1. Click here, Guest, and read the 'News in Brief' post for w/c 15th July.
    Dismiss Notice

Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018

Discussion in 'General ME/CFS News' started by Andy, May 27, 2018.

  1. Andy

    Andy Committee Member & Outreach

    Messages:
    6,752
    Likes Received:
    50,141
    Location:
    Hampshire, UK
    Attending will be Drs José Montoya, Nigel Speight and Peter Rowe.
    Code:
    https://www.facebook.com/Hope4MEFibro/posts/1755888444469968
    Facebook post
     
  2. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,048
    Likes Received:
    19,365
    Location:
    UK
    Do you want to add it to the calendar, @Andy?
     
    adambeyoncelowe and Andy like this.
  3. Andy

    Andy Committee Member & Outreach

    Messages:
    6,752
    Likes Received:
    50,141
    Location:
    Hampshire, UK
    Yeah, I forgot. Now done. :)
     
    adambeyoncelowe and Sasha like this.
  4. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    3,035
    Likes Received:
    21,698
    Location:
    UK East Midlands
    Much respect to NI folks for your advocacy and the progress you are making on medical education :thumbup:
     
    Hutan, Lisa108, MEMarge and 7 others like this.
  5. JoanNI

    JoanNI Established Member

    Messages:
    17
    Likes Received:
    169
    Just popping on to add full programme.
    Still in shock, the Chief Medical Officer for N.I. is opening our event, this says a LOT I think but of little use to patients if the ME message doesn’t filter down to GPs etc.
    Interesting times ahead.
     

    Attached Files:

    Hutan, Moosie, ukxmrv and 12 others like this.
  6. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
    771
    Likes Received:
    5,309
    Location:
    betwixt and between
    Lisa108, JoanNI, MEMarge and 4 others like this.
  7. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    1,660
    Likes Received:
    10,407
    Location:
    Cornwall, UK
    Hope this isn't already posted:

    Source: Love Belfast

    Date: August 27, 2018

    URL:
    https://lovebelfast.co.uk/fibromyalgia-conference-northern-ireland/

    Major ME and fibromyalgia conference set for September International speakers for Belfast event
    ------------------------------------------------------

    A major conference on ME and Fibromyalgia is set for September at a time when recruitment is underway for the first ever consultant lead on the condition nears completion. Hosted by the charity, Hope 4 Me and Fibro Northern Ireland, the event on September 17 at Parliament Buildings, will hear a keynote address from US specialist Jose G Montoya MD of Stanford University.

    Joan McParland, founder of Hope 4 Me and Fibro NI said this was a vital conference at a time when new NICE (National Institute for Clinical Excellence) for ME/CFS are under review and previous claims of graded exercise and cognitive behavioural therapy being beneficial for this large patient population, are now firmly discredited. 'Now that we are
    moving forward in Northern Ireland this conference comes at a critical time to inform all healthcare providers of the most effective ways to manage patients and more importantly, to protect them from further deterioration. The service has, by the Health and Social Care Board's own admission, been fragmented, with delays in diagnosis and gaps in education for medical professionals.'

    Dr Montayo's keynote address is entitled 'An Unfolding Story of Scientific Discoveries and Future Targeted Treatment' and will hear his experiences of treating patients and his extensive clinical research to improve diagnosis and treatment. Under Dr. Montoya's leadership, the ME/CFS Initiative has had great success in engaging and collaborating
    with nearly 50 researchers across Stanford University and beyond.

    Amongst other speakers are infectious diseases consultant, Dr W.R.C. Weir, producer of the award-winning documentary 'Voices from the Shadows' Natalie Boulton. Louise Skelton of the Patient Client Council will also address the conference on the importance of the patient voice.

    A speaker (to be confirmed) from the Public Health Agency will provide an update on current ME services and new care pathway for fibromyalgia patients.

    The September 17 event will be opened by Northern Ireland's Chief Medical Officer, Dr Michael McBride and is hosted by MLA, Robbie Butler.

    Tickets are available from:

    https://www.eventbrite.co.uk/e/mana...ediatric-first-do-no-harm-tickets-46131336068.

    Medical students can attend at no cost and CPD accreditation from the Royal College of Physicians in London, has been applied for.
     
  8. JoanNI

    JoanNI Established Member

    Messages:
    17
    Likes Received:
    169
    The press release went out before I’d received confirmation of accreditation!


    Management of ME/CFS: Adult & Paediatric- ‘First Do No Harm.’ has been approved by the Federation of the Royal Colleges of Physicians of the United Kingdom for 3 category 1 (external) CPD credit(s
     
    Barry, MEMarge, ukxmrv and 9 others like this.
  9. obeat

    obeat Senior Member (Voting Rights)

    Messages:
    384
    Likes Received:
    2,682
    Just to let everyone know that we are sold out. Venue holds 100 people. Doctors , medical students, nurses and other healthcare professionals attending.
     
    Moosie, Barry, andypants and 15 others like this.
  10. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    3,035
    Likes Received:
    21,698
    Location:
    UK East Midlands
    Well done hope you all have a brilliant day.
     
    andypants, MEMarge, Binkie4 and 4 others like this.
  11. obeat

    obeat Senior Member (Voting Rights)

    Messages:
    384
    Likes Received:
    2,682
    Further update. Interviews will be held today for a Medical clinical lead for N. Ireland.
     
    Hutan, Dolphin, Barry and 11 others like this.
  12. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    1,834
    Likes Received:
    10,611
    Hutan, Moosie, andypants and 9 others like this.
  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    3,113
    Likes Received:
    26,248
    Location:
    UK


    look forward to seeing it.
     
    Hutan, DokaGirl, Barry and 7 others like this.
  14. Keela Too

    Keela Too Senior Member (Voting Rights)

    Messages:
    668
    Likes Received:
    5,994
    Location:
    Sally Burch - Northern Ireland
    The event was incredible!!!!
     
    Joh, Hutan, Moosie and 12 others like this.
  15. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    799
    Likes Received:
    7,813
    From Ian:


     
    Joh, Hutan, Lisa108 and 11 others like this.
  16. Trish

    Trish Moderator Staff Member

    Messages:
    13,641
    Likes Received:
    74,671
    Location:
    UK
    That sounds like it was absolutely fantastic. Very well done to the organisers. I hope it will mean that pwME in Northern Ireland get better treatment and support very soon - and that the word will spread beyond NI.
     
    Hutan, Lisa108, Barry and 6 others like this.
  17. MEMarge

    MEMarge Senior Member (Voting Rights)

    Messages:
    791
    Likes Received:
    5,224
    Hopefully someone (can't remember her S4ME "name") will pass this on to Carol Monaghan.

    Above is a very useful summary, to be used with our own constituent MPs. I wonder if it would be good as a handout/reference at the GP conference in Glasgow.
     
  18. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    3,035
    Likes Received:
    21,698
    Location:
    UK East Midlands
    @Eagle
     
    Joh, MEMarge, Barry and 1 other person like this.
  19. Keela Too

    Keela Too Senior Member (Voting Rights)

    Messages:
    668
    Likes Received:
    5,994
    Location:
    Sally Burch - Northern Ireland

Share This Page