recovery

Hi all, I'm trying to gather evidence for permanency of ME/CFS. The health minister says that the NDIA are using the Australia 2002 guidelines. They're are pretty old and 5 years is a long time to wait with little support. I'm using evidence in the guidelines provided by the NHMRC to try...

In a hodgepodge of an article, tenuously held together by the fact that an ancient Roman rabbit bone has been found, the BBC report and who says journalism is dead? Read the full article here, https://www.bbc.co.uk/news/uk-47963324

I’m looking for some information around permanency, which is relevant when applying for disability supports. I’ve heard 5 years used as a figure (ie: if you’ve been ill for 5 years, the chances of recovery drop off significantly). Is there any data to back that up? How would permanency be...

Not a recommendation. Paywalled here: https://www.thetimes.co.uk/article/nathan-douglas-london-2012-was-the-darkest-period-of-my-life-vxt5gftcx

Not a recommendation. https://metro.co.uk/2019/02/14/my-label-and-me-im-not-tired-and-lazy-i-have-me-8571106/ Of course AfME shared it though

Devendorf, A. R., Brown, A. A., & Jason, L. A. Chronic Illness Paywall https://journals.sagepub.com/doi/10.1177/1742395318815965

Trial By Error: FITNET- NHS Recruitment Ad Promotes "Recovery" A British medical education company has recently disseminated a recruitment ad for a high-profile pediatric study of treatment for what it calls CFS/ME. The recruitment ad’s headline describes the intervention being investigated as...

The effect of a person-centred and strength-based health intervention on recovery among people with chronic illness Am not able to read this study today, but browsed it, and when I found this, decided to post it here in case someone here can and will go through this more thoroughly. Beyond...

Interesting article on iNews website. Looks like he tried a variety of things so I'm not sure any one thing can be given credit, he may have just improved over time anyway. https://inews.co.uk/news/health/marathon-runner-quit-work-me-cfs-diet-change/

A good article on Your Care Everywhere website. https://www.yourcareeverywhere.com/health-research/health-insights/pain-care-insights/stop-exercising-for-chronic-fatigue-syndrome-symptoms.html

Within many official websites and information leaflets there is a standard soundbite that most adolescents recover within 2 years. From the parents' forums of which i am a member this does not hold true. Most children who have ME seem to have a significant improvement ( but not always...

Psychother Psychosom. 2007;76(3):171-6. Is a full recovery possible after cognitive behavioural therapy for chronic fatigue syndrome? Knoop H1, Bleijenberg G, Gielissen MF, van der Meer JW, White PD. Author information Abstract BACKGROUND: Cognitive behavioural therapy (CBT) for chronic fatigue...

https://www.omf.ngo/2016/08/01/prognosis-of-mecfs/

. . . although the boy's mother does state that he "will probably always have ME". Make of it what you will: http://www.dailymail.co.uk/health/article-5193885/Suicidal-teenager-15-recovers-taking-cannabis-oil.html

http://www.tandfonline.com/doi/abs/10.1080/09638288.2017.1383518 Original Article Defining and measuring recovery from myalgic encephalomyelitis and chronic fatigue syndrome: the physician perspective Andrew R. Devendorf ,Carly T. Jackson,Madison Sunnquist &Leonard A. Jason Pages 1-8 |...

As we've got a new forum, now when I come across an old annoying thing I thought I might post them up for newcomers' pleasure. There's been a lot of discussion recently of how treatments like CBT can encourage patients to fill in questionnaires more positively, even if more objective measures...

@Sbag posted this in another thread, but I thought it was worth it's own. "Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme Hilly Raphael (Quigley) October 2015 (final version with Addendum - participants’ responses Nov 2015)" It say things like...