recovery

P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of recovery and future treatment needs Philippa Clery, MBBS BSc, Jennifer Starbuck, BSc DClinPsy, Amanda Laffan, BSc DClinPsy, Esther Crawley, MBBCh PhD...

Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison Yasmin Moore Teona Serafimova Nina Anderson Hayley King Alison Richards Amberly Brigden Parisa Sinai Julian Higgins Caitlin Ascough Philippa Clery Esther M Crawley Open access...

Copied from this thread: Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian Leaving some notes here regarding caveats when critiquing most common features of some researchers' claims about trial methodology and...

Abstract Many patients with chronic fatigue syndrome (CFS) fail to derive benefit from evidence-based treatments such as cognitive–behavioural therapy (CBT) and graded exercise therapy leading to permanent disability. To discover whether a repeat prescription of modafinil might potentiate the...

Open access, https://journals.sagepub.com/doi/10.1177/1049732320969395

Moderator note: Use this thread to discuss the possibility of an ME/CFS or ME/CFS-like illness following Covid-19. Initial posts have been moved from the Coronavirus - world-wide spread and control thread. (Up to post #840 so far) *************** It's interesting that in the 2003 SARS...

Excellent article in the Los Angeles Review of Books about the trauma of illness and the double edge of remission. Written by Megan Moodie, who shares her own experiences with chronic pain and illness...

Spotted this on twitter today and warmly recommend it! It took me a while to realize that the way I saw myself and the way I was treated was directly caused by the harmful cultural stories we tell about injury and disability and health and accommodation and value. Those wrong maps are the...

full article here https://www.healthaffairs.org/do/10.1377/hblog20200603.471204/full/

https://www.tandfonline.com/doi/abs/10.1080/21641846.2017.1299358 Free full text: https://www.researchgate.net/publication/315482747_PACE_trial_claims_of_recovery_are_not_justified_by_the_data_A_Rejoinder_to_Sharpe_Chalder_Johnson_Goldsmith_and_White_2017

https://www.nytimes.com/2020/03/09/health/hiv-aids-london-patient-castillejo.html?searchResultPosition=2 If there was a genotype that was resistant to MECFS, then perhaps we could undergo bone marrow transplants like this guy.

https://bmjpaedsopen.bmj.com/content/3/1/e000525.full Full text is open. I find it depressing that 'return to pre-morbid condition' is not strongly endorsed. This is pretty damn clear. Yes, there are problems, and athletes returning to 'normal' person activity might not be quite recovered...

Source: https://www.cochrane.org/CD011284/BACK_impact-individual-recovery-expectations-pain-limitations-activities-and-return-work-low-back-pain

Paywall, https://www.tandfonline.com/doi/full/10.1080/07399332.2019.1663195 Sci hub, https://sci-hub.se/10.1080/07399332.2019.1663195

Doug Lindsay was bedridden for 11 years with a mysterious illness nobody could figure out, so the college dropout figured it out for himself. This is an amazing story

(This isn't really "news" but I didn't know where else to put this thread.) Firstly let me clarify that I am not talking about the bogus 'recovery' statistics that are propagated by the BPS lot. Rather, I am referring to hearsay that ive heard within the ME community (from people who are not...

I think I remember that one of the CBT or GET trials actively encouraged participants to no longer regard themselves as CFS patients. I thought I was confident it was the Dutch team of Bleijenberg and Knoop as they aim for a full recovery. But going through their papers, I can't seem the find...

Characteristics of a patient population attending a specialist outpatient service for chronic fatigue syndrome For more from the conference see this thread: https://www.s4me.info/threads/me-cfs-contributions-at-royal-college-of-paediatrics-and-child-health-conference-may-2019.9555/

From Recovery in the Bin full article here https://www.theguardian.com/commentisfree/2019/may/14/mental-health-services-crisis-patients-vulnerable-off-rolled?CMP=Share_iOSApp_Other

This post and the following ones have been moved from this thread. I was just looking at this new paper from the author: Measurements of Recovery and Predictors of Outcome in an Untreated Chronic Fatigue Syndrome Sample...