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Northern Ireland: News from Hope 4 ME & Fibro

Discussion in 'News from organisations' started by Science For ME, Aug 25, 2021.

  1. Science For ME

    Science For ME Forum Announcements

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  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    This series of 1-hour webinars aims to explore the radical changes taking place within the new proposed NICE Guideline for ME/CFS and the important implications arising from the developing ‘Long Covid’ crises. The webinar series will bring together experts in the field of ME/CFS to share their knowledge and experience. These webinars have been organised by the Hope 4 ME & Fibro Northern Ireland Charity and are being facilitated by the HSC Clinical Education Centre.

    15 September 2021 – The New NICE Guidelines on ME/CFS (2021): How the Paradigm has shifted

    22 September 2021 – Post-exertional Symptom Exacerbation – Activity and Rest/ Physiotherapy Advice – Physios for M.E.

    29 September 2021 – M.E. – When the Doctor Becomes the Patient

    6 October 2021 – Symptoms and Diagnosis of ME in Children/Adults with Very Severe ME

    13 October 2021 – Occupational Therapy for M.E./Patient Self-Management Advice/ ME/CFS Patient Support Groups

    Webinar Flyer

    Book via the Programmes page

    https://cec.hscni.net/m-e-myalgic-encephalomyelitis-educational-webinar-series/
     
    Hutan, Irina66, alktipping and 7 others like this.
  3. MEMarge

    MEMarge Senior Member (Voting Rights)

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    This looks like agreat series.

    They have had many good speakers at their events over the years.
     
    Hutan, alktipping, Simbindi and 2 others like this.
  4. JoanNI

    JoanNI Established Member (Voting Rights)

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    26
    This event is different in that the HSC Clinical Education Centre are hosting the platform and advertising the webinars to healthcare providers on their website, https://cec.hscni.net/
    A massive breakthrough for us compared to previous events.
     
  5. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    10,022
    Location:
    UK West Midlands
    It is indeed a breakthrough and a model for what should be happening U.K. wide i hope it will be highlighted at the NICE round table
     
  6. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

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    One amongst thousands of messages for NICEComms.
    But it’s the sort of thing that NICE should be funding as a very minimum, when Guidelines are published :banghead:

    https://twitter.com/user/status/1440218087781847044
     
    JoanNI, obeat, MEMarge and 3 others like this.
  7. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    10,022
    Location:
    UK West Midlands
    I don’t think NICE funds anything does it, up to NHS to pick up the baton on implementation once the guidelines are published. Which is to some extent why we are in the current situation

    so we would want to see England Wales Scotland equivalents of the NI HSC who are hosting this education taking NI example
     

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