me/cfs

  1. Hoopoe

    Hypothesis The Enterovirus Theory of Disease Etiology in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Critical Review, Hanson et al (2021)

    Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, multi-system disease whose etiological basis has not been established. Enteroviruses (EVs) as a cause of ME/CFS have sometimes been proposed, as they are known agents of acute respiratory and gastrointestinal...
  2. Hutan

    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al

    J.L. Newton 1 J. Pairman 1 K. Hallsworth 1, 2 S. Moore 1,2 T. Plo TZ 3 and M.I. Trenell 1, 2 1. UK National Institute for Health Research Biomedical Research Centre in Ageing & Age-related Disease, Institute for Ageing and Health, Newcastle University, Newcastle, UK, 2. MRC Centre for Brain...
  3. Andy

    The Impact of Severe ME/CFS on Student Learning and K–12 Educational Limitations, 2021, Newton

    Faith Newton Abstract Children with ME/CFS who are severely ill are bedbound and homebound, and oftentimes also wheelchair-dependent. Very seriously affected children are often too sick for doctor’s office visits, let alone school attendance. The most recent data estimate that 2–5% of children...
  4. Andy

    Elements of Suffering in [ME/CFS]: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected, 2021, Fennell et al

    Full title: Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected Abstract People who are severely and very severely affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  5. Dolphin

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    https://www.sciencedirect.com/science/article/abs/pii/S0022399921001781 Journal of Psychosomatic Research Available online 28 May 2021, 110533 In Press, Journal Pre-proof Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome P.D.White a...
  6. Simon M

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    The possibility of ME/CFS being caused by a chronic viral (or other) infection – for at least some people — has been discussed for a long time. The biggest piece of evidence in favour of t is that infections are very often a trigger for ME/CFS (summary of the evidence here). A similar case has...
  7. Andy

    Chronic fatigue syndrome: modern aspects of diagnosis and treatment, 2021, Vorobyeva and Danilov

    Abstract in English The article presents a modern ecological approach to the pathogenesis and treatment of chronic fatigue syndrome (CFS). CFS is views in terms of gene-environment concept. The basic data in patients with CFS, triggers of diseases that implement the mechanisms responsible for...
  8. Simon M

    Research papers on type of onset (infectious, gradual etc)?

    I am looking for any good data on the different types of onset. Ideally, this should be from a large, representative sample. I'm pretty sure that no such study exists. From memory, I think that the Chronic Fatigue Initiative, CFI, did publish something on this, possibly a paper by Dana March...
  9. Wyva

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Abstract Adult patients affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are at an increased risk of death by suicide. Based on the scientific literature and our clinical/research experiences, we identify risk and protective factors and provide a guide to assessing and...
  10. Dolphin

    Human leukocyte antigen associations in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and immune modulating treatment, 2021, Lande

    PhD thesis https://www.duo.uio.no/bitstream/handle/10852/86195/1/PhD-Lande-2021.pdf https://www.duo.uio.no/bitstream/handle/10852/86195/PhD-Lande-2021.pdf Summary Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious and complex disease characterized by medically...
  11. M

    Cognitive behavioural therapy in chronic fatigue syndrome: a randomised controlled trial of an outpatient group programme, 2006, O'Dowd et al

    2 posts moved from: NICE Health topics: Tiredness/Fatigue in adults (includes CFS). _________ The NHS seems to consider GET and CBT as Health Technologies (HTs), as there was a long HTA (HT Assessment) produced by O'Dowd and Gladwell, Bristol, in 2006...
  12. Trish

    Paradigm Lost: Lessons For Long COVID-19 From A Changing Approach To CFS, 2021, Hughes, Lubet and Tuller

    https://www.healthaffairs.org/do/10.1377/hblog20210514.425704/full/
  13. Midnattsol

    Can dieticians (dietitians) help with ME/CFS?

    Posts moved from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 I agree with this :) I hope dietitians can get to use the knowledge we have about other life-limiting diseases that influence the ability to maintain proper food intake. One of the most used books...
  14. Andy

    US: CDC: [ME/CFS] Healthcare Provider Toolkit

    Apparently the handouts at this link have been recently revised added (page says "Page last reviewed: May 3, 2021"). Quick ME/CFS Assessment Tool, About ME/CFS and Managing Patients’ Symptoms https://www.cdc.gov/me-cfs/healthcare-providers/toolkit.html ETA: Change revised to added, as per...
  15. Sly Saint

    Identification of differential genetic profiles in severe forms of fibromyalgia and CFS/ME, 2008, Garcia-Fructuoso et al

    Identification of differential genetic profiles in severe forms of fibromyalgia and chronic fatigue syndrome/myalgic encephalomyelitis: A population-based genetic association study Ferran J. Garcia-Fructuoso, Jose Ignacio Lao-Villadoniga, Cristina Santos, Violant Poca-Dias, Joaquim...
  16. Sly Saint

    Article: The Mysterious Condition Leaving Women Home-Bound Years Before Long Covid

    full article here https://uk.sports.yahoo.com/news/mysterious-condition-leaving-women-home-043200000.html
  17. Sly Saint

    Systematic Review of Sleep Characteristics in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Maksoud, Staines, Marshall-Gradisnik, et al

    Abstract (1) Background—Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multifaceted illness characterized by profound and persistent fatigue unrelieved by rest along with a range of other debilitating symptoms. Experiences of unrefreshing and disturbed sleep are frequently...
  18. Wyva

    2021 Pan-Europe ME Patient Survey (EMEA)

    (I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...
  19. Sly Saint

    Virios Therapeutics - biotech company with anti-viral therapies for post-infection syndromes

    https://www.pharmiweb.com/press-release/2021-05-07/virios-therapeutics-to-present-at-the-benzinga-global-small-cap-conference
  20. cassava7

    COVID-19 symptoms over time: comparing long-haulers to ME/CFS, Jason et al, 2021

    https://www.tandfonline.com/doi/full/10.1080/21641846.2021.1922140 Leonard A. Jason, Mohammed F. Islam, Karl Conroy, Joseph Cotler, Chelsea Torres, Mady Johnson & Brianna Mabie Received 21 Apr 2021, Accepted 22 Apr 2021, Published online: 05 May 2021 Introduction Our objective was to...
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