me/cfs

  1. D

    Low iron storage and mild anemia in postural tachycardia syndrome in adolescents, 2013, Jarjour and Jarjour

    Copied post, from NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome From PubMed: Clin Auton Res. . 2013 Aug;23(4):175-9. doi: 10.1007/s10286-013-0198-6. Epub 2013 May 30. Low iron storage and mild anemia in postural tachycardia syndrome in adolescents Imad T Jarjour 1...
  2. Kalliope

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Journal of Orthopaedic & Sports Physical Therapy Editorial Humility and Acceptance: Working Within Our Limits With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Simon Décary, PT, PhD et al Abstract Synopsis The term long COVID was coined by patients to describe the...
  3. Sly Saint

    Podcast: Finding My People - Online Communities with Jenny McGibbon and Stefanie Grant

    (I haven't listened to it so cannot comment on content)
  4. Andy

    Comparison of the Functional Health Limitations of Veterans [of] Iraq or Afghanistan to Veterans [of] Desert Shield/Storm w/CFS, 2016, McAndrew et al

    Full title: Comparison of the Functional Health Limitations of Veterans Deployed to Iraq or Afghanistan to Veterans Deployed to Desert Shield/Storm With Chronic Fatigue Syndrome ABSTRACT The majority of studies to examine the levels of physical symptoms after Operation Enduring...
  5. Hutan

    Whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS, 2021, Brown, Younger et al

    Donna Brown, Camille Birch, Jarred Younger, Elizabeth Worthey UAB Medicine Link to the abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) also referred to as Systemic Exertion Intolerance Disease (SEID) or Chronic Fatigue Immune Dysfunction Syndrome, is a disabling and...
  6. Andy

    [CFS] and Bone Marrow Defects of the Jaw – A Case Report on Additional Dental X-Ray Diagnostics with Ultrasound, 2021, Lechner & Schick

    Full title: Chronic Fatigue Syndrome and Bone Marrow Defects of the Jaw – A Case Report on Additional Dental X-Ray Diagnostics with Ultrasound Purpose: This paper aims to demonstrate the additional benefit of ultrasound in the diagnosis of chronic osteolysis and osteonecrosis (bone marrow...
  7. Sly Saint

    Lymphoblastoid Cell Lines as Models to Study Mitochondrial Function in Neurological Disorders, 2021, Annesley and Fisher

    Abstract Neurological disorders, including neurodegenerative diseases, are collectively a major cause of death and disability worldwide. Whilst the underlying disease mechanisms remain elusive, altered mitochondrial function has been clearly implicated and is a key area of study in these...
  8. Sly Saint

    Long COVID and ME/CFS—A Systemic Review and Comparison of Clinical Presentation and Symptomatology, 2021, Wong and Weizer

    Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)—A Systemic Review and Comparison of Clinical Presentation and Symptomatology Abstract Background and Objectives: Long COVID defines a series of chronic symptoms that patients may experience after resolution of acute...
  9. Sly Saint

    Controversy over exercise therapy for chronic fatigue syndrome: Continuing the debate (from 2017)

    Part of: BJPsych Advances Cochrane Corner and Round the Corner Collection Published online by Cambridge University Press: 11 April 2018 " Editor's summary In a recent Round the Corner, Mitchell commented on a Cochrane Review of exercise therapy for chronic fatigue syndrome (CFS). One of the...
  10. Sly Saint

    Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with [CFS], 2021, Crawley et al

    Now published, see https://www.s4me.info/threads/qualitative-study-of-the-acceptability-and-feasibility-of-acceptance-and-commitment-therapy-for-adolescents-with-cfs-2021-crawley-et-al.20297/page-2#post-382771 preprint Is it time to ACT? A qualitative study of the acceptability and feasibility...
  11. Andy

    COVID-19 and post-infectious myalgic encephalomyelitis/chronic fatigue syndrome: a narrative review, 2021, Poenaru et al

    Abstract Coronavirus disease 2019 (COVID-19) is a viral infection which can cause a variety of respiratory, gastrointestinal, and vascular symptoms. The acute illness phase generally lasts no more than 2–3 weeks. However, there is increasing evidence that a proportion of COVID-19 patients...
  12. J

    Patent: Method for the treatment of CFS using an inhibitory or cytotoxic agent against plasma cells, 2021, Fluge, Mella

    I've just come across a patent from Fluge and Mella which looks like it was updated/published in March 2021 entitled 'Method for the treatment of chronic fatigue syndrome using an inhibitory or cytotoxic agent against plasma cells'. The description of the patent is a long read...
  13. Sly Saint

    Rehabilitative treatments for chronic fatigue syndrome: long-term follow-up from the PACE trial, 2015, Sharpe,White,Chalder

    obviously not new. " Summary Background The PACE trial found that, when added to specialist medical care (SMC), cognitive behavioural therapy (CBT), or graded exercise therapy (GET) were superior to adaptive pacing therapy (APT) or SMC alone in improving fatigue and physical functioning in...
  14. R

    USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID

    Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic. (Pix is of an @unrestfilm event yrs ago. Slide behind me is a statement of support for people w/ ME fr the entire Massachusetts Congressional...
  15. Sly Saint

    Pathophysiology of skeletal muscle disturbances in (ME/CFS): 2021, Wirth, Scheibenbogen

    Abstract Chronic Fatigue Syndrome or Myalgic Encephaloymelitis (ME/CFS) is a frequent debilitating disease with an enigmatic etiology. The finding of autoantibodies against ß2-adrenergic receptors (ß2AdR) prompted us to hypothesize that ß2AdR dysfunction is of critical importance in the...
  16. Andy

    ME Association Statement on Exercise in ME/CFS and Long Covid, April 2021

    "The ME Association decided to issue this position statement on exercise and activity management in ME/CFS (and Long Covid) in light of recent discussions which have appeared on, for example, BBC Newsnight, and in the Guardian newspaper and that are continuing online. .... Graded Exercise...
  17. Sly Saint

    Hand grip strength and fatigability: correlation with clinical parameters and diagnostic suitability in ME/CFS, 2021, Jakel,Scheibenbogen et al

    Abstract Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex and debilitating disease accompanied by muscular fatigue and pain. A functional measure to assess muscle fatigability of ME/CFS patients is, however, not established in clinical routine. The aim of this...
  18. Andy

    Anticipation of and response to exercise in adolescents with CFS: An experimental study, 2021, Loades, Chalder et al

    "Highlights • Adolescents with CFS, asthma and healthy controls undertook an exercise task. • Those with CFS took longer to complete a laboratory-based exercise task than controls. • They (and their parents) expected to perform worse. • They were more anxious pre-task and rated their performance...
  19. Wyva

    Cytokine networks analysis uncovers further differences between those who develop ME/CFS following infectious mononucleosis, 2021, Jason et al

    ABSTRACT Background We followed college students before, during, and after infectious mononucleosis (IM) for the development of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Aim We used network analysis to study relationships between pre-illness cytokine data amongst three...
  20. E

    Labelling Long COVID and ME/CFS symptoms in children 'mental health'

    I don't often post but this is a real concern see p7: Children and young people with Long Covid (CLoCK) (publishing.service.gov.uk). Study summary Study title: Tracking the impact of Covid-19 on the mental health of children, young people and families; follow up of a national longitudinal...
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