTheHills

    OverTheHills Established Member (Voting Rights)

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    There have been threads before (maybe at the other place) with discussion about people (such as me) who get a substantial improvement every year in late spring and then relapse again. For me it begins mid April and finishes mid June U.K. or NZ in December. Sorry toosickly to look up appropriate threads at the moment. A few others seem to have similar patterns.
     
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  7. Mij

    Mij Senior Member (Voting Rights)

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    @andypants I see you live in Norway. Perhaps it's not pollen?

    In Canada, April- May allergies are the worst months for tree pollens In June-July it's the grasses. In Mid Summer mould blooms. Late summer it's ragweed. I'm surprised I'm not floored for the whole summer!
     
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  8. andypants

    andypants Established Member (Voting Rights)

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    @Mij it is early days for pollen, but Alder and Hazel already have «moderate levels». I don’t spend much time outdoors, though:p I just can’t for the life of me come up with any better ideas:) maybe I’ll just settle for coincidence!

    @OverTheHills I do better in the summertime, but it is these two weeks of being super sleepy that has me curious:) could be my SO is right and that it’s just an adjustment to the new season.
     
  9. OverTheHills

    OverTheHills Established Member (Voting Rights)

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    @OverTheHills I do better in the summertime, but it is these two weeks of being super sleepy that has me curious:) could be my SO is right and that it’s just an adjustment to the new season.[/QUOTE]

    Just a point of clarification - I don't do better in the summer. Once my late spring remission is over I relapse very hard and Summer is not good for me at all. I wonder if your sleepiness is a transition state, then you have a shorter good patch than I do??? anyway. Its all speculation, who knows. Hope improvement lies just around the corner for you.
     
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  10. andypants

    andypants Established Member (Voting Rights)

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    @OverTheHills got it:) I seem to do better from May and through September, but this is Norway (and the last three summers have not been great) so we could probably count all those five months as late spring-ish. In the really hot summers before that my ME was still fairly mild and very different. I'm leaning towards seasonal adjustment, allergy tablets had zero effect:)

    I checked my Oura-stats from last year, and it lasted three weeks exactly, from 10th through 30th of April. This year it started on the 11th, we'll see how long it lasts.

    On the plus side I'm getting a lot of sleep! I don't have big sleep issues these days unless I overdo it, but I rarely sleep well or long. Now I get 12 hrs every night and intermittent naps throughout the day, even if all plans of doing anything at all are cancelled :asleep:
     
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  11. Manganus

    Manganus Established Member

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    I certainly remember something similar from the time I was doing fairly well, healthwise, and studying. For some mystical reason, my stamina and general level of energy shrunk considerably in the spring time - chiefly before the pollen season!

    Since you write from Norway, and since I've lived in Finland and Sweden (until five years ago), it might be the case that both you and I have yearly reactions due to the shortening of the nights - at its speediest around March 20th.
     
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  12. andypants

    andypants Established Member (Voting Rights)

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    @Manganus everything else is upside down with this illness, so maybe it shouldn't be surprising that I get more sleepy while the entire country is getting more awake and energetic :rofl:

    ETA: this is certainly the scenario that best explains the very similar timing from one year to another!
     

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