me/cfs

  1. Andy

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Statement My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made the following written statement: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) affects the lives of children and adults across the country. It can be an incredibly disabling...
  2. C

    The Pathobiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Case for Neuroglial Failure, 2022, Renz-Polster et al

    https://osf.io/ef3n4/ The newsbrief posting reminded me that this paper wasn't mentioned. I think it may be a pretty important hypothesis for ME's root cause. It fits what I believe is the root cause of ME: that neuroglia are involved. I'm not sure whether there are any ME symptoms that...
  3. Sly Saint

    Clinical improvement in patients with ME/CFS with synergistic effect of Colchicine and Spironolactone..., 2022, do Campo et al

    Full title: CLINICAL IMPROVEMENT IN PATIENTS WITH ME/CFS WITH SYNERGISTIC EFFECT OF COLCHICINE AND SPIRONOLACTONE TARGETING INHIBITION OF INFLAMMASOME ACTIVITY Dr Jorge do Campo1, Dr Vivienne Taylor2 1Noosa Hospital, Noosaville, Australia, 2Ibuki Medical Centre, Noosa, Australia Background...
  4. Sly Saint

    South Africa: eCPD Course Principles for the diagnosis and management of Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS)

    https://healthcare-ecpd.co.za/enrol/shoppingcart/view.php?id=3531&cat=62
  5. ahimsa

    What does it mean when an ME/CFS patient says they "got long covid" after catching SARS‑CoV‑2 (COVID)?

    A couple ME/CFS patients on twitter have mentioned "getting long Covid" after being infected with SARS‑CoV‑2. Does anyone have a longer explanation for what it might mean to "get Long Covid" if you're already an ME/CFS patient? Long Covid is a pretty big umbrella term. Does it mean these...
  6. Kalliope

    BMJ: Impact of ME/CFS on the quality of life of people with ME/CFS and their partners and family members.... Vyas, Muirhead et al, 2022

    Full title: Impact of myalgic encephalomyelitis/chronic fatigue syndrome /ME/CFS) on the quality of life of people with ME/CFS and their partners and family members: an online cross-sectional survey Jui Vyas, Nina Muirhead et al Abstract Objectives The aim of this study was to assess the impact...
  7. Dolphin

    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    The Why: The Historic ME/CFS Call To Arms Paperback – April 26, 2022 by Hillary J Johnson (Author) If you have acquired Myalgic Encephalomyelitis (a.k.a. “chronic fatigue syndrome”) in recent years, you may have wondered why the U.S. government has done so little to promote research or...
  8. Kalliope

    Instagram profile: Illustrating M.E.

    Just wanted to recommend this Instagram profile with excellent and professionally made illustrations in both Norwegian and English versions. Description of profile: Illustrating the debate, science and politics about ME to raise awareness. https://www.instagram.com/illustrating_me/
  9. Andy

    EBV/HHV-6A dUTPases contribute to ME/CFS pathophysiology by enhancing TFH cell differentiation and extrafollicular activities, 2022, Cox et al

    Full title: EBV/HHV-6A dUTPases contribute to Myalgic Encephalomyelitis/Chronic-Fatigue-Syndrome pathophysiology by enhancing TFH cell differentiation and extrafollicular activities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating multisystem illness of...
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