me/cfs

  1. Andy

    Elements of Suffering in [ME/CFS]: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected, 2021, Fennell et al

    Full title: Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected Abstract People who are severely and very severely affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  2. Dolphin

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    https://www.sciencedirect.com/science/article/abs/pii/S0022399921001781 Journal of Psychosomatic Research Available online 28 May 2021, 110533 In Press, Journal Pre-proof Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome P.D.White a...
  3. Simon M

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    The possibility of ME/CFS being caused by a chronic viral (or other) infection – for at least some people — has been discussed for a long time. The biggest piece of evidence in favour of t is that infections are very often a trigger for ME/CFS (summary of the evidence here). A similar case has...
  4. Andy

    Chronic fatigue syndrome: modern aspects of diagnosis and treatment, 2021, Vorobyeva and Danilov

    Abstract in English The article presents a modern ecological approach to the pathogenesis and treatment of chronic fatigue syndrome (CFS). CFS is views in terms of gene-environment concept. The basic data in patients with CFS, triggers of diseases that implement the mechanisms responsible for...
  5. Simon M

    Research papers on type of onset (infectious, gradual etc)?

    I am looking for any good data on the different types of onset. Ideally, this should be from a large, representative sample. I'm pretty sure that no such study exists. From memory, I think that the Chronic Fatigue Initiative, CFI, did publish something on this, possibly a paper by Dana March...
  6. Wyva

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Abstract Adult patients affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are at an increased risk of death by suicide. Based on the scientific literature and our clinical/research experiences, we identify risk and protective factors and provide a guide to assessing and...
  7. Dolphin

    Human leukocyte antigen associations in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and immune modulating treatment, 2021, Lande

    PhD thesis https://www.duo.uio.no/bitstream/handle/10852/86195/1/PhD-Lande-2021.pdf https://www.duo.uio.no/bitstream/handle/10852/86195/PhD-Lande-2021.pdf Summary Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious and complex disease characterized by medically...
  8. M

    Cognitive behavioural therapy in chronic fatigue syndrome: a randomised controlled trial of an outpatient group programme, 2006, O'Dowd et al

    2 posts moved from: NICE Health topics: Tiredness/Fatigue in adults (includes CFS). _________ The NHS seems to consider GET and CBT as Health Technologies (HTs), as there was a long HTA (HT Assessment) produced by O'Dowd and Gladwell, Bristol, in 2006...
  9. Trish

    Paradigm Lost: Lessons For Long COVID-19 From A Changing Approach To CFS, 2021, Hughes, Lubet and Tuller

    https://www.healthaffairs.org/do/10.1377/hblog20210514.425704/full/
  10. Midnattsol

    Can dieticians (dietitians) help with ME/CFS?

    Posts moved from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 I agree with this :) I hope dietitians can get to use the knowledge we have about other life-limiting diseases that influence the ability to maintain proper food intake. One of the most used books...
  11. Andy

    US: CDC: [ME/CFS] Healthcare Provider Toolkit

    Apparently the handouts at this link have been recently revised added (page says "Page last reviewed: May 3, 2021"). Quick ME/CFS Assessment Tool, About ME/CFS and Managing Patients’ Symptoms https://www.cdc.gov/me-cfs/healthcare-providers/toolkit.html ETA: Change revised to added, as per...
  12. Sly Saint

    Identification of differential genetic profiles in severe forms of fibromyalgia and CFS/ME, 2008, Garcia-Fructuoso et al

    Identification of differential genetic profiles in severe forms of fibromyalgia and chronic fatigue syndrome/myalgic encephalomyelitis: A population-based genetic association study Ferran J. Garcia-Fructuoso, Jose Ignacio Lao-Villadoniga, Cristina Santos, Violant Poca-Dias, Joaquim...
  13. Sly Saint

    Article: The Mysterious Condition Leaving Women Home-Bound Years Before Long Covid

    full article here https://uk.sports.yahoo.com/news/mysterious-condition-leaving-women-home-043200000.html
  14. Sly Saint

    Systematic Review of Sleep Characteristics in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Maksoud, Staines, Marshall-Gradisnik, et al

    Abstract (1) Background—Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multifaceted illness characterized by profound and persistent fatigue unrelieved by rest along with a range of other debilitating symptoms. Experiences of unrefreshing and disturbed sleep are frequently...
  15. Wyva

    2021 Pan-Europe ME Patient Survey (EMEA)

    (I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...
  16. Sly Saint

    Virios Therapeutics - biotech company with anti-viral therapies for post-infection syndromes

    https://www.pharmiweb.com/press-release/2021-05-07/virios-therapeutics-to-present-at-the-benzinga-global-small-cap-conference
  17. cassava7

    COVID-19 symptoms over time: comparing long-haulers to ME/CFS, Jason et al, 2021

    https://www.tandfonline.com/doi/full/10.1080/21641846.2021.1922140 Leonard A. Jason, Mohammed F. Islam, Karl Conroy, Joseph Cotler, Chelsea Torres, Mady Johnson & Brianna Mabie Received 21 Apr 2021, Accepted 22 Apr 2021, Published online: 05 May 2021 Introduction Our objective was to...
  18. Sly Saint

    Deconditioning does not explain orthostatic intolerance in ME/CFS, 2021, VanCampen, Rowe, Visser

    Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) Abstract Background Orthostatic intolerance (OI) is a frequent finding in individuals with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Published studies...
  19. D

    Low iron storage and mild anemia in postural tachycardia syndrome in adolescents, 2013, Jarjour and Jarjour

    Copied post, from NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome From PubMed: Clin Auton Res. . 2013 Aug;23(4):175-9. doi: 10.1007/s10286-013-0198-6. Epub 2013 May 30. Low iron storage and mild anemia in postural tachycardia syndrome in adolescents Imad T Jarjour 1...
  20. Kalliope

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Journal of Orthopaedic & Sports Physical Therapy Editorial Humility and Acceptance: Working Within Our Limits With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Simon Décary, PT, PhD et al Abstract Synopsis The term long COVID was coined by patients to describe the...
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