me/cfs

Highlights • ME/CFS is characterized by skewed B cell receptor gene usage. • Upregulation of specific IGHV genes correlated to infection-related episodes at onset. • Plasmablasts of ME/CFS patients upregulated interferon response genes. • B cell receptor repertoire analysis can provide a useful...

M.E. In BC [British Columbia]: How the healthcare system for M.E. impacts clinicians and patients This is a preliminary study assessing the unmet needs of patients living with ME; 25 patients were either interviewed or participated in a focus group. Over 170 health care professionals/...

Full title: The SARS-CoV-2 receptor angiotensin-converting enzyme 2 (ACE2) in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: analysis of high-throughput genetic, epigenetic, and gene expression studies Abstract Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) show...

Hey Someone anonymous from Norway have produced a very thorough two part series on different topics (PACE, Lightning Process etc.) It has english subtitles so everyone can watch

Interesting show about the aftermath of viruses on NPR station WHYY this morning. One segment focuses on long COVID. Includes interviews with an immunologist who studies long-term impacts of viruses on the body and a physician trying to help her many patients suffering from long COVID. Second...

Reverend Joe Haward shares his experiences of having ME and explores the challenges patients face in getting the reality of their lives with the disease heard by professionals and those in positions of power...

Abstract Many patients with chronic fatigue syndrome (CFS) fail to derive benefit from evidence-based treatments such as cognitive–behavioural therapy (CBT) and graded exercise therapy leading to permanent disability. To discover whether a repeat prescription of modafinil might potentiate the...

I was browsing through the patient information links on the Patient Access app [https://account.patientaccess.com/] that my GP practice offers registered patients for ordering their repeat prescriptions, providing access to their basic medical records, vaccination history etc. The following...

View ORCID ProfileJoao Torrado Malato, View ORCID ProfileLuis Graca, View ORCID ProfileLuis Nacul, View ORCID ProfileEliana Mattos Lacerda, View ORCID ProfileNuno Sepulveda Preprint Abstract Given the absence of a disease-specific biomarker, there are more than 20 symptoms-based case...

https://onlinelibrary.wiley.com/doi/full/10.1111/imj.11_14849 (It's free access but I think it's just a poster) Jorge do Campo 1 and Vivienne Taylor 2 1 Noosa Hospital, Queensland, Australia 2 Ibuki Medical Centre, Noosa, Queensland, Australia Abstract Background: Epstein Barr Virus (EBV) is a...

The researcher of the Biological Foundations of Mental Disorders group and head of the Central Sensitisation Syndrome section at the University Hospital of Santa Maria de Lleida, Lluís Rosselló, has presented the study. full article here...

Preprint " Abstract Background and objectives: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS is a common complex multi-system disease with a significant impact on the quality of life of patients and their families, yet the majority of ME/CFS patients go unrecognised or undiagnosed...

Full title: An exploratory study of discrepancies between objective and subjective measurement of the physical activity level in female patients with chronic fatigue syndrome Highlights • There is a discrepancy between self-report and objective activity measures in CFS. • The activity diary...

https://portlandpress.com/clinsci/article-abstract/118/2/125/68670 Scihub 2010 paper Barry Hurwitz; Virginia Coryell; Meela Parker; Pedro Martin; Arthur LaPerriere; Nancy Klimas; George Sfakianakis; Martin Bilsker Abstract The study examined whether deficits in cardiac output and blood volume...

https://www.frontiersin.org/articles/10.3389/fmed.2021.662513/abstract (provisionally accepted - article will be published soon) Brett A. Lidbury Research School of Population Health, Australian National University, Australia In Frontiers of Medicine - Infectious Diseases - Surveillance...

Open Medicine Foundation Canada: https://www.omfcanada.ngo/?utm_source=email&utm_medium=news I donate to the OMF - can now receive a Canadian tax receipt ETA: It would be great to see some OMF funds going to Canadian ME researchers - there are collaborations, but I don't know if funds are...

The Norwegian ME Association just published an impressive survey on 5.822 ME patients in Norway. An English summary is available here: https://me-foreningen.no/wp-content/uploads/2021/03/Norwegian-ME-Association-2021-Report-on-the-course-of-illness-English-summary.pdf

https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/POMME_Study_Info_June 2020.pdf eta: an apple a day keeps the doctor away?

"Treatment harms to patients with ME/CFS" Quote: - Despite evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), the dominant therapeutic approach has been cognitive behaviour therapy (CBT) and graded exercise therapy (GET)...

Preprint. " Abstract Finite mixture models have been widely used in antibody (or serological) data analysis in order to help classifying individuals into either antibody-positive or antibody-negative. The most popular models are the so-called Gaussian mixture models which assume a Normal...