Posts moved from NICE ME/CFS guideline - draft published for consultation - 10th November 2020
I agree with this :) I hope dietitians can get to use the knowledge we have about other life-limiting diseases that influence the ability to maintain proper food intake. One of the most used books...
Apparently the handouts at this link have been recently revised added (page says "Page last reviewed: May 3, 2021").
Quick ME/CFS Assessment Tool, About ME/CFS and Managing Patients’ Symptoms
https://www.cdc.gov/me-cfs/healthcare-providers/toolkit.html
ETA: Change revised to added, as per...
Identification of differential genetic profiles in severe forms of fibromyalgia and chronic fatigue syndrome/myalgic encephalomyelitis: A population-based genetic association study
Ferran J. Garcia-Fructuoso, Jose Ignacio Lao-Villadoniga, Cristina Santos, Violant Poca-Dias, Joaquim...
Abstract
(1) Background—Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multifaceted illness characterized by profound and persistent fatigue unrelieved by rest along with a range of other debilitating symptoms. Experiences of unrefreshing and disturbed sleep are frequently...
(I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.)
In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...
https://www.tandfonline.com/doi/full/10.1080/21641846.2021.1922140
Leonard A. Jason, Mohammed F. Islam, Karl Conroy, Joseph Cotler, Chelsea Torres, Mady Johnson & Brianna Mabie
Received 21 Apr 2021, Accepted 22 Apr 2021, Published online: 05 May 2021
Introduction
Our objective was to...
Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)
Abstract
Background
Orthostatic intolerance (OI) is a frequent finding in individuals with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Published studies...
Copied post, from NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome
From PubMed: Clin Auton Res.
. 2013 Aug;23(4):175-9. doi: 10.1007/s10286-013-0198-6. Epub 2013 May 30.
Low iron storage and mild anemia in postural tachycardia syndrome in adolescents
Imad T Jarjour 1...
Journal of Orthopaedic & Sports Physical Therapy
Editorial
Humility and Acceptance: Working Within Our Limits With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Simon Décary, PT, PhD et al
Abstract
Synopsis
The term long COVID was coined by patients to describe the...
Full title: Comparison of the Functional Health Limitations of Veterans Deployed to Iraq or Afghanistan to Veterans Deployed to Desert Shield/Storm With Chronic Fatigue Syndrome
ABSTRACT
The majority of studies to examine the levels of physical symptoms after Operation Enduring...
Donna Brown, Camille Birch, Jarred Younger, Elizabeth Worthey
UAB Medicine
Link to the abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) also referred to as Systemic Exertion Intolerance Disease (SEID) or Chronic Fatigue Immune Dysfunction Syndrome, is a disabling and...
Full title: Chronic Fatigue Syndrome and Bone Marrow Defects of the Jaw – A Case Report on Additional Dental X-Ray Diagnostics with Ultrasound
Purpose: This paper aims to demonstrate the additional benefit of ultrasound in the diagnosis of chronic osteolysis and osteonecrosis (bone marrow...
Abstract
Neurological disorders, including neurodegenerative diseases, are collectively a major cause of death and disability worldwide. Whilst the underlying disease mechanisms remain elusive, altered mitochondrial function has been clearly implicated and is a key area of study in these...
Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)—A Systemic Review and Comparison of Clinical Presentation and Symptomatology
Abstract
Background and Objectives: Long COVID defines a series of chronic symptoms that patients may experience after resolution of acute...
Part of: BJPsych Advances Cochrane Corner and Round the Corner Collection
Published online by Cambridge University Press: 11 April 2018
"
Editor's summary
In a recent Round the Corner, Mitchell commented on a Cochrane Review of exercise therapy for chronic fatigue syndrome (CFS). One of the...
Now published, see https://www.s4me.info/threads/qualitative-study-of-the-acceptability-and-feasibility-of-acceptance-and-commitment-therapy-for-adolescents-with-cfs-2021-crawley-et-al.20297/page-2#post-382771
preprint
Is it time to ACT? A qualitative study of the acceptability and feasibility...
Abstract
Coronavirus disease 2019 (COVID-19) is a viral infection which can cause a variety of respiratory, gastrointestinal, and vascular symptoms. The acute illness phase generally lasts no more than 2–3 weeks. However, there is increasing evidence that a proportion of COVID-19 patients...
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